MEMORIES

[Amanda75]

Hi. I am a 32/f that was diagnosed with pseudo tumor cerebri back in 99. I have had many lumbar puctures and have been on different meds and lost 45 pounds...still the headaches and going blind..have no perifreal vision at all. They are talking of placing a shunt because i'm classified as a medical failure and i'm kind of skeptical of this...but my question is: is there anyone else with this disease that their memories are really bad too or is it just me...I have read that it could effect the memory but have had a couple doctors tell me that they have never heard of this...Am I just crazy or is something else wrong with me...I mean there are times that I forget where i'm at and where i put things and it's worse than just going into a room and forgetting what your doing in there....sometimes i feel like i'm losing my mind...anybody who has ptc and is experiencing memory problems please contact me and let me know i'm not alone..
thank you,
amanda

[Christilyntx]

Hi Amanda,

I was wondering if you ever found out about the memory loss. I was diagnosed just a week ago and I have had several spinal taps and have not started the medication yet as I was just released from the hospital, the meds are not the cause. I have also noticed I forget everything. I could type 120 words a minute last year and now I struggle on spelling the words, I get my letters backwards, I forget things for example I was asked Where I work and I had no clue, I cant remember simple words, what I am doing, what my tasks are. I feel like I am in a fog at all times. Its very scary.

Christi

[bbaby1971]

Yes Amanda I too have been DX with pseudotumor cerebri and also have problems with not being able to remember things as well as dealing with sometimes alot of mental confussion ( as in trying to talk or do something and just suddenly  dont really know what I am doing.. kinda forgetting how to do the things you have done for most of your life)  All of this is very frustratiing for me as I am sure it is you too, the ringing/humming in my ears and the vision problems are very annoying. My headaches seem to be kind of under control at this point. What I find strange is I had NO problems what so ever until after a car wreck where I was hit head on. I still feel like part of this is coming from that but my neuro of course wont even begin to think in that direction. Feel free to contact me anytime if you want to talk I know it would be nice to talk with someone that is going through the same thing I am. ***@****    best of luck to you ...~Tara~

[Abhijeet Deshmukh, MD]

Hi.

The memory loss that you have described could actually be part of disorientation seen with intracranial hypertension (pseudotumor cerebri) which is not adequately controlled. Brain is sensitive to any pressure changes inside the skull. It reacts in ways that would lead to a reduction of activities. Once you are disoriented, you tend to stop for a while and wonder where you are. What that does is prevent you from going on with activities which increase the blood pressure and subsequently the intracranial pressure. This is a simple explanation. I think you should consider it as a part of disorientation and discuss it with your neurologist.

Regards