Help with Partners & Family members

[suec4558]

I have a wonderful husband who has had to deal with my CP and other issues since it started 12 years ago, but he has become caring to the point of smothering. He won't let me go anywhere or do anything by myself and even though I try to explain sometimes I just need a little alone time, he takes that as a rebuke. Then I have other members (grown kids) who question all the medication I take. They are driving me nuts!!!  Don't get me wrong I am eternally grateful I have them but I'm going crazy! The only time I can get some time out is on the computer - mostly this site and a few games. How do others deal with their familys?

[vivb53]

hi,my family arnt so attentive im afriad,if anything,i wish i had people who showed they care,insted,i feel like a burden to them,they do care,but find my poor health hard to cope with,i do see what u are saying though,a person can feel as you do,  maybe,if you tell them that the doctor feels it would be better for you to try and do things for urself,and try to be independant,,, good luck,  

[sandee1818]

Please see my post under your other question.

Also we want you to know we here at med help are always here for you when you need us. Just being able to vent and get your frustrations of your chest can do wonders. Having someone who can and will listen and understand is what this community is about. I am sure everyone here has at some point gone through what your going through, just know it will get better. When I was first diagnosed my husband was the same way and it was great at first but as you say it does get to the point where you just need time to yourself and need to do things when your able yourself. Explain to him that you need to do somethings yourself to feel like your useful and that it helps you in ways he just cannot understand. Above all let him know how extremely grateful you are for his support. Until someone is in our shoes they can't understand how pain affects us and our mental and physical well being so don't hold it against him he just needs to understand that you need to have time to do things you like to do and need to do things for yourself when able.I wish you luck and adressed the other issue in your other question:)