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Herpes Simplex and Nerve Pain
I have had legions on my buttocks (both sides, and sometimes simultaneously) since I was about 6 or 7 years old, reappearing as often as twice per month, depending on stress level I think. I was diagnosed with Shingles, but when I asked for a definitive diagnosis, they did blood tests (which show antibodies to shingles) and a biopsy of the legions. The dermatologist now says they are Herpes Simplex blisters...genital herpes...not on my genitals but on my buttocks. Now I am starting from scratch trying to figure out where the heck is the root cause of the pain in my sacroiliac joints, buttocks, and down the outsides (and sometimes front and back) of my legs...My question is this: could herpes simplex cause nerve pain the same way shingles does? If not, do you have any ideas about this specific kind of pain? I used to have a herniated disk, but therapy seemed to heal it, and I've had cortosone shots in my sacroiliac joints that made it MUCH MUCH worse...permanently...I'm a senior in college, a wife and mother of three, and I need to figure this out and either fix it and go to work, or get it diagnosed, and accept disability...but not knowing is driving me CRAZY!!! Please help me.
Roxanne
Roxanne
Absolutely the Herpes simplex viruses can cause radicular, persisting nerve pain. The Simplex viruses I and II are "kissin' cousins of the Zoster virus which causes classic shingles.
They can all cause post-herpetic nerve pain and do it by the same mechanism. After the primary infection the virus usually continure to lives in the nerve roots near the spine. Under stress, infections, trauma, things that may suppress the immune system such as cancer or chemotherapy, and sometimes without apparent cause, the viruses travel down the nerve and erupts as blisters in the skin. These are the classic shingles, the cold sores, and outbreaks of herpes II.
For reasons that are not well understood, sometimes those nerves continue to transmit severe pain messages even though the skin eruption has healed. Often the pain self resolves though it may take seeks to months. Sometimes it is very-long-lived or even permanent. This can be devastating and even debilitating.
There is a huge amount of research being done on it and how to treat such pain. I tried to look up some of the articles from my search. Someof them looked very promising - very good scientific sources, but my computer is acting up and I think it needs a good cold boot. The search words I used in Google were "post-herpetic pain simplex II" Maybe you could try it.
I'll try to get back to you soon with more data. Does this answer some of your questions? Good luck, Quix
They can all cause post-herpetic nerve pain and do it by the same mechanism. After the primary infection the virus usually continure to lives in the nerve roots near the spine. Under stress, infections, trauma, things that may suppress the immune system such as cancer or chemotherapy, and sometimes without apparent cause, the viruses travel down the nerve and erupts as blisters in the skin. These are the classic shingles, the cold sores, and outbreaks of herpes II.
For reasons that are not well understood, sometimes those nerves continue to transmit severe pain messages even though the skin eruption has healed. Often the pain self resolves though it may take seeks to months. Sometimes it is very-long-lived or even permanent. This can be devastating and even debilitating.
There is a huge amount of research being done on it and how to treat such pain. I tried to look up some of the articles from my search. Someof them looked very promising - very good scientific sources, but my computer is acting up and I think it needs a good cold boot. The search words I used in Google were "post-herpetic pain simplex II" Maybe you could try it.
I'll try to get back to you soon with more data. Does this answer some of your questions? Good luck, Quix
Wow May was a long time ago, I'm sorry. I've been moving and graduating (yay!), and haven't been on here much. Thanks so much for the info. I'm gonna go try that Google search right now. I appreciate it. Roxi
1 Comments
I USED TO suffer from (HERPES) disease for the last four years and had constant pain, especially in my knees. During the first year,I had faith in God that i would be healed someday.This disease started circulate all over my body and i have been taking treatment from my doctors, few weeks ago i came on search on the internet if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr odoma and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so i wrote to Dr odoma telling him about my (HERPES Virus) he told me not to worry that i was going to be cured!! hmm i never believed it,, well after all the procedures and remedy given to me by this man few weeks later i started experiencing changes all over me as the doctor assured me that i have cured, after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE, So friends my advise is if you have such sickness or any other at all you can email Dr odoma on : (***@****) sir i am indeed grateful for the help i will forever recommend you to my friends!!!
