lyrica withdrawal help

[Indiedawn]

I suffer from chronic pain and had allergic three actions to gabapentin, lexapro and cymbalta, then I switched pain doctors not happy, he suggested lyrica I said I wouldn't go on it until I spoke with Eli Lily they told me there is no chance of me having the allergy, I was only on it for two weeks and that dyskinesia kicked in, I was on a low dose, only one pill, because I was or he having problems with it.

Now I'm in lyrica brutality withdrawal! I'm sweating I'm freezing my head is going to blow off, my stomach is nauseated I can't walk it's been almost 30 days, and my pain Dr. is not helping me, I've increased my B12, taking magnesium drinking lots of water I met my last wits end, I had a traumatic accident five years ago and I have been fighting to regain my mobility and strength,

What is up with lyrica? Why can't I get over this withdrawal? I'm crying nonstop, I'm a fighter, someone please tell me this is going to an end! And if you have any tips please help! Thank you

[Torster]

I so appreciate your comments because I am also going off Lyrica after five years! I am so sick, sick, sick! Scared to death, I feel like I am dying!
Your comments have helped me as I can relate to all that you wrote.
My question to you is did you ever get better? It's three weeks for me
Now and I went from 300 mg of Lyrica a day to 50 mg. Should I just not
Take any more?  How in the heck do you handle it?
This is the worst thing I have ever experienced as it never ends!

[Icannot]

Hi, how have you been since your last post?
I hope better!
I have been sick with a gastritis problem...and other pains..
I ended up in hospital because I saw a neurologist for the trigeminal pain that comes and goes..she put me on another med for seizures..
I took the time release form for 4 days then I was having MRI and walking  and collapsed with no reason.
.I couldn't stand without help, etc.....dr office told me to stop the med...then within -a day... ended up in hospital as I had a bad reaction...almost cataplexy..stoned my doctor said..from the med I had been on...
And another nerve pain area..pelvic floor..took me down with more pain meds for awhile and I am just getting back up and around...
My primary care thinks I also have severe gastritis...wants to do endoscope of stomach but I said no, lets try meds first..so
..I am taking omperazole and famotidine...I did feel better for 2 days
But now I don't know..
After all that,
I had radiofrequency ablation of lumbar nerves on left side of my spine and it has been 4 weeks ..still waiting for it to relieve pain left side of abdomen in coeliac area..it has reduced pain but then pain flares and I cannot tell if it is in stomach or beside stomach......
Anyway, that is why I have been not writing..or getting out or anything...have gone down on pain meds even more ..( my pain dr. is seeing me every 2 weeks and he hasn't done that in 13 yrs)!
and  decreasing opiates that takes time and another reason I have felt bad.....and it is i who insists on going down as low as i can..i want to take them on an as needed basis....sooooooo
I want you to know that I did feel better 45 days last fall when I went off lyrica.......
I re-read your posts and, I was not aware that Percocet dehydrated a person...what pain meds are you on now..you mentioned headaches?
Jade gave you great advice and please do not feel I dropped you!
Any help from other forums?
Blessings

[Indiedawn]

Holy crap! I'm down to 95 pounds, I was at 105 last week, I normally weigh about 120!

I'm eating all healthy how the heck do I get fat on and you have to remember I'm on Percocet, I usually avoid that due to constipation! But actually I'm doing magnesium drinks which are helping maybe I should start eating red meat, sometimes I'm so cold my mother keeps saying have ice cream I think it would just shoot me through my all entire body I can't have anything cold.

So once again, if anyone can help me out and let me know if they had dyskinesia, if my dyskinesia doesn't go away because I've been exposed so many times I think I have to see a neurologist which I will

But how do I put fat on I've been eating bananas, eggs, peanut butter and jelly sandwiches even cheese doodles I'm extremely holistic, but I am addicted to cheese doodles! i eat nuts i.e. Greek yogurt but I find the ones with lots of fat, very hard to find by the way.

I feel like each day is a new battle any suggestions would be appreciated!

Hugs to all we will all make it! And once again be better for it for some reason!

