giving this a little bump in case anyone else has time to respond to my informal survey this weekend :-)
Thanks!
Heat makes a lot of my symptoms worse, paresthesis, foot drop, cog fog, O.N. slurred speech etc., and when I'm in cold and go into heat my hands get so painful I sometimes tear up... even A/C can do this to me sometimes.
Undiagnosed, but getting closer every day...
~Sunnytoday~
Cold gives me back cramps, and heat makes me dizzy... can't win either way!
I'm at work and going to make this quick but I too suffer from heat and cold. The cold though does affect my spasms more and my leg shaking becomes more frequent as well. The heat will "flare" these things up but the cold seems to make them more extreme. Mine is above the knee almost in the butt and also my right foot, but getting warmer doesn't do much other than ease it a bit. Gotta fly, shhhhh I'm supposed to be working.
Hugs
Moki
Thanks for the replies.
For me, heat, even a quick dose of it, sets off lots of tingling and other paresthesias. Like getting into my hot car during the summer instantly made lots of symptoms "light up." Heat or being tired also makes my vision problems worsen.
If I take a warm/hot shower, it is different. I'll feel mostly ok durning the shower, maybe a little moret tingling, but then after the shower I'll be draggin' my tail--just really worn out, like at the onset of the flu--but it wears off in < 1 hour. Needless to say, I don't take hot showers but sometimes I still misjudge, make it too warm, and can get this.
Cold is different, and since I've changed a lot this year I'm not sure what exactly I'm in for, which is part of the reason I'm asking since it is started to get a little chilly at night here.
From last year and the bits of cold I've run into recently, it seems cold makes my legs cramp and sometimes twitch, and hurt. The pain is worse the lower down. The colder I get, the higher in my leg it can go, but never above the knee. It's not normal muscle pain or joint pain, but it is pretty nasty. Like, moving my foot just a bit will be really unpleasent. But once I warm my feet up, the pain goes away.
Thanks again for the replies, I'll keep an eye out for more.
i'm not dxed yet,have a possiable/proable,
but summer heat theses past two summers have me stummbling and vision blurring within 45 minutes out.
New to me as i've been a camper and gardener for 30 some years.
freeze in the movie theaters and grocery stores, and at home bundle up by evening as i slow down, feet , hands, tummy and nose turn ice cold.
We'll just need to really bundle up this winter i think laura!
humming4u
I know for sure that the heat bothers me - my right foot drag/drop becomes more pronounced the hotter I become. when I got really overheated last month my leg would hardly move.
As for the cold, I don't know if this is relevant but I have noticed in the grocery stores all the summer my hands turn to ice.... you know how all the coolers and freezer space is open and spews cold air? Well by the time I leave the store I wish I had on gloves. The rest of me doesn't get cole - just my hands and fingers. Then my arms ache from the cold. Like I say I don't know what it means... when winter really comes it should be interesting. And I've spent most of the summer indoors.
My best,
Laura