need suggestions

[SarahL2491]

ok gang, I need suggestions

I manage 3-6 days good then can't hold anything down,
down for 2-4 days then back up

have repeated this scenario 3 times since first of May
none of my meds seem to help for more than 3 days

ER says nothing wrong, neuro says I have meds I need

suggestions?

[SarahL2491]

I solved the swallow problem, neuro said up the baclofin for a week when swallowing was a problem, from 10 to 20.  that worked.  Also said to add a week of steroids (for such as what am having).

thanks everyone, I think Alex has it nailed down but my mind also ran across gall stones as a possible, it always seems predicated by a big or spicey meal and stress.  so in the fall, will seek out a gastro doc to rule out some things.

on a good note, other than seeing a moose in the pond....today I managed to hold food down, and think have turned a corner.  Bentyl is my new friend, for sure.  

It appears that family has decided the trip up here and back every year isn't such a good idea.  It's a good 2200 miles and this year I really noticed it, so am sure when my energy returns, will be doing a ton of weeding of stuff I can do without and this will be the last summer here.  I'm ok with it.  It was a rough trip up as some of you know.

thanks again, you've given some good suggestions!

[Maks322]

Hi Sarah
Are you still having trouble swallowing as well ?  I believe we talked before about swallowing.   I kind of have the same issues as you.  I have not been able to find a solution.  I believe I have lost @35lbs in a year.  I have done every swallowing test they have, the last was in April.  I have a follow up in May, but believe that the gastro just isn't sure how to help me.  He believe it's a "nerve issue" .  I have been feeling very "weird" lately and may seek another opinion
Hope you feel better soon
Maureen

[HVAC]

Try six very small meals a day. That is what I do when I can't eat. I hope that helps. I do  an ensure, a small red potato, a banana, an apple, small amount of protein, a tablespoon of nut butter.

I yoyo 20 pounds of and on all the time.

Alex

[sllowe]

Hey Lady,

Have no idea what it could be, but do feel it's best to move on to reputable gastro. What you are experiencing is not normal for sure. Something is awry. Have you looked at all the usual suspects? i.e., change or increase in meds, foods, etc. And, put it to paper...(pre-May, and post)?

Not sure if they are helpful thoughts, but it's the ones I'm having :(