Thank you for your response, I have had two sets of MRI's done over the years' but nothing ever shows up! Two doctors have already said to me that they suspect MS, I have failed an EP twice 'with bad signals to my left leg.
In the past I've had to have prisms fitted to my glasses
had reverse sensation, tingling, total balance failier,vertigo, spasms in my jaw and arms, dizziness, sudden extreme fatigue, blurred and double vision, urine leakage and bowl problems, never any problems with coordination or walking though. The consultant that I was seeing refused to diagnose me with MS’ as I have no signs of damage in my brain!!
This is all very odd’ as he refuses to do a lumber punch and will not use contrast
I have even had the zip down the middle sensation with left side numbness on two occasions, yet he still will not diagnose MS!!!
I feel as I’m bashing my head against a wall!!
yours sinserely
Philip Smith
PS. He did mention benign MS' but would take no action!!!!
Hi there. Your doctor should investigate you for multiple sclerosis since you have multiple neurological symptoms. MS is a chronic demyelinating disorder where the disease phase is characterized by active phase and remissions. It has multiple symptoms and signs and is a diagnosis of exclusion. The symptoms of multiple sclerosis are loss of balance, muscle spasms, numbness in any area, problems with walking and coordination, tremors in one or more arms and legs. Bowel and bladder symptoms include frequency of micturition, urine leakage, eye symptoms like double vision uncontrollable rapid eye movements, facial pain, painful muscle spasms, tingling, burning in arms or legs, depression, dizziness, hearing loss, fatigue etc. The treatment is essentially limited to symptomatic therapy so the course of action would not change much whether MS has been diagnosed or not. Apart from clinical neurological examination, MRI shows MS as paler areas of demyelination, two different episodes of demyelination separated by one month in at least two different brain locations. Spinal tap is done and CSF electrophoresis reveals oligoclonal bands suggestive of immune activity, which is suggestive but not diagnostic of MS. Demyelinating neurons, transmit nerve signals slower than non-demyelinated ones and can be detected with EP tests. These are visual evoked potentials, brain stem auditory evoked response, and somatosensory evoked potential. Slower nerve responses in any one of these is not confirmatory of MS but can be used to complement diagnosis along with a neurological examination, medical history and an MRI in addition, a spinal tap. You also need to be checked for small vessel ischemic disease, cerebral ischemia etc for these MRI lesions. Therefore, it would be prudent to consult your neurologist with these concerns. Hope this helps. Take care.