Did anything get resolved for you? After developing a rash on my right buttock and having nerve irritation from my right hip to my right foot, I was diagnosed with shingles in January 2008. I took acyclovir and it seemed to go away though I still had nerve sensitivity. Then last week (Feb '08) I went back to the same doctor about what looked to be an emerging rash again also on my right buttock but higher than the previous rash (it's almost at the waistband of my clothes). That same dr. said it was just a "bug bite" and it would go away with some benedryl cream. She also had another dr. who supposedly specializes in dermatology look at it and he said it was a "bug bite" too. 3 days later the nerve pain was so bad on my right side that I had a hard time sleeping. The rash got bigger, was burning and itching plus there was sore next to it too. I went back to another doctor and was told it was herpes simplex 1. That dr. repeatedly told me that it was NOT genital herpes despite it's location. She gave me acyclovir again and said I'd be better soon. She had no explanation for the nerve pain. Despite my insistence that it really hurt and was definately a factor, she said it was not related to herpes and that she had no idea what would cause it. Now I'm totally confused and frustrated. I went from being okay with the shingles diagnosis, thinking I'd never have to deal with it again once the rash was gone (other than some possible lingering nerve issues) - to now thinking I have herpes of some sort with no signs of a cure or any help really. I don't trust what these doctors are telling me and now am not sure if I should see my OB/GYN (in case it's genital herpes) or a dermatologist - both of whom I trust. The nerve pain is what is really the problem. I'm only 32 and despite a cold here and there am pretty healthy. So why is this happening now? I did get the flu badly right after the alleged shingles diagnosis and am breastfeeding so it's likely that my immune system is down. Right now I just want an accurate diagnosis and some relief for the nerve pain. Does anyone have any ideas of what type of doctor I should see? I also just started my period today and read that that can cause the pain to be more severe. Please help! I don't know where else to turn!
I too have had nerve pain--spine--from Herpes simplex.
Recently I was changed from Acylovir to Valtrex with MUCH better results. Also Valtrex is a twice a day dose--easier to handle.
Since both drugs are antivirals for herpes you might ask your doctor to try it?
Recently I was changed from Acylovir to Valtrex with MUCH better results. Also Valtrex is a twice a day dose--easier to handle.
Since both drugs are antivirals for herpes you might ask your doctor to try it?
I also have this same pain. Sometimes it is so bad, I have to excuse myself to go to the bathroom just to cry at work. I feel horrible, and I can't explain to people why I am so miserable because I don't want to just come out and say "it's because of herpes". If anyone asks, I just tell them I have fibromyalgia. The pain goes all the way down from my lower back, to my butt, all the way down my legs to my knees. I take Valtrex everyday, and I also started taking 100mg of Lyrica once a day. I am supposed to take the Lyrica 2 times a day, but it makes me want to fall asleep in the middle of the day. I have literally almost fell asleep driving twice.
Also, my husband and I want to get pregnant so bad, but we are waiting until all of this subsides, because I don't know how I could ever make it through a pregnancy without the Lyrica. We've now been waiting for over a year, to no avail. I am so depressed and in pain all the time, that I just don't care much about anything anymore. I'm trying to stay positive and am going to a Neurologist on Monday. Hopefully something good will come out of it. If not, I don't know what else I can do.
Also, my husband and I want to get pregnant so bad, but we are waiting until all of this subsides, because I don't know how I could ever make it through a pregnancy without the Lyrica. We've now been waiting for over a year, to no avail. I am so depressed and in pain all the time, that I just don't care much about anything anymore. I'm trying to stay positive and am going to a Neurologist on Monday. Hopefully something good will come out of it. If not, I don't know what else I can do.
Hi,
I think I may have herpes but don't suffer from a rash as such but do suffer from burning/sore armpits and have had a burning pain once accross my back/shoulder blades from pit to pit.
Could this be herpes as you guys are discribing?
I think I may have herpes but don't suffer from a rash as such but do suffer from burning/sore armpits and have had a burning pain once accross my back/shoulder blades from pit to pit.
Could this be herpes as you guys are discribing?
