Aa
hypothriod
okay so ive been having weird symptoms such of muscle aches hairloss weighgain tingling feet so i went to the doctors he did a bunch of blood work came back i had a tshu level of 8 16 put me on thyroid medicated but called me back and told me to stop taking the medication because additional blood work came back normal i dont get it why would the blood work come back one way then fine the bext why do i feel the symptoms but dont have it ? ill add in ive been starting to feel better on the medication but now i have to stop taking it ? has this happened to anyone else ?
The suggestions I gave you just above still stand. Continue with the med and also give the doctor a copy of the paper, and request that he read it and then treat you clinically as described, by testing and adjusting Free T4 and Free T3 as needed to relieve symptoms, without being influenced by resultant TSH levels. Typically we have found it best to have Free T4 at least at the middle of its range, and Free T4 in the upper half of its range, adjusted as needed to relieve symptoms. If the doctor disagrees, then you need to find a good thyroid doctor that will do so. If you will tell us your location perhaps we might be able to suggest a doctor that has been recommended by other thyroid patients.
Also, please check the lab report and tell us the measurement units shown for the ferritin test.
Also, please check the lab report and tell us the measurement units shown for the ferritin test.
Most important thing regarding hypothyroid treatment is how well you are feeling on medicine. Forget about thyroid results especially TSH which most doctors consider it as gold standard for them but for patients the gold standard is always the quality of life. If you are not feeling well on levothyroxine or synthroid try natural dessicated thyroid pill. If doctor not ready to prescribe find another if still not able to find then PM me or other members here as we are all ready to help each other as most of us have already suffered a lot due to lack of proper treatment approach in this issue. Also order these basic blood tests like Vitamin D3, B12 and ferritin from a private lab and make it optimal. Also include in your diet zinc and selenium rich foods. Sleep adequately at night and take food at proper times, develop good sleep and diet habits.
1 Comments
what happened was i went to my docotor because my feet randomly started tingling my tsh (or w.e its called) came back at a 8.16 so he diagnosed me with hypothyriod then when my t3 ans t4 test came back he said they where normal and told mw atop taking the meds ... i just dont understand that at all lol
The doctor started you on 50 mcg of T4 based on your TSH result. Then when he saw that your Free T4 was within range, he got cold feet and backed off and rescinded the medication. He obviously doesn't have a clue that being within the flawed range does not mean you are okay. Since you are already having symptoms, you don't need to wait to start on thyroid med because your Free T4 test was barely within its flawed range. Treatment should be based on symptoms, using Free T4 and Free T3 levels to see how far you are from optimal and then track your progress as the thyroid med dosage is increased. The idea of not treating until your test results fall outside the range is ridiculous, as you can see if you read the first two pages of the link.
If it were me, I would continue with the thyroid med, and also give a copy of the full paper linked above to your doctor and request that he read and reconsider the decision that you do need to take thyroid med at this time. I would also buy some B12, over the counter, and start on that as well. I have not seen ferritin results and a range like that. What are the measurement units shown for that range?
If it were me, I would continue with the thyroid med, and also give a copy of the full paper linked above to your doctor and request that he read and reconsider the decision that you do need to take thyroid med at this time. I would also buy some B12, over the counter, and start on that as well. I have not seen ferritin results and a range like that. What are the measurement units shown for that range?
Ferritin is a blood cell protein that contains iron. A ferritin test helps your doctor understand how much iron your body is storing. If a ferritin test reveals that your blood ferritin level is lower than normal, it indicates your body's iron stores are low and you have iron deficiency.
So the test is ferritin. There are other iron related tests, such as serum iron, TIBC, and % saturation; however, ferritin is kind of a precursor to iron levels, and adequate levels are very important. So, if not tested I highly recommend it. Ferritin should be at least 70. Your B12 is also too low. Optimal is in the upper end of the range. A daily supplement of 1000 mcg of B12 should be adequate.
Do you think you might be able to convince your doctor to start you on thyroid med? If not, New England is a large area. What are the nearest towns/cities you would be willing to travel to for a good thyroid doctor. Once we know this we can possibly give you some doctor recommendations.
So the test is ferritin. There are other iron related tests, such as serum iron, TIBC, and % saturation; however, ferritin is kind of a precursor to iron levels, and adequate levels are very important. So, if not tested I highly recommend it. Ferritin should be at least 70. Your B12 is also too low. Optimal is in the upper end of the range. A daily supplement of 1000 mcg of B12 should be adequate.
Do you think you might be able to convince your doctor to start you on thyroid med? If not, New England is a large area. What are the nearest towns/cities you would be willing to travel to for a good thyroid doctor. Once we know this we can possibly give you some doctor recommendations.
