rt lobe venous angioma

[barb2010]

myhello my question is i dont feel like my tx is what it should be.first mri showed the angioma with lesions down both sides of my neck.second mri showed the same dont know if it has ggrowm or not ,cant get a straight answer from noone..but it also had floating shall we say spots,everwhere i turn i get no answers.unable to biopsy angioma due to location. but isnt their something they can tell me or do,to put my brain shall i say to rest.everywhere i go people ask me about my cancer and or tumor.I dont even know myself! help please i am a nurse for yrs and i know when doctors beat around the bush .but this is my brain ,and i want answers.Furstrated nurse

[barb2010]

Thank you for caring.Best reguards. barb

[impish]

I also have a venous angioma and a cavernous angioma.   There is a lot of good information at the website..angioma alliance.   I wish you the best.  

[barb2010]

after mva i started having what they said was migraines.as you can tell this is something not going away but getting worse.they said ,take imitrex which i did.Then neuro said it masked the sympyoms of a stroke.still no answers.READY TO GIVE UP1

[barb2010]

yes  had a mva in in1998 with severs whiplash.lwas checked at a local er and sent home.But when i got out of the suv my neck hurt and i got real dizzy. Is this related?

[laborlawchick]

what were the first symptoms you had?  Did you ever have a closed head injury or a neck whiplash or other trauma?  How long have you had the symptoms?  

Carly

[barb2010]

thank you for your advise. I have seen a neurologist in bowling green ky an at vandy in nashville tenn who told me like i said before unable to do biopsy due to location.! so my symptoms are getting worse,im falling and dropping articles in rt hand,so im no closer to a answer than before.Thank you for your time.

[Dr. A. Srivastava]

Thank you for your question. Although without being able to examine you I can not offer you the specific advice on diagnosis and treatment that you need, but I would try to provide you some relevant information about your health concern.

Venous angiomas are variants in the brain’s normal venous system.  Usually, the venous pathways are separated by normal brain tissue but in venous angioma there is an abnormal appearance of few normal veins. These veins also act like normal veins from a physiologic perspective. Therefore, venous angiomas are very often benign, but few of the patients have associated with other brain malformations that carry a higher morbidity/mortality.  Most of the times venous angiomas are quickly identified on MRI, but some of the smaller vascular malformations may be difficult to identify. If you have symptoms of headache, hemiparesis (paralysis of half body), I would recommend you to see a neurologist who can evaluate the details of your case and could better determine the insight of your situation.  If your neurologist identifies further warning signs he or she would like to refer you to a neurosurgeon much sooner.  Hope this helps.