The demon has gotton out of control

[freshair]

Hi everyone,
Just want everyone to know that I haven't posted much cause it is very uncomfortable sitting at the computer and I have had a lot of energy loss. I have awful urinary problems where it is suggested that if it totally gets out of control I will have tubes put in the kidney and the urine bag. The cytoxan didn't work. It has spread all over again and is in the liver. It also spread into the bladder and could go into the rectum next.

This is such a demonic disease. So now I am going to try oxiplatin and 5FU. And after that maybe an excorist is needed. :) We must keep our humor. I was so depressed yesterday after hearing all this and slept it off. The most challenging part is not letting the cancer get us down and out. I will know when "realistically" chemo won't touch this.

Sending prayers to everyone (have been for Yvonne, Becky, Marie and EVERYONE and can't post that much.  Deeply saddened to loose some wonderful women on this forum.

Love, Helen

[crecco]

I am so sorry to hear this news. And you are right, it is such a demonic disease. I am glad that you were able to sleep off some of the depression. As I have found out a lack of sleep can be a major cause of depression. Not to mention that the demons come out full force in the middle of the night. And I completely understand when you say that you will know when chemo won't touch this disease. It is something that you can just feel. Please keep your hopes up and try not to let it get to you to much. I know how hard that can be. But like you say, we must also keep our humor because without it I think that we would all be nuts by now. You are in my prayers. Sending a big hug your way.  Love, Chris

[rmarie]

I am so sorry this has gotten to you too.  This just stinks, why can't it cut us a break and just go away.  I was hoping since we hadn't heard from you in awhile that things were going good.  My thoughts are with you, may the 5FU work.   Love Marie

[vegas2cr]

Damn Damn Damn wish I could say stronger languageI am feeling really bad for you and wishing I could do something to make it better.  I will be praying that this new regiment of chemo will work for you.. sending you lots of love and hugs.. Ronni

[kismetfarm]

Arghh, angry and frustrated for you!  Why does life feel unfair sometimes (((hugs))) hope the oxiplatin and 5FU helps. Thinking of you.

[Helmar]

Sending blessings to you Helen, and hoping and praying for some good news along the way for you. Hopefully the next chemo will be your 'silver bullet'. Keep up that fighting attitude... don't give into this beast. I've heard the Oxiplatin is quite harsh, so get plenty of rest and drink lots of water. Looking for good news soon.
Sending you lots of Summer and sunny hugs...Helen...

[lucymullis]

I am so sorry you are in this pain.  I don't think there are any words that can describe the demons in this cancer.  I hate it so much.  I hope you get better.

[rootietootie]

I am so sorry you are going through this.  It just breaks my heart.  I am glad you continue to have humor, you are truly amazing.  Sending you positive thoughts and prayers and love across the miles. <<<<>>>>>> Love, Shannon

[Lynn63]

I am so sorry to hear of what you are going through.  I will keep you in my prayers that the oxiplatin and 5FU work more effectively.  My thoughts are with you.
take care,
Lynn:)

[SimplyStar]

I am at a complete loss of words, I will keep thinking positive that the new chemo will blast those demons to he-- and gone.  I feel so deeply for you ladies and my heart hurts when I read of the pain you must suffer to fight this dreadful disease. Lets all visulize standing in a big circle holding hands and asking God for help and love. Here's my hand Helen , grab ahold of it, and hand on tight.  Marty

[crecco]

Ok here are my hands too. So the circle gets bigger. And believe me, I am holding on tight!  Love, Chris

[gah_70]

Make room for me in that circle.  When we are done, I think a big group hug is in order.  Helen, I am so sorry you having to go through this.  Know we love you and will be lifting you up in prayer.

Love,
Gail

[Kimchi]

Been waiting all week to hear your results and I am so pissed that the cytoxan did not work...worse part is that this med had not affect on stopping the cancer from growing.  I feel like you wasted so much time and hope...really ticked off about your situation.   Get started on the new meds right away.  oxiplatin and 5FU seems to be working for Melody, I hope it will work for you too.
Sending you positive eneger from the Land of Smiles

[Brownie3321]

Helen, I am so sorry, I really am. I am also so upset by this. The h@ll with this disease! Make room in that circle for me and my whole family including extended, because we are all praying for you and wishing for a cure to sh!tty disease. We get enough people pushing, maybe we will get what we are looking for. Try and stay humerous Helen, I know it helps me. With love, Deandra

[coogeegirl]

Make room in that circle for me as well!!! I am sending you lots of positivee energy and hoping that the latest chemo shoots that cancer down in flames.

Every good wish to you Helen

Jenny

[newlifegal]

I'm so saddened to hear what you are going through. I'm asking God to send you His peace as you continue to perserve.

Christa

[baguba]

I am so angry now I could cry!  You just stay rested, positive and keep that sense of humor.  We'll all do the rest in the prayer department and together we'll get through this.  I will pray extra hard that your new chemo will do the trick.  Sending love and positive energy to you, Judie L)

[Jan214]

"A Cheerful Heart is the Best Medicine"  I don't know who wrote that old saying but I believe it is true.  You have a cheerful heart in abundance, so I am sure this next protocol will be the one.  My husband and I will stand firmly with you in that circle of prayer.
Jan

[Tybear]

I am really sorry to hear of your latest news. I had to laugh though, when you suggested an exorcisim...too funny! This disease really is like a demon... I hope you find something that works for you soon and brings you the relief you deserve.
I appreciate the prayers and want you to know you continue to be in mine as well...
Becky

[Jatoo]

Just to let you know that my wife's CA 125 is finally normal at 34 after two (2) cycles of 5FU and Oxaliplatin. Let's pray that it will work for you.

Jatoo

[dian07]

I will join the others holding hands in prayer for you.  Jatoo offers some real positive information.....Yeahh!!!  If it works for Melody, and it has, let us not give up hope as good news just might be around the corner for you, too.
Peace.
dian

[dustinsmom2]

i am so sorry that the test results came out badly, if you can make room in that circle for my family and myself we will continue to pray that this new regiman works, i have heard alot of good things about it as well, and here is a big ((((hug))))

Erika and family

[butterflytc]

so sorry Helen, you are a real trooper, include me in the circle too, and know my prayers are with you.

[nyc lady]

I am sitting here with my mouth wide open and tears in my eyes....Let's hope that you are as lucky as Jatoo's wife and the treatment works for you.  More then anything, I want you to be pain free...if you need anything, I am right here, I mean that!!!!!

Love,
Pam

[BeachGal7]

Hi Helen, It's being positive that's going to pull you through.  Jatoo's wife Melody had some promising treatment.  This will hopefully help you too.  Take care..