Hi Quix,
I have been diagnosed with Herpes Simplex II. I am also having issues. It appears to be typical nerve damage symptoms, but nothing showed up on 6 MRIs this year. Now I suddenly am having several break outs. I never really had many symptoms before. I also have been having swollen lymph nodes in my inner thighs. The tissue feels like a criss-cross of ropes in there, too. My GP said it feels fibrous. I was wondering if you could tell me where you found that they are doing research on this issue. I searched your suggested terms, but found nothing. My GP said that herpes pain is usually localized. It pretty much is in my groin area, but also travels down my right leg. I have super sensitivity in my skin which turns to pain in my buttocks, groin and right leg. Anyone out there know of any online articles or research on this subject?
I have been diagnosed with Herpes Simplex II. I am also having issues. It appears to be typical nerve damage symptoms, but nothing showed up on 6 MRIs this year. Now I suddenly am having several break outs. I never really had many symptoms before. I also have been having swollen lymph nodes in my inner thighs. The tissue feels like a criss-cross of ropes in there, too. My GP said it feels fibrous. I was wondering if you could tell me where you found that they are doing research on this issue. I searched your suggested terms, but found nothing. My GP said that herpes pain is usually localized. It pretty much is in my groin area, but also travels down my right leg. I have super sensitivity in my skin which turns to pain in my buttocks, groin and right leg. Anyone out there know of any online articles or research on this subject?
Omg i have had herpes for 3 yrs took valtrex quit 3 months quit had no outbreaks but several months later i started experiencing strange symptoms like numb spine or more like bruised weakness etc i thought maybe the valtrex caused it since it can cause ttp or is my body neurologicaly messed up because its fighting a virus constantly? good luck to u
smc22
I suspect you have genital herpes I would advise attending a GUM clinic when the blister attack starts again they will take swabs to determine if it is indeed this, the swabs need to be taken when the blisters are wet prior to forming a scab. I have attended a Sexual Health Course where the advisors stated genital herpes only form on the genitals. However I have indeed seen a case where the blisters formed on the buttocks with associated temperature senisitivity & nerve pain. The person in question was also informed by several doctors that it was indeed an insect bite.
I suspect you have genital herpes I would advise attending a GUM clinic when the blister attack starts again they will take swabs to determine if it is indeed this, the swabs need to be taken when the blisters are wet prior to forming a scab. I have attended a Sexual Health Course where the advisors stated genital herpes only form on the genitals. However I have indeed seen a case where the blisters formed on the buttocks with associated temperature senisitivity & nerve pain. The person in question was also informed by several doctors that it was indeed an insect bite.
Up to 70% of genital HSV infections are clinically unrecognized. The majority of patients with genital herpes have symptoms and signs unrecognized either by themselves or their clinicians. A recent retrospective study on clinical presentation of the disease reported 51% of cases to be atypical (11) (http://www.ncbi.nlm.nih.gov/pubmed/11385226). Currently, many doctors rely on the typical clinical presentation of the disease. Underdiagnosis of genital herpes because of misinterpretation of either anatomical or morphological presentations of the disease can accelerate the spread of the epidemic.
What all that means is that your doctors THINK they know herpes, but they DON'T, and more than half of cases in the aforementioned study did not appear according to the conventional "wisdom" taught in medical schools. BE AWARE that most doctors are not current on the literature. HERPES CAUSES NEUROPATHIES in many people affected. If they tell you only varicella does that, they are wrong. If they tell you HSV 1 or HSV 2 are not associated with neuralgia, they are wrong. If you're putting 2 and 2 together, and you think your herpes is causing your back and leg pain and sensitivity, IT PROBABLY IS. Keep looking for a doctor who is current on the literature and understands the neurolopathic aspect of the disease. Ask before making an appointment so you don't keep wasting your money. There is no good news here. There is no cure, and opiods are virtually useless for MOST neuropathies, not just herpes. The medication Neurontin (gabapentin) may be helpful. Get plenty of rest, drink lots of water, and eat well. Support your immune system as much as possible.
And EDUCATE YOUR DOCTORS. If they're not suffering, they're not likely to just spontaneously look into it. Tell them to check the Merck Manual, for pete's sake.
