Hi All, my head is reeling right now. We just received a diagnosis of Bicuspid Aortic Valve with minimal leak and dilated aortic root at approximately 4.0. I don't totally understand it all, and am trying to find out more information. The only reason we finally found out is because of his murmur we were told that we needed an EKG for sports. When getting the EKG the Dr stated he heard T3 gallop. So we were sent for an Echo. When we received results, we were told that everything was normal, but had a mild tricuspid regurgitation. So, we went for a consult with a pediatric cardiologist and were told all of the above diagnosis information. It is heart breaking because my son has been involved in high school football and has been doing VERY well. He is team captain, playing several special teams, playing Varsity as a sophomore and playing both offensive and defensive line first string. He had at one time told me he would rather die playing football then not play at all. By the way, he is a twin, has a little brother and all my kids are very tall. Off the charts tall. Not sure about Marfans. My family and my husband and his family are all, also tall. So my son at 15 is over 6'1" and weighs in at 175. His twin is about the same size, just a little taller. His twin has astigmatism, but he does not have any eye issues. (My husband is 6'4")
I am just not sure what to do about the sports thing. Is it that much more dangerous for him? Does it greatly increase his chances of problems? They say not to do contact sports or competitive sports. So, is it like saying don't drink diet soda because it can cause cancer? Or is it more like don't run your car into that wall if you want to live?
Just want to make the most informed decision we can. Good news is he has a shoulder injury that is preventing him for playing for 6 weeks right now, so we have time to make a decision. Especially since the first game of the season, against their rival team is in 4 days.