i understand your panic and position,i also am in the same boat,all i can say is you have to stay strong and keep pestering the doctors for more tests,i have been like this for 6 yrs and i am still undiagnosed,it makes u feel as if you r going mad but this is not the case. sorry i cannot give you any answers and i hope u find out whats what eventually.
Could it be that your symptoms are anxiety related? Stress and anxiety do strange things to you phsyically. I have experienced numbness, pins and needles, tingling and dizziness all of which can only be explained by anxiety. Googling does not help when you are worried about something. All I can advise is pester your doctor and keep on at them. Don't suffer in silence. The average time a GP spends with a patient is 7 minutes and this is not enough time to diagnose anything in my opinion. Good luck.
Thanks for replying even knowing that ohters are out there is a help. Yes I do suffer from anxiety as I am the most stressed person ever. I see the worst in every situation but oddly only with my health. I will keep everyone updated as I find out more and I will just try to remember that the odss are very slim for ALS at my age like 1 in 100000.
Cheers