2 Comments
he did start me on 5omcg tab of levothyroxin thdn took me off 3 days later ! said the additional blood work came back normal so basically he diagnosed me then took it back ugh that doesnt help my crazy sympthoms he said i have the antibodies so i am gonna develope it could be a month could be a year i just honestly dont understand it ? and im RI i dont have the best medical so thats the thing can you buy b12 over the counter wouls it do any harm if i try to take it ? im just at my wits end i feel like i cant live a normal live without feeling like **** constantly plus its slot of stress constantly worrying whats wrong with me and let me see if its on the blood work
ferritin is 0.3 ranges are 0.2-1.0
im in new england im not sure what ferrin would look like on a blood test but my b12 is 356 range is 180-914 potassium is 3.8 normal is 3.5-4.9 and the vitimin d pills i take once a week i only took one dose so far its just annoying to deal with ill deal with an achy body and all but not tingling feet its gonna drive me nuts
On the Vitamin D, how long have you been taking the 50,000 IU of D2?
As mentioned, low D is typical with hypothyroidism. You badly need to also test for B12 and ferritin. The tingling/burning you feel is often associated with low B12. It needs to be in the very upper end of its range, for best effect.
Your Free T4 result is way too low in the range for most people. It would be good to also make sure they always test you for both Free T4 and Free T3 every time you go in for tests. With those symptoms that are so often related to being hypothyroid, and your low Free T4 you should be started on replacement thyroid medication.
So, I urge you to give your doctor a copy of the complete paper linked above and request that he read it and reconsider starting you on thyroid med. If he resists, point out that on page 3, even the AACE/ATA Guidelines for Hypothyroidism state that "A Guideline is not intended to take the palce of physician judgment in diagnosing and treatment of particular patients." Also stated is, "We encourage medical professionals to use this information in conjunction with their best clinical judgment." So there is nothing that precludes treating hypothyroid patients clinically as I described in my first reply. If the doctor tries to use the Free T4 result being within range as an excuse to defer medication, refer him to page 5 of the link, which explains why the references are far too broad and should not be used as the sole reason to deny treatment.
I would also point out that the info in the paper is not opinion, but is based on scientific evidence referenced in the paper. If all this fails, then you will need to find a good thyroid doctor that will treat clinically as described. And we can possibly help with that if you give us your location.
Please stay in touch and let us help you through this.
As mentioned, low D is typical with hypothyroidism. You badly need to also test for B12 and ferritin. The tingling/burning you feel is often associated with low B12. It needs to be in the very upper end of its range, for best effect.
Your Free T4 result is way too low in the range for most people. It would be good to also make sure they always test you for both Free T4 and Free T3 every time you go in for tests. With those symptoms that are so often related to being hypothyroid, and your low Free T4 you should be started on replacement thyroid medication.
So, I urge you to give your doctor a copy of the complete paper linked above and request that he read it and reconsider starting you on thyroid med. If he resists, point out that on page 3, even the AACE/ATA Guidelines for Hypothyroidism state that "A Guideline is not intended to take the palce of physician judgment in diagnosing and treatment of particular patients." Also stated is, "We encourage medical professionals to use this information in conjunction with their best clinical judgment." So there is nothing that precludes treating hypothyroid patients clinically as I described in my first reply. If the doctor tries to use the Free T4 result being within range as an excuse to defer medication, refer him to page 5 of the link, which explains why the references are far too broad and should not be used as the sole reason to deny treatment.
I would also point out that the info in the paper is not opinion, but is based on scientific evidence referenced in the paper. If all this fails, then you will need to find a good thyroid doctor that will treat clinically as described. And we can possibly help with that if you give us your location.
Please stay in touch and let us help you through this.
i forgot to add my tingling feet is what made me go to the doctors its to annoying to dral with idk if its in my head but since i been on the meds they arent burning and stuff anymore i dont even have it unless im thinking about now
sorry for the late response
vitimin d level= 12 ranges are 30-100 the meds for that say vitamin d2 50,000 unit cap take once a week now as for the lab results
vitimin d level= 12 ranges are 30-100 the meds for that say vitamin d2 50,000 unit cap take once a week now as for the lab results
1 Comments
hit send by accident ft4= 0.7 ranges are 0.6-1.7 he didnt test t3 (might be with the other blood work hes mailing it) here the story i had a baby 6 months ago in my 2nd trimester i started packing on weight i gained 80lbs the whole pregnany didnt really think much of it cause typically you do gain weight after i had my son i started getting muscle aches muscle cramps really tired my hairs falling out my skin is very dry i have really bad acid indegestion (never had that before) im either constipated or have diarrhea i chalked it up as maybe stress (i do have an anxiety disorder as well is has been 20x worse btw) not gettimg enough sleep, and my body changing or going back to normal, and very very moody like a raging B lol but i just feel like crap and run down constantly i mean i do tak care of my son all day then go to work at night and sleep from 3 to 630 everynight so that could be half of it but this has been going on for 6 months i was going to anothef doctor she kept telling me its my anxiety nothing is wrong without investigating by the way but i just want to feel normal again
If you read the paper I linked above, you will understand that the main diagnostic for thyroid issues should be symptoms, then Free T4 and Free T3, not TSH. Also you will learn that Free T4 and Free T3 that are in the lower half of their ranges are frequently indicative of being hypothyroid, due to the ranges being too broad.
What T4 test was done and what was the result, along with its reference ranges shown on the lab report? What are the specific symptoms you have?
