Have you researched lyme disease? All the symptoms you listed as signs of lyme disease.
I'm not sure. That was listed as one of the other possibilities by the radiologist who originally read my MRI, along with vasculitis. I know that vasculitis, RA, and lupus have been excluded.
I'll check though. Thank you.
I have similiar symptoms for 8 years, along with unbearable abdominal pain,bladder pain, organ pain.Do you have abdominal pain? I was bitten by a tick over 8 years ago. I THINK I MIGHT HAVE CRONIC LYMES DISEASE. My memory is bad, long term, i get confused, stare in space.I have also had chest pains and shortness of breathe. I had a chest exray that was clear. I think fibromyalgia is a ******** diagnosis given to people doctors dont know whats wrong with. I refuse to take antidepression medicine, lyrica,celebrex. Many of these medicines make you feel like a zombie and can cause strokes and heart attacks.
Have you ever been tested for mold toxins? Dr. Schaller's book would be interesting for you.
I agree with you about the fibromyalgia..garbage diagnosis! I also agree about the meds. I refuse to take them. Have you seen a lyme literate MD? You sound very sick.
I know about the bite. I had 3 bullseye rashes years ago. Then I got severely ill for a long time (years). It went into remission then came back again after I had surgery on my spine.
I don't particularly have abdominal pain but I have pain everywhere else. Especially muscle and nerve pain.
well the problem is there are very few lyme disease doctors,they are called llmd. most doctors arent firmiliar with it. i plan on seeing an infectous disease doctor, and intend to be treated for cronic lymes.i read an article by a scientist/doctor that said you need long term treatment of antibiotics sometimes years in combinations of 3 at a time sometimes.the scientist suggested 2 websites you can buy the antibiotics, so i ordered some amoxycylin. i didnt know shipping took 11-20 days. i intend to try this medicine to see if i feel better, otherwise it could be many more months before i find a doctor to start treating me for lymes.im going to start treating myself.im not going to keep waiting after years for nothing to happen. not one doctor has ever suggested i might have any type of infection, or prescribed me antibiotics.they just say you are cronic, which i know better. cronic pain stays about the same. my pain and problems continue to get worse.i am very sick and probally would of died years ago if i hadnt fought for my life, as i do everyday.
maybe the reason i have abdominal pain in my organs, is i found the tick in my pubic area. it says lymes can attack every organ in your body, as well as your joimts, muscles, brain, lungs. its in your fat cells, so antiboties cant attack the bacteria because it isnt in your bloodstream.
patsy theres really nothing like organ pain, its unreal.as bad as all my other pain is,organ pain is unexplainable. now my pain doctor is trying to take me off of the few percocets i get, because he went to a seminar that said percocet causes depression.now i have to pay hundreds of dollars to see a pychatrist for him to decide if the percocet is depressing me before he prescribes anymore meds for me.i have to be treated for my organ pain, i cut back a couple weeks ago for fear i need to save them. i ended up in bed in violent pain for 3 days, delirious, couldnt breathe, chest pains.finally after 3 days my husband took me to the hospital my blood pressure was 218/ 120. after all the tests the doctor at the hospital told me my blood pressure was so high and i was having problems breathing because i was in so much pain. i could of had a stroke.this doctor should not legally be able to cut me off my pain medicine.
have you ever tried antibiotic therapy?
Yes, I have taken antibiotics a few times for a few months and guess what????? I got better. I'm better than I was. I got better a few months after taking the antibiotic the first time too. I agree llmd's are hard to find. There are none in Ohio. I had to travel out of state to get treated. This is the problem. I just can't be traveling out of state once a month. It's ridiculous. If I find a good doctor close to home I will go again. I just refuse to travel.
You would think a pain specialist would properly address your pain, not a psychiatrist. It's unfortunate you have to go this route.
Anamaria,
Neuro-Cognitive Lyme Disease
Lyme disease patients can experience symptoms such attention problems, short-term memory loss, depression, panic attacks, personality changes, mood swings, and/or learning disabilities. Literature on these manifestations is found below.
http://www.lymeinfo.net/neuropsych.html
You can find a general physician that will treat your lymes, preferably one who believes in unconventional medicine such as acupunture. Doctors from pakistan are very smart. Pain doctors wont treat you. My pain doctor wont treat me for anything, infact he is trying to take away the percocet, the only thing that keeps me from going to emergency room in pain everyday. if you cant find a doctor who will treat you, order the antibiotics on the internet. be careful i ordered some amoxcycilin found out after i ordered it, shipping will take 11-20 days. I will let you know if it helps. It says you really need long term antibiotic treatment for lymes to try to cure it or it will relapse. Do you remember the antibiotic you took? Well if after i see the pain doctors pychiatrist, if he cuts me off i will find another doctor.
I read there is a law that each person has the right to be treated for pain and if a doctor wont prescribe you narcotics he has to tell you why. In my case my doctors been prescribing me percocet for 6 or 7 years, going to a seminar is not a reason to cut me off.I really dont get it, this doctor is the director of the whole pain management center. How could a seminar have him cutting people off their meds. One guy in the parking lot was cursing the same doctor saying he had cut him off percocet after 6 years to another guy.
i will seek legal council if this happens, because i could of died from a stroke at the hospital when i cut my meds back and my blood pressure went up so high. i need the pain meds and shouldnt have to pay $200.00 -$300.00 to see a shrink to see if he thinks im depressed.
Lots of this sounds like MPS, Myofascial Pain Disfunction, which is NOT Fibromyalgia. I was treated for allergies for several years & got so sick, & demanded an allergy specialist. Took him 2 minutes to say, "It is not allergies, I believe it is MPS." I believe he is right, but good luck finding a Dr. that knows ANYTHING about it. Read online and stop taking pain meds, as they will never fix anything!! I got better with no meds, 6 months of dry needling & manual trigger point release therapy (even LESS of a chance of finding a specialist that knows these practices!) And you have to do stretches for the rest of your life, several times a day. Good luck! jules
I took Biaxin, Doxycyline, Zithromax but not all at the same time.