I have had luck taking oral zinc daily. Not only does it seem to help prevent colds, for me it has proved to be an effective, homeopathic way to avoid outbreaks. I have had more luck with natural remedies than with prescription drugs.
I share your pain and understand exactly what you are going through. I can't tell you how sorry I am. just found this site and as sad as it is to hear how much pain others are in at least I now know that others are experiencing the same thing. I have had a very severe strain of herpes II for 30 years. It has caused dibilitating nerve pain at times. Before there was medication I got it every month with my menstrual cycle plut those other times that it just felt like showing up. As you can imagine I had very little herpe free time. I will try and outline how it has manifested itself for me. Horrible nerve pain throughout body just prior to outbreaks. Sometimes this last for several days and sometimes longer into the outbreak. I have been bedridden with pain to the extent my doctor checked me once because he thought i might have meningitus (sp) as the pain up my spine/neck and into my head was excruciating. Our nerves shot all over our bodies and herpes seems to have no boundaries. Once medication was prescribed I started taking it when I thought I was starting to have an outbreak but unless you stay ahead of it happening it still seems to happen on a regular basis, at least it did for me. I then started taking daily doses of Famvir and once I did that I got my outbreaks down to three or so a year which was really good for me. This brings me to my current problem which I will share now. As I said I have had this for many years and I think there is no way to know how it will affect us long term. I don't think anyone including the doctors know either. My current symtoms are very painful feet and the symtoms change day to day and week to week. Sometimes I can't walk on them without a great deal of pain, sometimes I can't sleep (seriously can't sleep) because they are on fire. Sometimes the pains are shooting, sometimes it feels like thousands of hot needles are in my feet......anyway you get the picture. I am a walking advertisment for neuropathy. Diabetes has been ruled out so my neuropathy is not caused from that. I am now waiting to get into a neurologist to have tests run but in my heart I believe that Herpes has caused all of this. I don't know what the doctor will say and I don't know if he even knows anything about herpes but guess he is a place to start. At this point the painful feet are constant although some days are better than others. This came on full force last April and has been pretty non stop pain since then. I have had extensive acupuncture and while it has helped to some degree I am still suffering so the doctor is my last resort. I realize this was a very lenghthy posting but if anyone has gone down the doctor route and has any suggestions on how I go about getting the treatment/testing that I need I would be very grateful for any tips.
I also have extreme pain associated with herpes simplex breakouts on my face. I was kissed on the face as an infant and began experiencing neuralgia a few years ago. It is always associated with a breakout and is becoming more chronic. I am taking gabapentin (neurotin), percoset, Nortriptyline, and acyclovir daily. I still feel I have chronic nerve damage though and am having trouble convincing any of my doctors that this is what it's from though finding lots of evidence and forums such as this. I was trained in the medical field in massage school which is very in depth anatomy and pathology. I tried to figure out my pain in school which is when it started. I have had an MRI, nerve conduction test, blood tests to rule out rhematoid arthritis and lupus and other autoimmune disorders. I know this is what my pain is from and just wrote another letter to my doctor via Group Health online which is awesome). It is not muscle pain. It's deeper and more excruciating. I know what a sore muscle feels like and it's not that. I am compiling a list of articles I am finding online as well as referencing the source at the bottom of each finding so it can be looked up by whomever reads it. I will be showing it to my doctors.You should do the same and we should share research. I could go on and on, but will write more later.
please keep us informed, I think this virus is causes more problems than we think, even in my hands. My hands as well as everything below my waist hurts. I am in constant pain, but there are times when my thighs and legs,feet really burn and hurt, and I too, hve the gut feeling it is herpes. I have constant pelvic pain, but I also had hysterectomy which I think had something to do with the influience of herpes. I eat right and get rest, and I am on medication for RA, and generalized pain, but I have always thought herpes has been a participant in the neuropathy I have experienced, but I do have a predisposition for that sort of thing, nerve and vascular problems.
I two started off with pain in my neck, then it traveled to buttocks and down my leg. My fibromyalgia flared as did my Interstatial Cystities at the same time I had a brake out of Herpese on my Hip. So much pain. I started taking the valtrex as soon as I noticed the blisters starting, but the pain in awfull. Was hoping someone knew if there was anything to put on the blister to releave the pain in that area.
