Strange Head Sensation and symptoms - Migraine/epilepsy/something else?

[woody198900]

If you could take the time to read this and then give me your thoughts, hopefully some new theory could emerge:

it all started abouth 2 years ago, when I was lying in bed in the morning and in that 'about to get up' and 'still drowsy, lying in' stage I would have an odd sensation in my head. Sort of like a head rush, but more overpowering. How I would imagine a seizure to feel like if it was only in the frontal lobe of the brain (and not in the rest of the body).When awake I would never have these, and they happened very very rarely.

The next stage was when I was sitting down at the computer, and I experienced the same sort of sensation as above, but while i was awake. and much much less intense. again this happened rarely.

After this they became more frequent when awake. Then after a weekend Drinking with friends, the 'Hangover' was not regular headache, but these "odd rushes" (that sometimes feel like a flutter above the eyes, but sometimes feel like a muscle cotraction starting off softly contracting then intenselt contracting then softly then finish). These would happen once every 20 seconds. then next stage after having these frequent 'rush' feelings I gradually began to see vast amounts of eye floaters and eye flashes. untill flashes seemed permanent. Muscles would twitch a lot. I will get a feeling of swaying within my own head, even if Im not swaying physically. sometimes when a 'rush' occurs i feel as if my head is pulled backward. Sometimes as if one side of my brain is heavy, then the other side becomes heavy etc. I catch myself starring into space often, just at one place, losing focus and 'looking through' the object. and I feel withdrawn from things at the moment, as if I have no emotional attachment to them, I just see the things, as if I cant properly absorb the information (another example is - recalling past events, but the normal emotion that goes with memories doesnt seem to  be there). Would have some cold patches appear all around my body, like pins and needles, but feels almost like very fine cold water on small patches of skin. NONE OF THIS IS PAINFUL

(* Note - the word rush is not at all like a head rush when getting up. feels more electrical, or muscular orientated)

Lately Im having the suspicion that the 'rush' feeling has a connection to my eyes, sometimes my eyes shake when one comes about. eyes are never drawn up to the skull like in a fit. This correlates with the eye flash disturbance etc. Some Optic Nerve abnormality, or due to the swaying feeling possibly some brain stem problem (which is the center for eye and ear nerves). Or Epilepsy.

I went to many Doctors (6 or 7) and all of them had no idea. saying it could be some sort of migraine. No tear in the retina. Epilepsy hasnt ever come up. symptoms are always described as strange.  

Any thoughts would be much appreciated, or if anybody has similar symptoms.


Additional information about me - my posture (neck) is a little hunched, could this be causing some sort of tension that causes the above? I use the computer a lot. never had a serious illness. have smoked marijuana before. not a lot though. did binge drink, but havnt since symptoms

EMAIL - ***@****

[Frankie3737]

The best way I can describe it is like when you were a kid and someone held your wrist really tight and pushed all over your hand to kinda like get the blood out. Then let go of your wrist and you would feel I wierd sensation as all the blood was going back into your hand.nthis what it feels like in my head starting around 5pm everyday. It does seem to happen more when I work out which is at around 3:30pm.

[arcadeperfect]

I get it too. Started about a month ago. At first it was 24-7, then became less frequent, but it still happens. Saw a neurologist and had an MRI, but got nothing.

Once, and only once, it became classic migraine (splitting pain, one side of head, sensitivity to light and sound, weird vision). That happened since I saw the neurologist so I don't know what he'll have to say about that.

He gave me migraine pain meds anyway and they seem to mitigate it a bit but I can't tell if it's just coinciding with natural decline of the symptoms, or even placebo for all I know.

[Mel1018]

Do most of you experience it when laying down?
That's when I do. I have also noticed it's much worse in relation to my cycle.

The eye fluttering is very extensive for me. How many of you have test?

[Mel1018]

Totally what I experience

[Mel1018]

This is exactly what i experience. Especially the eye flutter thing. Are you sleepy during the day?

I ask because I have been diagnosed with narcolepsy with cataplexy but question that diagnosis.

THANKS,

[bettyboop1957]

Have any of you been checked for Bells Palsey?????  I have had at least 6 different people tell me to have my doc check for this.   If you google it it tell what to look for.