ms hug????????????

[granny215]

Can someone describe the ms hug to me?  How does it feel?  Does it go all the way around or can it just be in one spot.  Please let me know and thanks.

[janiehardy]

could someone please help me out? i dont want shots!!! they have done no good over 4 years. 2 mris,    more lesions second time even with copaxone, now they want to change to tysabri, dont like the side effects of it, mainly death,  why do i need any if its not slowing it down, i dont understand this thing called m.s.!!!!!!!!!!!!!!

[granny215]

Thank you very much.  I have not been dx.  Matter of fact, the dr.s all say no.  Have had mri two years ago and a couple of months ago.  Been to neuro, family doc, even neurosurgeon, who ordered lp.  Everything has come back neg.  But am still having lots of symptoms.  Two years ago had many of these symptoms with lots of problems with my neck.  Had a cervical fusion and got better.  Then in Oct. had a problem with diverticulitis and was in the hospital with high fever.  After coming home from hospital started having lights in eyes followed by blurred vision everyday off and on.  Lasted about 6 weeks. Then twitches, burning, dizziness several times, and for the last month my teeth have been driving me crazy.  They are so sensitive.  I do have spinal problems-spinal stenosis and ddd. It kills me to sit on my tailbone.  I have to lean to the side.   I wish someone could tell me what is going on.  Am so frustrated.  If you or anyone has any ideas, please share with me.            Thanks so much.

[denise61]

OOOOO Mine Has been really bad...     under my rib cage is tight band feeling and it has also moved to my sholder blade area      
   and up the neck.... the pain feels like its charly horses, the pain takes your breath away.

Denise 61                            

[Quixotic1]

Hi, Welcome to the Forum.  You have a whole raft of people to correspond with here.  What is your story?  Are you diagnosed or wandering in the wasteland?  It doesn't matter as we have all types here.

Would you tell us about yourself so you can meet a bunch of other people?  I am Quix, a physician in my former life, diagnosed with MS a year ago.  I am not official here, but do try to help answer the more technical questions.

You'll find some wonderful people here!

Quix

[debj52]

hi ,im not dx'd but i believe i have had the 'ms hug' and to me it felt like a vise on my ribs and around my back......only on one side tho...hope this helps.....deb

[granny215]

thanks so much- it is so nice to have someone to correspond with ---granny

[doublevision1]

For me, it was like a tight constricting band encircling my entire midsection, like someone was squeezing me in a very tight bear hug.  My breathing felt very shallow, like I couldn't take a deep breath.  Rolling over in bed was difficult as it felt the the entire middle section of my body had stiffened.  The sensation was constant over a period of a few weeks during a relapse, and subsided several days after IV steroids.  It seemed like it was worse if I ate too large of a meal.  

I had a subsequent relapse, mainly sensory symptoms, 6 months later (this past March).  The hug did not re-surface during this last relapse.

From what I've read here, there are many variations in how people experience this symptom.

db