Mycoplasma genitalium testing

[nguquestions]

Does anyone know where I could get tested for mycoplasma genitailium in California? I was diagnosed with NGU at an STD clinic 10 months ago (via urethral smear) one week after receiving unprotected oral sex. I tested negative for gono and chlamydia. Treated with 1g azithromycin and one week Cipro. Discharge and burning after urintation disappeared. Had testicular discomfort so I returned a week later. The swab test suggested the NGU was gone. The Dr. gave me two weeks of doxy just in case. I finished this and then developed sensitivity around the head of my penis (that I feel whenever I walk as my penis rubs against my underwear....like my boxers are made of sandpaper) and it appeared like my urehtra was much pinker and puffier than usual. Returned to the STD clinic and he said it was no big deal after another urethral swab and urine test and said I was clean.

My GP gave me metradinazole as well as difulcan (one dose). No change to my penis irritation issues. I tested negative for HSV II (+ for HSV I but I have had this forever). Urologist inspected me and found nothing wrong. Both saw no WBCs in my urine.

So I am out of thoughts as to what could be going on. My only thought at this point is mycoplasma genitalium. Does this sound like a possibility given the symptoms (no lesions/bumps, no discharge, sensitivity/irritation around the coronal edge and slight pinkness at the urethral opening)? I guess I am trying to understand the difference between NGU and mycoplasma genitalium. Does a negative test for NGU via swab mean no mycoplasma genitailium?

I have looked everywhere for a test and found only one place that wil provide it but it is over 220 miles away. I will make the road trip if necessary.

Thanks everyone!!!

[hanger]

Hi Bro,How r u?
Guys(lionskipper969,T12388help) I am in the same boat as u.shaken2core knows about my case.Here is My case: I had sex with a prostitute both oral and vaginal with condom,but right from the next day I had burning upon urination 2 days later I started getting pain in right testicle.The pain persisted for 1month 24/7,then after 1month I started having pain in my left testicle(still suffering).

COMING TO DOCTOR VISITS&TESTS I HAVE SO FAR:
* Tested at 9 days after exposure for G,C,HEP A,B,C,HIV,HERPES1,2 All negative
* Tested at((PLANNED PARENTHOOD) on 18th day  for G&C --negative.
*19th day after exposure went to UROLOGIST,he prescribed azithromycin(1g) ORAL,ciproflaxacin(2/day,10days).
* 21st day went to different STD clinic,they did urinalysis and to my surprise they said they found WBC's which indicates some infection and gave ceftrioxin shot(250 IV) and said to continue the medication prescribed by UROLOGIST,tested for G&C again on the same day-result was negative.
*After finishing ciproflaxacin,I still had pain in My testicles and I got a new symptom i.e,pressure in lower left abdomen(bladder may be??), went to UROLOGIST.In Urinalysis he found both WBC'S AND RBC'S,said to go for XRAY(KUB) suspecting kidney stones,he also prescribed some anti inflammatory medicine,I asked him to treat for trich just in case so he prescribed metrodizle(2grams) oral.taken the XRAY and medication,no change in My symptoms.After 2days doctor called me and said the XRAY looks normal(no kidney stones)
*As symptoms still persisted I did go to STD CLINIC,they did check my penis and testicles said nothing looks abnormal and told me to take ibobrufein for 10 days for the pain WTF
*I visited UROLOGIST again,told him I have a new symptom that is the My first urine of every day is brownish red in color.He did cystoscopy, said everything looks normal and asked me to take CT SCAN for abdomen and pelvis just in case and asked me to relax?
* After 2 days DOC called me and said he got CT SCAN results,and he did not find anything abnormal.
*This is 9th week of exposure,did take a 8 panel test 2days back,waiting for the results.
Guys,I am depressed,lost My job,don't want to talk to any body,crying all day,I think this is invading My life.Oh God but I'm only 25

[shaken2core]

Hey Lion - was not aware this post was still going until you alerted me.  As far as Herpes goes, I can say with 99.99% certainty that it's not the cause.  It would not give you persistent NSU for 2 yrs because Herpes comes and goes.  What other PCR tests does he want you to have done?  You've taken Moxi, so it can't be M. Gen.  You've pretty much been tested for everything and you've taken every effective antibiotic available.  My view is still the same, guys like you, T12388help, myself, and others in our shoes are battling some kind of residual effect, caused by some unknown bacteria or inflammation persists for one reason or another.  I find it difficult for inflammation to persist so long without a causative agent.  I would say this is something we need to live with and hope our immune systems will eventually kill this off and our bodies will repair themselves.  The medical community has no answers for us, but hopefully in time, with more research, they will discover more causative organisms that cause NSU and/ or develop an effective antibiotic to combat this.  

