I to am fairly new to this site. I am also newly diagnosis with MS. I take Tramidol for the daily pain that I experience. It seems to work for the most part. I am also a volunteer fire fighter and have recently started running calls again since the diagnosis and getting back to my regular routine. So far the Tramidol has worked for me (it does not take away all the pain but most of it). I was unsure about how effective it would be, but I was at a structure fire a few days ago and the medication kept the pain at bay during and after my duties. I did find that it took me a couple days to regain my energy. I try to stay as active as possible but have limited myself to certain duties in the fire service as to not put any fellow fire fighter at risk. The Tramidol does not make me sleepy or anything like that. I do not take it at night any longer as it keeps me awake.
Leanne
Hi fellow Ozzie and welcome to our little MS community, yes i'm a tad late in the welcome but when you first joined us, I was on holiday floating on the Murray, so hence my belated hello :D
I read through your original posts to see if there was anything in your postings, that could help me with some ideas, i'm truly sorry you've just recently been diagnosed.....hugs!
" We have had a heat wave in Australia 40 degree and power cuts so no air con ...man I have heavy legs."
Heat is a very common problem in demyelinting diseases, Uhthoff's phenomenon is basically the temporary worsening (pseudo relapse) of your MS symptoms caused by an increase in temperature. It's highly possible due to it being summer over our side of the world, that you are experiencing Uhthoff's and on top of that, running around and over doing it for the kids.
Try to keep cool and rest up as much as you can in the hot weather but if you do get hot and or your symptoms start going down hill on you, find somewhere cool and rest because if it's Uhthoff's you should go back to 'your normal' once you've cooled down and rested enough.
I have to be honest with you, I am quite confused by the symptoms you've mentioned prior, "numb hands feet , body bloated tingling" which is from my understanding, highly unusual for MS to 'first present' as. Usually this type of symptom pattern would be 'red flags', because MS brain and or spinal cord lesions typically can't cause any of it's associated symptoms to develop symmetrically or present in all peripheral limbs.
Have you seen an MS specialising neurologist or had any discussions about starting one of the disease modifying drugs or symptom treatments yet?
Hugs.......JJ
I do not know how things work there. I go to a pain clinic in the U.S. The first thing they need to figure out is if you have nerve pain or muscle pain or both. For muscle pain it would be muscle relaxers like Baclefin or Zanaflex or something similar. For nerve pain in the states they use Gabenpentin which is a seizure medicine or Lyrica or Trileptal. Or sometimes anti depressants such as Amitryptoline. For headaches they use Topamax as a preventative. I take Immitrex for my migraines.
These drugs can take the body some getting used to but you should in a week or so be used to them. Everyone is different so there is no one drug fits all.
I take Immitrex for headaches. I take Zanaflex for muscle spasms. I took Trileptal for nerve pain.
Alex