Anyone have Lhermitte's for YEARS, cause unknown?

[Nancy T]

I have had Lhermitte's (electric buzzing, pulling, or vibrating sensations in my lower body or hands when I bend my head down) for over 13 years with NO explanation.

No trauma, radiation, vitamin deficiency, etc.; first they said MS and then they said not. Two MRIs (2002 and 2006) showed nothing to account for the Lhermitte's.

Has anyone else had this and did you ever get an explanation? Not one doctor out of the many I've seen in 13 years (GPs, neurologists, ENTs for dizziness and hearing loss) has ever offered even the slightest explanation, they just ignore it. It doesn't hurt but it drives me nuts wondering what is irritating my cervical spinal cord and why it has persisted (off and on) for so long.

Thanks,
Nancy

[Nancy T]

Thank you... supposedly I don't have any of those. MS is the closest possibility but MRIs don't confirm it, so they've labeled me a hypochondriac, basically, and they won't even talk to me about the Lhermitte's at all.

[Red_Star]

Causes of Lhermitte's sign include:

Multiple Sclerosis
Cervical spondylosis
Cervical disc herniation
Epidural, subdural, and intraparenchymatous tumours
Radiation myelitis
Transverse myelitis
Pernicious anaemia (subacute combined degeneration)
Pyridoxine (vitamin B6) toxicity
Nitrous oxide misuse
Cisplatin and docetaxel neuropathies
Cervical herpes zoster myelitis
Paroxetine withdrawal
Behçet's disease
Systemic lupus erythematosus
Arnold Chiari malformation