I would find an LLMD and see if you can get properly tested for Lyme disease. I'm in the same boat, unfortunately. Daily migraines, dizziness, random twitching, hand tremors, brain fog, confusion, and so many other brain and nerve problems to count. I would start there. MS and Lyme have same symptoms but Lyme is hard to detect on an MRI if the Dr isn't looking at the specific things an LLMD would. Also, I've cut out gluten and sugar and it's helped a lot. I have good days and bad days, more bad than good anymore but it's worth a shot. Find an LLMD.
I would ask the neurologist about Myotonic Syndrome. This goes by other names. One is Myotonia Dystrophy.
I had the same things happening and had a negative spinal tap. My main symptom was losing the use of my legs and general feeling of not being well. Looking at ms symptoms we all thought I had it. The neurologist who did the spinal tap gave me the news that it wasn’t MS and said he didn’t know what was wrong with me and said come back in a few months if you’re not getting better. Oh, he did order a x-ray of my neck and I was furious that day because I had no answers and he didn’t seem to really care. I had to call for the results of the x-ray that said I had some degenerative changes and that was all. A few months later not feeling any better I found an MS specialist. He was great, he examined me neurologically and said something is very wrong but it is not MS. He sent me for an MRI of my neck and that is where the problem was. I was sent to a neurosurgeon and since then I have had three neck surgeries. The problem I had that was mimicking MS was degenerative disc disease in my cervical spine. I hope you find someone who will get to the bottom of your problem. Blessings
Have you had your cerebral spinal fluid measured? If so was it higher than 15?
I had exactly the same issue. Told me it was ms. It was b12 deficiency. It mimics ms. Get your b12 test. Its important to get b12 shoots asasp. Your symptoms can be reversed, if done fast.