I SOOOO know what you're going through. At least I think I do. There is no getting around the fact that, pardon my French~ Limbo SUCKS. (I know -- that's not French.)
I am still here in Limbo, wanting a diagnosis. You know there is something wrong with your body. You just can't get anyone in the medical field to either take you seriously or even listen to you. One doctor even sent me to a psychiatrist, saying I was suffering from conversion disorder. That was a shocker. Talk about doubting yourself!
Well, I went to see a psychiatrist, and he told me that although I was anxious, it was BECAUSE of my symptoms, not causing my symptoms. That was great validation for me. I always tell people on the forum that seeing a psychiatrist could be one of the best things you can do for your mental health, and also toward diagnosis. (I'm NOT saying you need a psychiatrist. Only that it will help with validation.)
Yet, still, even after seeing the psychiatrist, I linger on with NO test evidence of MS. I have signs and symptoms, but no positive MRI, LP, etc. So, I DO have moments of doubt, sometimes. That SUCKS, too. (Don't you feel like you're in Paris?)
We have to just keep encouraging each other, and making sure we are taking good care of ourselves. We have to keep track of our symptoms and keep our doctors aware of changes. We have to keep on keepin' on.
Hang tough and let us know how you're doing.
Hangin' tough, too,
Zilla*
the games our mind and spirt play while we wait. were use to beleiving doctors and testing are certain and quick.
but not with MS, as i'm sure you'll find as you read others stories!
its okay, the way your feeling,i know you don't like it, but it will change as you get more use to the"ride'
your not feeling good, and why? not knowing is a hard place to be.
where is the answer anyway? I'm mad,sad, doughting myself, and some docs too!
i hope your journey is not to long,find what you love to distract you too
take care and God Bless humming
I will bet that every single person that has been diagnosed with ANY chronic illness would totally agree with all the emotional aspects of their lives before diagnosis.
I actually was thrilled when I got my diagnosis of MS. Overjoyed. Strange you think? No, not really, I had complained to doctor's for so long about this symptom or that symptom and put on so many anti-depressants and tranquilizers, that I was finally freed from that title they gave me of "hypochondriac." It was several weeks after diagnosis that reality set it and I actually grieved, just as if someone had died.
I understand this is part of the process that people go through when they are diagnosed with a life altering illness. All very normal.
Then you get on with the job of living and dealing with your diagnosis and hopefully trying to live your life as fully as possible. Sometimes getting through a day without even thinking that you HAVE MS. Those are good days.
Big Hugs,
Heather