I have been having trouble with dizziness, nausea, and headache for a year. I have been diagnosed with migraines by two neurologists but I have doubts. Here are some things I thought were supposed to be characteristic of migraines but do not apply to me. I'm on medication that helps a ton (diamox) but I don't want to leave a potentially unknown condition untreated and just covered up by medicine. Have any of you experienced similar symptoms?
1) I thought...They occur in episodes.
I have had 24/7 severe dizziness, nausea, and headache for a year, constantly, which came about suddenly. It goes away when I lay down and comes back when I'm upright (slowly).
2) I thought...There can be vision symptoms like seeing lights, double vision, and blind spots.
One day I could read, the next I couldn't. I spent about 4 months in occupational therapy restrengthening my eye muscles so that I could track objects, do saccades, etc without getting flush, experiencing eye watering strain, and worsening my symptoms. If I don't keep up with the exercises, I start having problems again. This is my only vision-related symptom
3) I thought...Migraines typically hurt on the sides, front, and top of your head.
I'd say 60-70% of the time my pain radiates up from the base of my head/neck. The rest of the time it is on the sides, especially the right side.
4) I thought...Migraines have nothing to do with neck/spine.
When I turn my head to the right (for example, to check a blindspot while driving), my eyes immediately get very watery, I feel a weird tingling sensation up the side of my face, and my headache worsens. This started at about the same time as everything else.
5) I thought...The pain is typically throbbing.
Sometimes mine is, sometimes it's sharp stabbing pains.
Thank you in advance for all input!