I'm really sorry you are having so much pain, and I don't know what you can
put on this, but I am sure there must be something you can use for that. You might ask your doctor or pharmacist what would be good. It is funny you say you have IC because I also have that, and I have the burning really bad down my legs, and I do have some discomfort at the herpes site, but the neuropathy is worse than anything. After reading these things I am beginning to believe that my original thought on the herpes is that it affects more things than the doctors know. I now wonder if there could be a connection with it and IC. But, I have a lot of pelvic pain and I have long thought it could be associated with the herpes. I've also wondered if it could be in my vagina at times and really accesses a lot of nerves that innervates a lot of places. I've also thought that it takes up the immune systems energy trying to keep it at bay. I hope we can keep this going here because I want to hear the symptoms of other people, that is the only way that medical professionals can really know how this works.
put on this, but I am sure there must be something you can use for that. You might ask your doctor or pharmacist what would be good. It is funny you say you have IC because I also have that, and I have the burning really bad down my legs, and I do have some discomfort at the herpes site, but the neuropathy is worse than anything. After reading these things I am beginning to believe that my original thought on the herpes is that it affects more things than the doctors know. I now wonder if there could be a connection with it and IC. But, I have a lot of pelvic pain and I have long thought it could be associated with the herpes. I've also wondered if it could be in my vagina at times and really accesses a lot of nerves that innervates a lot of places. I've also thought that it takes up the immune systems energy trying to keep it at bay. I hope we can keep this going here because I want to hear the symptoms of other people, that is the only way that medical professionals can really know how this works.
I had been told I had genital herpes with the genital ulcers about 10yr ago I have not had any problems but lastnight I went to the er because I have leftside shoulder blade pain through my breast and it just hurts to touch but nothing is visible they (er) of course said nothing wrong take motrin it probably a pulled muscle but I just have this pain that is not going away and it hurts so bad any ideas what it could be I feel hopeless nobody is understanding the pain!!!!!!
I had a cold and soar throat for much longer than I ever had this past spring. I had strangely red skin, particularly in the sun, and suffered fatigue. I began to have extreme abdominal pains 2 months later after having sex, including oral sex once, in a monogamous relationship with my girlfriend. Long story short, symptoms progressed and progressed and included many listed here, particularly those of users "roxilovi, norsha, 503", until my symptoms included extreme pain radiating from the groin down my legs, weakening them, to my feet, and sometimes upper body to the arms.
As mentioned, doctors had no idea and I felt terrible when my new gf tested positive for hsv1 because I was convinced for a few days in the spring it was an unusual occurrence of herpes but was assured it was not by doctors and then proceded a little over a month later to have intercourse with my new girlfriend. Antibiotic regiments, antivirals, changed every aspect of my health, etc to no avail.
Now I have constant, painful red rashes on my hands, joints, fingers, toes, lips, arms and worst of all, every centimeter of my testicles and becoming my penis as well. The rashes appear moist to the touch, and only change in appearance when they become very dry and then the skin takes on the appearance of old, finely wrinkled skin with shininess to it. Although I believe it is more the heat than sunlight, the rash worsens significantly in the open daylight (altho unchanging on my groin.) My eyes burn behind the eyeballs, and are infected as well with long red veins. My face feels tight to my skin and is often tingly and uncomfortable, almost itchy. My back breaks out in painful acne-like blisters but are just red with no white head. The thing that keeps me from going out and attending classes anymore is the chronic, debilitating sacral (nerve?) pain.
It's been 4 months of the shooting groin pain. Otherwise, I am a healthy 22 yr old, wrecked by this disease..
As mentioned, doctors had no idea and I felt terrible when my new gf tested positive for hsv1 because I was convinced for a few days in the spring it was an unusual occurrence of herpes but was assured it was not by doctors and then proceded a little over a month later to have intercourse with my new girlfriend. Antibiotic regiments, antivirals, changed every aspect of my health, etc to no avail.
