jellylegs

[Valerie64]

both my legs are misbehaving now, both quite numb and heavy, especially from the knee down - can still move my feet no bother though I'm finding it hard to walk far and I have this odd feeling I have sand between my toes

Haven't spoken to my Dr yet as the surgery has been shut over Xmas and I did expect evrything to calm down since increasing the Pregabalin, am currently visiting my lovely stepdaughter for a few days (sitting with my feet up and playing with her laptop)

I am seeing my neuro in a few weeks but am wondering if I should visit my Dr again as at this rate I doubt I will be back to work next week - the Hospital did mention putting me on a steroid drip and then changed their minds - is this the way forward???

Val x

[Valerie64]

4 days of doing nothing but rest have improved the jellylegs slightly, increasing the Pregabalin again and more rest will hopefully help a bit more - I now have an appt to I'm see my Dr on Monday and I'll do whatever he thinks is best

Val x  

[Eyesnlegs]

Please get help as soon as possible as others have said. My relapse sounded very similar only I was undx and sent home to rest and only after 6 weeks could I even attempt to walk a small way, it took 5 months to refer me to an ortho and 9 months to get a final MS dx. in spite of a previous probabale MS dx.

I have sustained a long term issue with my legs as they quickly became deconditioned and weak following this - steroids sounds a good way forward.

Best of luck.
Pat x

[Valerie64]

I've had really itchy prickling sometimes burning skin across my left shoulder blade for about 4 years - I assumed it was sensitive skin but I've just realised the itching has stopped since I've been on the Pregabalin so now I'm wondering if it's connected

Val

[jensequitur]

Any sort of paresthesia - burning, itching, tingling, buzzing, cold, hot, banding... they can all be MS-related.

[Bettygil]

Needles in big toe

[norwegianprincess]

I am also having the same problem both my feet and my legs are numb. I also have been having some bad burning in my left shoulder which is something the dr said could be related to my MS. Has anyone else heard of that.  

[jensequitur]

I think a steroid drip will help you get over these symptoms faster.  It's definitely worth it if you're having problems getting around.  

Right after a flare last year, I had the same problem - when I stood up, I wasn't sure if my legs would hold me, as they felt so weak, numb and heavy.  Very, very shaky!  Sleep is the only thing that fixed it.