Do I think you guys are contagious and would be passing some devastating STI onto a partner?  No, I think you guys should be fine and should pursue relationships and not be affraid to have sex.  Always use protection for your own safety and your partner's safety, and you should be fine.  I'm living proof of this, and I've been where you guys are going, and I've finally been able to break through my fears and begin sexual relations with my partner again without causing her adverse health affects.  

I really feel bad for you having to wait so long for medical attention.  I'm assuming you're in the UK and that you're on public health care?  Here in the U.S. ,I got all the testing you described, plus some, within 1.5 months.  

Hang in there and be persistent.  Remember that doctors dont know everything,especially urologist and STD's, so keep doing your research, bring it with you to your appointments and discuss other possibilities and treatments.  Hopefully you have a good doctor who is open and willing to consider everything, and who will work with you to figure out what's going on.  As always, keep us updated.  

[lionskipper969]

Hi,
Shaken2core,my last post may be of interest to you.Even  though its long.

[lionskipper969]

Hi,
Spoke to a doctor from a top private clinic yesterday on the phone.Expensive phone call.I remember being told you cannot put a price on health but private clinics certainly do.
Explained my two years of Nsu/Ngu.
Doctors thoughts are:
Stop taking general meds:Easy my doc and gum clinic are not giving me anymore.
Go to his clinic and have a PCR test done as gum clinic do not check for everything.i.e Herpes? I thought they did.But the others mycoplasma etc we know they do not check specifically for that and others.
Told me I should seriously consider herpes as a cause.?
Have a trial of Herpes supressants.
No sign to me ever of that and surely cystoscopy would have noticed something.
Regarding prostate;
Have another DRE exam as I was told mine was very tender last time and could be Chronic prostatitis but cystoscopy found no infection and I have no usual prostate problems at all.
Have an MRI scan of pelvis to check tissues etc to see if there is any problems.
Have a rectal ultrasound.
Have your seminal vesicles checked and an image made of your prostate.
He said if the PCR test comes back negative then I should consider myself not to have an STD and start to think about Alkalizing my urine etc
Well after two years and no better I am told to try all that.My urologist appointment is every three months for reasons I do not understand and I bet he will not put me up for most of them tests.
I will be paying privately for the PCR Tests but I could not afford the rest privately.
Still amazes me that clinics do not do PCR tests and after a while basically tell you to stop coming back and work with a urologist who seems very slow in trying to help me out.I have been seeing him a year and all I have had is a cystoscopy.
It will take me another five years at this rate to have the other tests done even if he can be bothered.
Keep you informed.

[lionskipper969]

Hi,results from cystoscopy were no infection found.I wish they found what is causing my Nsu/ngu.
I think I will go back to the gum clinic and talk to them and maybe go private as they do PCR testing.

[T12388help]

So if no bacteria that they test for can be found, and you've been thru several courses of antibiotics, at what point can you consider yourself not contagious?  I'm struggling with this now and wondering if I have something u can pass on and how would I even know if that were the case. I have no discharge just inflammation swelling around opening. No bacteria can be grown from my sample.  It's been difficult to find testing for mycoplasma for me(impossible) so I don't think I have any choice but to treat for it.  Unless the symptoms go away, how can I be sure? Those out there with persistent symptoms and failed treatmentsand no answers, do you consider yourself a permanent std carrier? Are you infectious? At what point are you all clear?  Im finding it hard to accept this fate. Have to keep  trying different antibiotics until something works. Something has to work. I know treatment isn't clear cut but if this is happening to so many people why can't there be better testing and help with this?
Does a PCR use blood or urine? Maybe I will try a lab in the US like Shaken said.  I'm sure getting a blood sample to the States would be time sensitive and expensive.