trouble walking, tingling in right hand, things worse after acdf surgery and a spot on brain stem--help!

[ceciliasmom]

I had acdf (c5/c6) surgery two months ago due to right hand tingling/numbness and trouble walking on right side--the neurosurgeon told me my disc was impacting my spine which could not be seen on the MRI.  Also some bowel problems and sore back/neck.  Since the surgery I've had increasingly more trouble walking, increased fatigue and dull headaches.  My neurosurgeon sent me for an MRI with contrast of spine and said they saw a spot on my brain stem and sent me for another MRI of the brain (have not heard the results).  I had a brain and spine scan without contrast 4 years ago when the symptoms began after the birth of my child and there was nothing found.  I pushed to see doctor after doctor because I didn't feel my walking should be deteriorating.  I heard everything from arthritis in my hips to "you are just getting old".  I am a 42 year old female.  

What could my "spot" be?  What else could this be?

Thank you.

[kay290]

A surgeon should have never done ACDF if he can't see spinal cord compression on the MRI. Did you get other opinions? Have you had other tests? Yes, MS is another possibility but many other things have to be ruled out before having spinal surgery. ie-B12 and D deficiency, MS, ALS, Lyme etc... Now, just because one surgeon did not see enough spinal cord compression on your MRI does not mean it is not there. I was misdiagnosed by 3 specialists before 2 other specialists said my symptoms were from my neck and after my own research I agreed and had the surgery. Now, ACDF surgery is not always guaranteed to resolve your symptoms. I have heard of rare cases where symptoms do not resolve or they get worse and the longer you have had the symptoms the greater the liklihood of permanent spinal cord damage regardless of the surgery.  

[shakymama]

I am not a Doctor but have the said anything about Multiple Sclerosis(MS) There are several test that can be done to help diagnosis this. Good luck and God Bless