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myasthenia gravis

I am 29 years old female. i am suffering from myasthenia gravis for the past one year, the first sympton include ptosis of right eyelid, then i was diagnosed of having a thymoma of about 4 cm. The doctors suggested of getting an thymectomy done, but as i am very scared i refused to go for it. Now I am treated by an endocrinologist with harmone thyrapy and ldn. I am taking ldn for the past one month. But the symptoms of myasthenia are increasing, muscles of mouth and throat are afftected. Should I wait for the ldn to work or should i go for a surgery?  Please advice.
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Avatar universal
hi,could you please specify what hormone therapy(idn?) you are receiving?
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368886 tn?1466235284
MEDICAL PROFESSIONAL
Dear Subha,


Please do not let emotions interfere with your treatment. Now a days, the surgery has become minimally invasive. I would like you to read this article on why minimally invasive surgery is preferred. This article compares open surgery and minimally invasive surgery.

http://www.ncbi.nlm.nih.gov/pubmed/18297352?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

LDN will not help you much. Though it is a known to be useful in myasthenia, we are not sure how much it will help with a thymoma of 4 cm.

I hope you go through all the pros and cons and take a decision soon.

Regards
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Avatar universal
dear dr, thanks for your repy, could u suggest me a best hospital for doing mnmal invasive surgery for thymoma.

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Avatar universal
Can you tell me more about ldn to treat myasthenia gravis?  my neurologist says it does not help so if you know of some research or patient cases that would be helpful.  
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Avatar universal
My hub had resp. Involvement.   Throat. Vouce. Chewung...took months to diagnose....ivig for MG caused renal failure.  Now we have cong. heart failure...don't waitfor treatment
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