What was the Vitamin D level and are you supplementing for it?
You don't need to wait for 6 weeks to test again. You either need to get your current doctor to recognize that you are hypothyroid and need to be treated clinically, as described, or else you need to find a good thyroid doctor that will do so. You could even give the doctor a copy of the paper from the link and ask if he will read the information and consider clinical treatment. If that is not a possibility, then you will need to find a good thyroid doctor that will do so. That does not necessarily mean an Endo. Frequently they specialize in diabetes, not thyroid. Also, many are very rigid in the way they diagnose and treat hypothyroid patients, similar to your doctor. If you will tell us your location, perhaps we can suggest a doctor in your area, that has been recommended by other thyroid patients.
What T4 test was done and what was the result, along with its reference ranges shown on the lab report? What are the specific symptoms you have?
What was the Vitamin D level and are you supplementing for it?
You don't need to wait for 6 weeks to test again. You either need to get your current doctor to recognize that you are hypothyroid and need to be treated clinically, as described, or else you need to find a good thyroid doctor that will do so. You could even give the doctor a copy of the paper from the link and ask if he will read the information and consider clinical treatment. If that is not a possibility, then you will need to find a good thyroid doctor that will do so. That does not necessarily mean an Endo. Frequently they specialize in diabetes, not thyroid. Also, many are very rigid in the way they diagnose and treat hypothyroid patients, similar to your doctor. If you will tell us your location, perhaps we can suggest a doctor in your area, that has been recommended by other thyroid patients.
I expect that what happened is that your doctor reacted to the TSH test being high and started you on medication. Then when your other blood tests came back within their ranges he flipped and decided to stop the medication. So the doctor is basically zero for two in my estimation. First he should not have medicated you based on TSH alone. TSH is a pituitary hormone that is affected by so many things that at best it is only an indicator to be considered along with more important indicators such as symptoms, and also levels of the biologically active thyroid hormones, Free T4 and Free T3. TSH cannot be shown to correlate well with either Free T4 or Free T3, much less correlate well with symptoms.
Second mistake is assuming that you were okay since your additional tests were within the normal ranges. We won't know which tests were done until results are available to you, but I am sure it would be for Total T4 and/or Total T3, or Free T4 and/or Free T3. In either case the ranges are far too broad to be functional for everyone, due to the erroneous assumptions used to establish the ranges.
A good thyroid doctor will treat a hypothyroid patient clinically by testing and adjusting Free T4 and Free T3 levels as needed to relieve hypo symptoms, without being influenced by resulting TSH levels. Symptom relief should be all important, not just test results. Typically this will require thyroid medication adequate to raise Free T4 to at least the middle of the range and Free T3 in the upper part of its range, adjusted as needed to relieve symptoms. To confirm what I have said, I highly recommend reading the first two pages of the following link, and further if you want to get into the discussion and scientific evidence.
http://www.thyroiduk.org.uk/tuk/TUK_PDFs/diagnosis_and_treatment_of_hypothyroidism_issue_1.pdf
In addition, hypo patients are frequently too low in the ranges for Vitamin D, B12 and ferritin. D should be at least 50. B12 in the upper end of its range, and ferritin should be at least 70. If not tested for those I suggest doing so and then supplementing as needed to optimize.
If you doctor is unwilling to treat clinically as described, then you will need to find a good thyroid doctor that will do so.
Second mistake is assuming that you were okay since your additional tests were within the normal ranges. We won't know which tests were done until results are available to you, but I am sure it would be for Total T4 and/or Total T3, or Free T4 and/or Free T3. In either case the ranges are far too broad to be functional for everyone, due to the erroneous assumptions used to establish the ranges.
A good thyroid doctor will treat a hypothyroid patient clinically by testing and adjusting Free T4 and Free T3 levels as needed to relieve hypo symptoms, without being influenced by resulting TSH levels. Symptom relief should be all important, not just test results. Typically this will require thyroid medication adequate to raise Free T4 to at least the middle of the range and Free T3 in the upper part of its range, adjusted as needed to relieve symptoms. To confirm what I have said, I highly recommend reading the first two pages of the following link, and further if you want to get into the discussion and scientific evidence.
http://www.thyroiduk.org.uk/tuk/TUK_PDFs/diagnosis_and_treatment_of_hypothyroidism_issue_1.pdf
In addition, hypo patients are frequently too low in the ranges for Vitamin D, B12 and ferritin. D should be at least 50. B12 in the upper end of its range, and ferritin should be at least 70. If not tested for those I suggest doing so and then supplementing as needed to optimize.
If you doctor is unwilling to treat clinically as described, then you will need to find a good thyroid doctor that will do so.
2 Comments
i did test for very low vitimin d the t4 was normal but he never did a t3 he is also a primary im wondering if i ask to be refurred to an endo ? idk its just weird to be how before it was really high and now its normal
and i have allll the symptoms even he said before the blood work came back he is very sire its that all he said on the phone is im most likely gonna develope it within the next few months so where gonna test again in 6 weeks .. ugh lol
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