Tremors and Dystonia - result of surgery?

[Elle58]

This may or may not be related.
May 2007 I had breast reduction.  I had problems with the surgery.  I was paralyzed shortly after for several days.
I have found out that this is a rare but serious condition.  The paralysis ended and I had a long recovery.

August 2008 - I suddenly began to have very aggressive tremors and dystonia.  Mainly in my right arm, but also in my left. It has since traveled to my left leg and cheek.
I have seen a neurologist and my EEG and MRI were normal. I was placed on Valproic Acid. I have my good days and my bad.  I'm very tired and can sleep hours at a time, which I never did before.

Blood work shows Parathyroid problems - Vit D deficiency.
Slightly elevated Rheumatoid Arthritis and white blood cell - Dr says not enough to make a dx.

I've found 2 conditions that I am wondering about.  Malignant Hyperthermia and Neuropletic Malignant Syndrome.  Both say that an EEG and MRI could come back normal.

Can anyone help me or give me any suggestions?
Thanks in advance

[Stevemanto]

Thanks for that I will watch with interest I had a Dystonic reaction because or Maxlon and now have problems with dystonia ( Yet to be confirmed) Im from New Zealand

[RSD_AURA]

Elle58 if y ou go to www.clinicaltrials.gov you will see tha they offer treatment and trials from all over the world and there are many posted from Canada for Dystonia, They have as many studies going on there as they do here. But because of your blood test I would not waste any time I would get to someone who specializes in dystonia, but dont get to worried ok, because with  the dystonia i have all the symtoms you are having, i also show that it appears like i have RA, thats why I think yu have to get to a DR that specializes in movement disorders. Now what happened in surgery (is) what caused the dystonia, its called tonic dya

[Elle58]

HI
Thanks for both of your responses.  I should have added in my post that I'm Canadian.
But I will certainly check that site out.

I don't know what I had after surgery.  But we have a right to access our medical files if we make the request.  I'm thinking I'd better get on that and find out.

Elle

[Stevemanto]

By chance when you had the surgery did you get given Metroclpormide (Reglan) Maxalon?? has a number of Genric names. What this is for is to stop you feeling sick

[RSD_AURA]

Dear Ella, I have dystonia and CPRS, But it sounds like yours is a result of trauma from surgerry. Due to your blood test. I would go to the NATIONAL INSTITUTE OF HEALTH WEBSITE get there number, then they have a protocol right now for movement diorders 93-n-0202, they will examine you, diagnose, you and then will refer you to any treatments that come availeable for your condition and tey will consult with yourr Dr"s. Thease are the best Dr's in the World. You aplly over the phone, its very easy. They will make all the arrangements, they pay your air fair, your hotel, even you food, They pay for all of you test no matter what they have to do to find out what the cause is. And if they have a treatment going on they will get you in it. And it free, by the best in the world! You have nothing to lose, so call them. They have changed my life. They treat you with dignity and respect, they handle you with care, i cant say enought about it. they were the ones that invented chemo. Most of the treatments that are out there for different diseases were found at the NIH. please let me know if you need any help, or assistance I would be more then happy to help you any way i can. good luck you.