Seeking alternative minded Neurologist

[1LifesDream]

I was dx with MS 10 years ago and also have Multiple Chemical Sensitivities. I have had little symptoms over the years, but nothing major til now. Upper back/scapula and bilateral rotator cuffs are in a lot of pain. Intermittent, and some days one side is worse than the other, other times it feels like pressure or a band on my upper back area and a burning sensation. Also sometimes burning in my collar bone area.  Pain gets worse with continual movement and it's been like this since April 14th.  My PCP has done blood tests that only show vitamin d deficiency, everything else is normal. So far, that is the only real findings.  I have been having rapid worsening of MS sx such as vibrating nerve feeling especially in arms and head. Sometimes throughout entire body. Also feels like my nerves are made of jiggling jello sometimes. I could go down the list of sx, but that is about 50 and most are sensory, cognitive, but the pain is what is keeping me off work with both of my arms/shoulders upper back being affected. I work in a factory and lots of repetitive motion. I can't even wear a bra cause the straps hurt. My short term disability stopped paying because there is no definitive dx and I am afraid that is impossible to definitively say what this is. I do feel it has to do with this MS flare up because of the way it is acting. I do feel occasional numbness, tingling in my left fingers especially as well.
I guess I do need to find a neurologist to try to help with this dx. I need to find one though that will be ok with me not choosing to use meds as I don't do well on any medication because of my MCS. There are so many natural things that have helped me in the past and it would be nice to find a neuro that would support me in my decision to only use natural solutions. Homeopathy, nutrition, acupuncture etc.
Anyone know of anyone?

I did  have 10 xrays of my shoulders and nothing was found. Brain MRI showed: very small foci of abnormall increased T2 and FLAIR signal noted involving bilateral subcortical and to a lesser extent preventricular white mtter of the cerebral hemispheres. There is an area of increased T2 and decreased T1 signal noted in the left temporal bone.
Abnormal supratentorial white matter singal changes for the patient's age consistent with the patient's given clinical history of multiple sclerosis. No abnormall enhancing lesions are noted. No infratentorial white matter lesions are identified.  Indeterminate signal within the left temporal bone. Follow up CT temporal bones is suggested to confirm mastoiditis (chronic likely) and exclude destructive lesion.

EMG/NCV testing showed normal results


Kimberly

[doctorlia]

Please look at Dr. Burrascano's Lyme Disease checklist online.  I have no doubt that you have lyme disease and perhaps some of the common co-infections.  Please, please find a lyme-literate physician in your area (ILADS website) and get a lyme test done at your nearest lab.  If that is negative, know that there are many false negatives and you may need to re-test through the Igenex lab. Good luck. You feel so much better when you finish treatment.

[1LifesDream]

Also a lot of muscle twitching in extremities, and like something is crawling on my nose and back of thigh, even though nothing is there.
Pressure and numbness in left side of face as well. Feel jittery, extremely fatigued etc.

Kimberly