Complex Irregular Mass???

[jfulcher]

So I posted last month about a 12cm mass on my right ovary that has been troubling me for months. I have family history of cancer. Female cancer on mothers side. Lung cancer on fathers side. Have had 2 CT scans w/contrast and a ultrasound as well as a MRI on 5/4/15 w/contrast. I WAS originally told after I would be sent to a OB/GYN for the surgery. But today I was called with the results. "Instead of sending you to an OB/GYN, we are going to straight refer you to a surgeon, its a complex mass, very irregular, and you will have to discuss how to go about removing it". Now before everyone was dragging their heels. I was a hurry up and wait case with everyone. Suddenly I'm going to a surgeon and am very nervous. I don't know what to prepare myself for or how to prepare for it. My son lives with his grandma and my dad recently lost two siblings in a year to cancer. So I'm a little freaked out and panicked.

[old_before_my_time]

Welcome to the community.

I have been in your shoes. I had a 9.5cm ovarian cyst. I had a total hysterectomy and regret that. The frozen section done while I was in the operating room was negative (benign) so all that should have been removed was the cyst or the one ovary. The removal of my organs has caused many more problems than it resolved.

Hysterectomy and oophorectomy are two of the top overused surgeries with only 2% done for a cancer diagnosis. The uterus and ovaries have lifelong non-reproductive functions.

So please be sure you understand the ramifications of their removal before going into the operating room. I wish I had understood everything I have learned in the 9 years since my unwarranted hysterectomy at age 49.

[old_before_my_time]

I am sorry I am behind on replying! I am glad you finally have an appointment - sorry for all the "rigamarole" to finally get one! Hopefully, this cyst is benign.

620.2 is an ICD-9 code meaning "other and unspecified ovarian cyst." ICD-10 (newer, more specific codes) will split this in two as:
N83.20 - Unspecified ovarian cysts
N83.29 - Other ovarian cysts

Why they need separate codes for unspecified versus other is beyond me! Bottom line, imaging cannot specifically tell the type of cyst. Biopsy will be necessary to determine that.

Be sure to make a list of questions for your appointment. I know I was very nervous. I actually made a list and then ran off and forgot it which was to my detriment.

Let us know how your appointment goes. Sending positive thoughts...

[jfulcher]

Ok I think I finally have an appt. May 26th 10a. Hoping things are just going to be done...

[jfulcher]

I know how you feel ally I've been going thru this for over five months now... But found out about the mass I think 2.5mos ago... The gyn onc they ref me to didn't accept my insurance so I'm back to twiddling my thumbs... :-/ I am so tired of the lower back pain pressure etc... I thought it was a severe uti myself five months ago... And its taken five months just to get this far...

[allysponies]

I have been out of mind stressed since just after Easter.  I thought it was a UTI but gyn palpated a mass so off to the ultrasound.  Completely and totally freaked me out when I saw the screen.  I could even see what doesn't belong in there. So I just had a CT scan today for a 12+ cm mass on right ovary. I have no family cancer history but also have a lot of uterine fibroids. I was referred to gyn/onc and  I have surgery scheduled in June.  I have opted to have a total hysterectomy because I am 53 but still not menopause.  I want all the angry lady parts gone!

[jfulcher]

Well I raised hell a bit and got my referral thru in less than 24hrs... Now the oncology center has to get my records and present them to the doctor to rush a sooner appt than she has available...