try this link.
http://www.medhelp.org/forums/Spinal-Stenosis-Sufferers/show/1013?camp=msc
after clicking on it on the top of the page it should have " join this forum " or something similar. Click that & you'll be in.
Please let me know if that works or not. :-)
there is no treatment available. my family has to assist me with everything.
My husband is still in hospital. He now comes home at weekends.Everything seems so very slow.I am trying to organise a stair lift to be fitted anyone any advice?
How are you are you still having treatment. How are you coping?
I encourage you to join as well. my hope with the group is that other people who suffer with the same condition may be able to help.
Feel free to message me
Melissa
i was able to walk before. now i am in wheelchair.
i had a spinal stenosis procedure and woke up disabled
Hi,
I am so sorry to hear about the problems your husband has had since his surgery. Spinal Stenosis is a very difficult condition to manage & most people assume that having surgery done will "cure" it. Unfortunately that is rarely the case.
What type of surgery did he have? I ask because there are several different options available & really depends on the location of the stenosis as well as the severity. I had L5-S1 decompression done in 2006 & was fine when I woke up. Within 5 days I had a horrible infection that was causing me to bleed out over a liter a day through my incision site & threatened to cause some permanent damage. The surgery itself provided little to no relief & now 5 years later I'm waiting & debating on redoing it.
I have never heard of anyone waking up paralyzed, but it honestly doesn't surprise me as they are playing around with your spine & 1 little slip up could cause such damage. Have the doctors provided you with any answers as to why it's happened? What are they doing to help him?
I am glad to hear that he is improving, that will take awhile, but it never should have happened to start with.
PLEASE keep me updated on his progress & I will keep you both in my thoughts. I actually just started a group on here for people who suffer from Spinal Stenosis & their families. It's a work in progress as I still suffer from it, have 2 children & am currently pregnant, but I hope it will be of help to someone. If interested in joining you can either message me or search USER GROUPS under FORUMS for SPINAL STENOSIS SUFFERERS.
Melissa