Now I have constant, painful red rashes on my hands, joints, fingers, toes, lips, arms and worst of all, every centimeter of my testicles and becoming my penis as well. The rashes appear moist to the touch, and only change in appearance when they become very dry and then the skin takes on the appearance of old, finely wrinkled skin with shininess to it. Although I believe it is more the heat than sunlight, the rash worsens significantly in the open daylight (altho unchanging on my groin.) My eyes burn behind the eyeballs, and are infected as well with long red veins. My face feels tight to my skin and is often tingly and uncomfortable, almost itchy. My back breaks out in painful acne-like blisters but are just red with no white head. The thing that keeps me from going out and attending classes anymore is the chronic, debilitating sacral (nerve?) pain.
It's been 4 months of the shooting groin pain. Otherwise, I am a healthy 22 yr old, wrecked by this disease..
1 Comments
I also had a long, ongoing respiratory tract infection and sinus infection that followed a severe outbreak of HSV1 on my face - and then the strange rashes and nerve tingling/prickling began. My symptoms aren't as bad as you are describing here though.
College I too have the nerve pain symptoms you describe including the back acne symptoms all came after a sexual encounter that included what can only be described as a initial genital herpes outbreak. This left me with pelvic pain, sciatica pain, eye strain, burning feet, random skin outbreaks which I never had before including the back acne thing, and genital itch. I too have changed diet, gotten medication and learned as much ad I can about this. Everyone says it's not herpes but they have no answers, seems such a coincidence it all started after the sexual contact.
Hey Matt, first of all please reply to "collegeusername" without the 007 bc i cant recover my password.
Of all the forums I've posted on, you seem to be the only one to simultaneously have all of these symptoms that I did, so I'd def like to continue working with you to figure this out.
From talking with others, most people do not seem to get the red rashes and back acne. My acne has completely disappeared recently, however, after what seemed like two distinct episodes of a back-acne breakout. As for the rash, is it localized to sensitive skin areas such as your hands, elbows, knees, toes, fingers and possibly face? (and of course, the groin)
Last night I had my first alc. beverage in a month probably, 3 shots of gin (which is just pre-game for a russian irish guy like myself), and by the time I came back I was in cold sweats, then hot, then terrible flu symptoms and diarrhea and cuts began opening all down my throat and it became yellow-white colored inside my mouth. This is the second time i've been super sensitive to alc, and just 2 months ago when we went to a wine tour my gf (who has various symptoms but much milder) had to be hospitalized after less than a single glass of wine! I've been drinking 2 liters of water a day and my pee is almost always yellow still. So have you too been extremely dehydrated for no reason?
Well after that episode I got really mad about this and went on a frenzied research and found this, which literally describes EVERY symptom I've had. I'm not very happy about it:
http://www.med.unc.edu/medicine/web/meningitis.htm
I'll check back in a bit,
Of all the forums I've posted on, you seem to be the only one to simultaneously have all of these symptoms that I did, so I'd def like to continue working with you to figure this out.
From talking with others, most people do not seem to get the red rashes and back acne. My acne has completely disappeared recently, however, after what seemed like two distinct episodes of a back-acne breakout. As for the rash, is it localized to sensitive skin areas such as your hands, elbows, knees, toes, fingers and possibly face? (and of course, the groin)
Last night I had my first alc. beverage in a month probably, 3 shots of gin (which is just pre-game for a russian irish guy like myself), and by the time I came back I was in cold sweats, then hot, then terrible flu symptoms and diarrhea and cuts began opening all down my throat and it became yellow-white colored inside my mouth. This is the second time i've been super sensitive to alc, and just 2 months ago when we went to a wine tour my gf (who has various symptoms but much milder) had to be hospitalized after less than a single glass of wine! I've been drinking 2 liters of water a day and my pee is almost always yellow still. So have you too been extremely dehydrated for no reason?
Well after that episode I got really mad about this and went on a frenzied research and found this, which literally describes EVERY symptom I've had. I'm not very happy about it:
http://www.med.unc.edu/medicine/web/meningitis.htm
I'll check back in a bit,
I've had the same symptoms for 11 weeks, after the same exposure. I cannot drink enough water in a day.
