From what little I know about torticollis it's sometimes treated with botox with great success. Also if this is of a neurologic etiology then some of the drugs the docs have tried so far may be making it worse. I say see a neurologist asap!!
Hi,
Atlanto-axial dislocation can be diagnosed without a functional CT, but has to be confirmed with functional CT only.
I think you need to consult Musculo-skeletal specialist for further evaluation.
A limitation of motion of the cervical spine that causes the head to be held in a tilted position is called as Torticollis.
It may result from muscular, skeletal, or neurologic abnormalities.
Acquired torticollis which she has may result from neurogenic, traumatic, inflammatory, or idiopathic causes.
She needs to be evaluated by a neurologist for neurogenic causes like Spinal cord tumors of the cervical spine, Cerebellar tumors, Syringomyelia, and Ocular dysfunction.
Keep me informed if you have any queries.
Bye.