cystic hygroma

[safia]

hi this is about my sister in law she has been diagnosed with a cystic hygroma and has an amnio that has returned negative so it is not chromosonal, she has another appointment 04 13 i just wondered if anyone else has experienced this?    any reply will be gratefully received  thanks safia

[believe607]

Hello. i just wanted to say that i'm sure there are other threads on the whole world wide web that are for people living with LM. this thread is for pregnant women whose children are diagnosed with a cystic hygroma(or LM) whatever you perfer to call it while in the womb. i beleive all of our ob/gyn's have called it cystic hygorma. i have found this thread to be of GREAT comfort in my time of difficulty. i would have found it helpful either way if my child survived or not. if my child did survive, i would have found another thread that is for children living with ch or lm in which i would love to have talk to you about surgery's needed.  There are good people here who have baby's that have passed away in utero, and people whose baby's have survived. i think u are a great help for the parents with children who have survived pregnancy with ch and are now living with it.
we're not doctors on here. we're parents dealing with are baby's in utero having been diagnosed with ch and are going through medical testing to rule out chromosone abnormalities.

[sweetpea03]

If you look up scholarly articles on LMs, the majority of cases of them occur when there are NO chromosomal abnormalities. Most of the cases are just random flukes that happen for unknown reasons. I live with a LM myself and know what it is like to go through surgery after surgery. I have a couple friends I met online with LM as well who have been through similar experiences. We all live normal lives, just with some extra medical care. I've been through over 8 surgeries(lost count), but I'm involved in sports and am in my 3rd year at a great university. I hate when people treat the condition as a death sentence. With proper medical care, even extreme cases can be handled and dealt with. They do exit procedures for those with LMs which affect the air way, which can save the baby's life. Occasionally, more on the rare side, a baby will not make it, but that's not the majority of cases. A very important thing to have is a doctor who has experience with the condition. Dr Waner is world renowned in the area of LMs, Dr Reinisch is another amazing surgeon, etc. The most important thing for a person with LM is to have a good doctor, with plenty of experience with the condition. I think you should start a new thread with better terminology, then you can write down the info people can see in plain terms that are easily understood. Keeping the CH title can only confuse people.

[believe607]

Hey! this past thursday has been 2 weeks since we lost our baby. the doctor said the lab would call us withing 2 weeks. well they didnt call so i called my doc. his nurse picked up and said she thinks she saw something about it and put me on hold. she told me she saw the paper work when it came in and didn't know what it was so she just put it in my file.so anyways, she got the paper work out and said the test where inconclusive and they needed the doc signature to test 6 other viles that they had.the test was inconclusive because it was a byopsy of the baby. the baby was already gone, so there was nothing living to test. the doctor even told me that when i was in the hospital. he wanted to test it anyway just in case.he thought maybe we could get some results from the placenta.but for some reason only the byopsy of the baby was tested. so i told her to get him to sign it and fax it off!!!!! so now their doing fish test on the other viles, so hopefuly we will hear something real soon. i pray the others vile's are testable.
pray for me! i really want atleast to know if we had a boy or a girl!!! :(

[Megan0701]

I'm glad to hear you're healing physically. Surely you've gotten results by now? I just wanted to post and let you know that I'm still here and I'm still checking in :) Take care of yourself momma!!

xoxo
Megan

[believe607]

Hi megan. just wanted to let you know we are still waiting for the phone to ring from the lab to tell us if we had a boy or a girl and if there were any chromosones. i'm feeling so much better. engorged breast have subsided, and i had a problem with pain and to much bleeding the first week of recovery. i went to the doc and he gave me a pill to contract my uterus. it worked wonders. no more pain or bleeding. i'm glad i didn't have to have a d&c! Thank the Lord! we will try again in a few months. i have some issues to work out first. dentist visit,make sure everything is ok down there, and ect. i can't wait to try again! my husband isn't shaken a bit about our outcome of this baby. he's ready to have a twins or more! haha! although we did say if we have another miscarriage, that'll be it for us. prayfully the Lord will bless us with a healthy baby next time! This experience sure has me holding onto my little 3 year old! she's been a little trooper through all of this. she tells everyone she has a baby sister in heaven. maybe she knows something we don't! :)as soon as we find out what gender, we will let you know what we are naming the little angel.

[Megan0701]

I was worried about you....and rightfully so it seems. My heart hurts so badly for you. I am so incredibly sorry for what you've just had to endure. I can't even begin to imagine what you must be feeling right now. Please please keep me posted on your story. How you're doing and hopefully with a name for your sweet babe. You will certainly be in my thoughts tonight. Take care of yourself. Again, my deepest most sincere condolences to you and your husband.