regarding vibration sensations

[dowma]

I'm a new comer to your forum, although I have previously posted in neuro forum and gave my history.  To make a long story short, all my testing thus far have been normal, it's been a year now since my symptoms have started (numbness, tingling legs and arms, feeling of mental "fogginess", extreme fatigue, heavy sensation in arms and legs, some mild blurred vision, and difficulty with retaining information.  
But I wanted to ask those of you already diagnosed with MS about the strange vibratory sensations I have been having in my arms and legs.  It is as if my cell phone is on vibrate or my pager is on vibrate.  It startles me sometimes especially when I realize it is not being caused by anything external.  Is this fairly common?  What does it mean?  Does it awaken any of you from sleep, or do you have difficulty sleeping because of it?  
As I mentioned it has been just shy one 1 year since my symptoms all started, I am trying really hard to be patient because all my diagnostic testing has thus far been negative (MRI brain, C-spine) extensive labs, EMG: negative, spinal tap 3 months after symptoms started.  I did have an EEG which was abnormal then went for 5 day VEEG which was abnormal also, no seizure disorder but decrease theta waves and some cortical hyperexcitabililty in the parietal region.  I don't suffer from migraines, have been told possibly "white matter disease"  I am having reapeat brain MRI and C-spine it has been 6 months and more since prior fims. I am having them on a 3 tesla which is the newer machine.  Thanks for listening.  
dowma

[JonM]

Great info...

My Neuro offered Neurotin or Lyrica but after discussing the SAs, I decided to wait.  My Vibs, buzzing and snaps aren't that bad.  Question for those of you using them?  Besides the big "O", what other side effects have you experienced.  I read online that these typically caused water retention and weight gain... Being a guy, are any of you guys using these? what sexual SAs have you experienced?

[ahoskrn]

Regarding the side effects of Lyrica and Cymbalta: For me the inital 3 to 4 weeks on Lyrica were challenging because I was so drowsy...BUT It really does subside and I feel "normal" on it now. The Cymbalta hurt my stomach for the first couple of days ( a little bit nausiated...that is a common side efffect) and I must say I felt very tearful (more so than usual ) for the first week...But other than that ( and a little slow getting to the big "O" ...forgive me for being so frank, but you asked) the benefits are FAR outweighing the side effects. (Just the fact that I feel like indulging in you-know-what with my husband since this has started is  a miracle!) I was encouraged to try the Cymbalta because of the off label use of treating diabetics for nerve pain...I thought, if it helps the nerve pain, and helps the depression/anxiety then maybe it is a win/win combination. Your experience may not be the same, but give it some time when you try it, your first (first few weeks) may not be an accurate depiction. Best luck to all.
Angela

[Janey1]

Thank you so much both for this valuable information.  I feel that the more it bothers me, the more I would like to know about it.  It is definitely interesting point, the suggestion about viral infection.  Will certainly check out the other 'thread'  mentioned by Quix.  Take care for now, will catch with with you all very soon.  Janey(1)

[Quixotic1]

It's fascinating that this "symptom" of vibrational paresthesia gets so much interest and yet seems poorlt understood by the neuro's.  Thank you, Angela, for mentioning that your neuro feels it is the effects of a viral infection.  That's really interesting!  Over on the reular Neuro (Patient-to-Doctor) Forum there is a thread called "Feels Like I'm Vibrating!""  It is at least 99 replies long - about the longest I;ve ever seenhere and it has to do with this very topic.  You might want to go over and read some.  It's currently on page #4.

Quix

[floridamom2]

Hi!  Thanks sooooo much for the info. It is really crazy that we all seam to have the same sx with no clinical signs!!  It makes me think it could be something simple like a virus caused by eating fruit or something strange like that!  I hope it turns out to be something like that for us all.  I have been on a medrol dose pack for 4 days now and I have gotten some energy back and feel like my legs are almost normal again.  It is weird, I can walk at my old pace again today for the first time in 2 months!!  The vibrations or buzzing (great word! that's exactly what it feels like) are still there along with my vision problems but at least something is turning around!!  I am going to research those meds to ask my neuro about it.  

Ahoskm - Have you had any side effects on these two meds?

Dowma, Janey1, JonM :  Hang in there and do all the research you need to before your next neuro visit so you can go in with questions and suggestions in case they do not offer anything but a "come back and see me in 3 months".  I am realizing that we all need to act as our own advocates to be sure we get the help we need and deserve.  It seams so easy to be dismissed when the clinical signs are not there!!

Take care and be well!
Kristin

[6-paq]

I have the buzzing in both feet and lower half of my calves.  I also have fine hand tremors and weak, shaky legs.    I am un-Dx'd and not on any meds for my Sx, except for Xanax that my neuro Rx'd me..

That's interesting about the Lyrica/Cymbalta combo ahoskrn.  I'll have to look into that and ask my neuro about it.