[Indiedawn]

Wow! Now I've been drinking tons of water, I'm so confused, I can't get out of the haze,

But to everyone out there let me understand nobody is getting what I have which is also on top of this dyskinesia, I've gotten it three other times from gabapentin Lexa Pro and cymbalta, each time I stopped the drug that dyskinesia went away within two days.

Now I was given lyrica, I was only on it for two weeks and that dyskinesia started that's why I stopped the drug although it was a brutal drug from the start but I did have one day pain free so I thought it might be the wonder drug so I thought to acclimate.

My bigger issue now is that I have dyskinesia no one else had this from the withdrawal.

Dyskinesia is when you have uncontrolled motions your body flails almost like an epileptic seizure, and you make noises and your head jerks around.

This has become my greatest concern, my understanding is the more times you're exposed to dyskinesia the more it might stick in your body and never go away, so my stress is getting higher,

I appreciate your comments and that's what I've done with calming down, my mother kept inviting people over, we was posted have an open house on Tuesday meaning I would have to leave the house I can't even leave the house to walk the dog although I have two or three times and it's been brutal. My mother won't listen to me so I finally had to sit her down today and say we have to stop the open house I cannot leave the house for four hours!

Okay I'm getting off topic I'm really curious to hear from everyone did any of your withdrawals from lyrica involve uncontrolled motions? Please answer thank you best to all of you I'm so glad we'll have each other to talk to

[lyricadeath]

HI Indiedawn. I know exactly what you went through. I'm getting dyskinesia along with all the other stuff. It is so evil. You finally get to sleep only to be waken up by your body deciding to move suddenly and violently. I'd like to book a trip to hell just so I could go on a pleasant holiday from this. I will never complain about mosquitoes, the flu, etc ever again. I've been on oxy contin on and off and gone through severe withdrawal from that a few times but THIS! THIS TAKES THE CAKE. I wouldn't wish it upon my worst enemy, except perhaps the company who invented lyrica. I've been off it for a week and i just hope to god i can put up with however much longer it takes.

[Jade59]

Hi :)...just a little bit of understanding how all this works really does help, doesn't it.  Although when you're in the thick of it, it's easy to forget everything you've learned.  Let me share with you, my last 24hrs, but first some background.  I quit smoking Jan1st, then quit both Norco and Soma nearly 40days ago, and while I have good days now for the most part, I have not the last 24hrs.  No sleep the last few nights with last night the worst; my heart racing again, aching all over, that awful internal buzzing, and even though I KNOW what is happening, still I found myself just a few mins ago in tears and wondering 'what IS this', and feeling just so despondent like it will never, ever end.  I had to talk myself through it, then thought I would post to you.  

See, some of it is our thoughts.  You will find when you let yourself get upset and lose control of your thoughts, it truly will make you feel worse.  As soon as I began to deep breathe and stop THINKING about what was happening and started to type, I could feel myself calming down some.  Another reason this is happening now is we don't have a lot of food in the house.  Like I said earlier, when you don't eat enough, you begin to live off your fat cell with those cells releasing the toxins built up within, which will Always make one feel worse.  I ran out of Ensure a few wks ago, so that's on the list to get, as well as food.  So do your best to eat small meals throughout the day; very important.  And walk your dog when you can; force yourself.  I do realize how frail you are; I am in very poor physical condition myself, so often I have to not Think, just DO.    

Another suggestion is to read the addiction forum.  You don't have to be an addict to gain the benefit of reading the tips on how to cope, as well as reading how others are coping going through the same thing you are.  If anything, it helps to not feel so alone in it.  

And not *too* much water.  You'll flush out your meds, and any nutrients you're managing to get into yourself.  I really encourage you to get either that Ensure or Boost if you haven't already.  Water is Great, but you need a variety.  

[Indiedawn]

Oh my God thank you so much, the only person that understands Ismay pain psychiatrist and there's nothing he can do. I actually called him last night and told him I didn't know if I could go on anymore he convinced me, I own my life to all of you and to him and to Jade59 thank you for letting me know that those good days and bad days, I thought I was getting sicker, it's weird it's used to be I was getting better than I was getting sick again and worse and more despondent, and now it's switched I feel better in the evening where I used to feel better in the morning.

It's just a beast!

My heart and my prayers to everybody we will come out of this and we will be fine! On to drink some water, I powered down with lots of water while I am lucid!