Got the girl tested with an 8-panel. She was clean except for high HSV1 titer.
I should add we are geographically close in terms of population. My contact was a college-aged female in Boston, who travels to NY frequently.
I've had a few small blisters too which a physician remarked looked like HSV, and also "cold sores" in my mouth usually lasting 3 days, worsening with worsening general malaise and getting better when it gets better. I have negative REPEATED serology for everything you might imagine.
I've felt like **** for 11 weeks now. Luckily testicular pain and gland swelling has abated. Very mild (but so worrisome) neuropathic tingling in extremities, slight fatigue, headache, and intermittent bizarre red rashes continue. Aches in my muscles too. I've read so many forum posts where people have the same symptoms and freak nonstop for a year, then just disappear (presumably they feel better) Usually it takes the body 6 months to develop an effective response to Herpes :/ it's just a sneaky *******.
I should add that early on, I felt a tingling burning on the side/tip of my penis alongside the red scrotum, and immediately began taking 1g valacyclovirs like they were tic-tacs. That made the former symptom disappear, but didn't take me to 100% wellness. I've since stopped taking it... Have you tried it? Had any luck? I actually think the absence of a main "breakout" is making this all worse. Fewer traumatized cells to present antigen, with HSV down regulating MHC.
I'm not sure this is vanilla HSV1. I think it may be an associated virus (CMV), A very aggressive strain propagating via oral sex, or some unknown hepatitis virus. I'm not optimistic about receiving a diagnosis from a physician, and so it's pretty nice to hear from other people with similar bull****, basically going on with their lives. I don't think we'll ever get to the bottom of it.
I try to exercise a lot, drink a lot of water and take vitamins. I notice a solid sweaty workout will suppress the symptoms for a day or so, and attribute any improvement I've had to that regimen.
Got the girl tested with an 8-panel. She was clean except for high HSV1 titer.
I should add we are geographically close in terms of population. My contact was a college-aged female in Boston, who travels to NY frequently.
I've had a few small blisters too which a physician remarked looked like HSV, and also "cold sores" in my mouth usually lasting 3 days, worsening with worsening general malaise and getting better when it gets better. I have negative REPEATED serology for everything you might imagine.
I've felt like **** for 11 weeks now. Luckily testicular pain and gland swelling has abated. Very mild (but so worrisome) neuropathic tingling in extremities, slight fatigue, headache, and intermittent bizarre red rashes continue. Aches in my muscles too. I've read so many forum posts where people have the same symptoms and freak nonstop for a year, then just disappear (presumably they feel better) Usually it takes the body 6 months to develop an effective response to Herpes :/ it's just a sneaky *******.
I should add that early on, I felt a tingling burning on the side/tip of my penis alongside the red scrotum, and immediately began taking 1g valacyclovirs like they were tic-tacs. That made the former symptom disappear, but didn't take me to 100% wellness. I've since stopped taking it... Have you tried it? Had any luck? I actually think the absence of a main "breakout" is making this all worse. Fewer traumatized cells to present antigen, with HSV down regulating MHC.
I'm not sure this is vanilla HSV1. I think it may be an associated virus (CMV), A very aggressive strain propagating via oral sex, or some unknown hepatitis virus. I'm not optimistic about receiving a diagnosis from a physician, and so it's pretty nice to hear from other people with similar bull****, basically going on with their lives. I don't think we'll ever get to the bottom of it.
I try to exercise a lot, drink a lot of water and take vitamins. I notice a solid sweaty workout will suppress the symptoms for a day or so, and attribute any improvement I've had to that regimen.
Hi There,
I have had all of the above symptoms except I am waking with night sweats and my hands and feet have been numb. I have too been tested for everything except HSV. like coffeeprof, I can't make sense of it...Read my posts. I am going nuts trying to figure it out. Hopefully one of us will figure it out soon enough.
Cheers lads
I have had all of the above symptoms except I am waking with night sweats and my hands and feet have been numb. I have too been tested for everything except HSV. like coffeeprof, I can't make sense of it...Read my posts. I am going nuts trying to figure it out. Hopefully one of us will figure it out soon enough.
Cheers lads
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