This medicine is helping. Thank goodness. This numbness I guess was just a 3-4 hour thing. It's gone as well as the walking on a moving bridge. THANK GOD!!! UGH! I had to give the Steroids myself last night and boy did it hurt. I'm thinking it was because I didn't take it out of the fridge 2 hours early before I gave it (didn't get home in time). I only got it out 1 hour early. She told me to pull out the IV, hold firm and heat it. I'm glad I did this. I don't think I could have handled one more day with that in my arm. I go back tonight and she is going to put it back in, give me the meds, then take it out. It is the last dose. I'm glad, but grateful that these meds are sidetracking things a bit.
I did get the cramping from waist to toes all night as well. That was a new one for me. I only ever got that during pregnancy. I'm hoping it doesn't happen again today. It's gone this morning.
The thing is, I didn't ever have any real "episodes" until a month ago. Part of me wonders if it's just because I was told I have ms, so the problems are all happening all random and different. I don't get it. I'm not making these things up! It is scary as *-LL. I hate it! I'm hoping after Copaxone kicks in, all will go away.
Anyway... thanks for listening.
Leah
wish I could help with this one, but I haven't had this med..
hang in there, hope you feel better soon
wobbly
dx
Hi Leah,
Its real easy to be confused about the role of steroids. They are an anti-inflammatory, meant to reduce the pressures that are causing you problems. They are not a cure, and unfortunately sometimes they don't stop all of the problems.
Yes, they will make you feel wired - that is the unfortunate side effect of this drug. Also, don't be surprised if you want to eat everything you can see. Your hunger can get very agressive from the steroids.
As for the copaxone helping - 2 weeks if a very short period of time. It takes some of us 6-9 months before it begins to work effectively. You are retraining your immune system to attack the copaxone instead of your myelin, and that takes time.
I have not had IV steroids, so I have no personal ideas for you to try - I'm sure someone else will be along to help.
be well,
Lulu