Help With Neuropathy

[barnabybrown]

Hi, I've been suffering from some neurological episodes for the past few years.  
They started by being very occasional and rare, perhaps once a month and
have slowly built up to 3-5 times a day now.  Here's some detailed info:


Symptoms:  In order of occurrence:

Feel hungry, jaw muscles clench, but facial muscles around lips and cheeks relax,
lower facial muscles relax, trouble articulating words, muscles around eyes relaxes,
shallow breathing, confusion, difficulty thinking and speaking, dexterity in the hands
goes, general weaknes all over body, feels like body shutting down.

Both friends, family and doctors have witnessed these attacks.

Episodes are stopped by eating something, and can also be prevented by eating A LOT
and very regularly, say once every 1.5hrs, but cannot be stopped by a high glucose drink.  

Sometimes if I can't get to some food i will also have a rush of adrenalin and panic...
however, these are secondary.  I don't ever have palpitations or adrenalin leading up to
an episode.

I often get pains just below my bottom right rib that coincides with the attacks, although
this is not always consistent.

I also suffer from general underlying lethargy constantly.  

I have regular bowel movements.  But the episodes are reduced if I get constipated or
don't go regularly every morning.
  
Other info:  

I have/had a heart murmur/hole in my heart.  
I had an intersucsseption when I was 13 months old.  No bowel removed.  
My tummy is very sensitive and can become constipated and swollen very easily.
I didn't get an episode for 48hrs when I took vitamin b1, b3, b12 and folic acid supplements
once, and my lethargy completely disappeared.

Tests so far:  All test came back normal.

Blood glucose levels (both during attacks and after fasting), calcium, sodium, potassium,
magnesium, liver, kidney, Vitamins C, B12, B3, bone density, thyroid (TSH, T3, T4),
EEG (including epilepsy tests), ECG, and nerve conductivity.

Any ideas?

[barnabybrown]

Also, just thought i'd note that other than this i'm pretty healthy. I don't smoke, I barely drink, I go to the gym when i've got the energy and I don't take any medication.  

I have suffered depression in the past after my father died, but not in a long time, nearly 10 years.  

I have taken recreational drugs in the past, including cannabis, mdma, amphetamine, magic mushrooms and cocaine... but apart from cannabis (which is only ever occasional use) all of these have only ever been taken once or twice and in low doses, with no bad reactions... and not for over 7 years.

[barnabybrown]

I haven't been screened for Lymes.  I did ask about it when I was in hospital for EEGs last month.  The doctor kind of dismissed it, saying it was a very 'popular' topic at the moment, but unlikely because as far as I can remember I've never been bitten by a tick.  Maybe I should ask my GP to screen me separately?  

I've also thought about the possibility of worms, just because it would explain my weight, 56kg (I'm 1m 69cm tall) which never changes even though I eat enough for 2 people every day.  Also I read somewhere that if worm eggs get into your blood stream they cause strange neurology too.

I also wonder if it could be some sort of parasite or something... but how would i get tested for that?

I've also asked to see and endochronologist as the link to food indicates to me that it could easily be something metabolic.  But neither my neurologist nor my GP will refer me to endochronology until they've exhausted all neurology.

I can understand the logic in that, but i've been seeing different neurologists for 4 months now and they haven't come up with anything at all.  I'm a teacher and all this time i'm not allowed to work due to health and safety of the children... and i need to get this sorted ASAP as i have a million bills to pay and a life to get on with.

[KStuff]

Have you rule out lyme disease? It's a bacterial infection that can get into your nervous system and create havoc. Make sure you are thouroughly screened, you can have a negative test and still have lyme disease.  It's complicated, but worth checking out.