Aa
Does anyone get muscle twitches ?
Just wondering if anyone has muscle twitches as a symptom of hyper or hypo. I get them in legs and arms ,buttocks and sometimes rib area....
Just curious LJ39
Just curious LJ39
Leanne's original endo was full of baloney in thinking that once all the lab test numbers were normal, all thyroid-related symptoms either were gone or else could not be thyroid-related after all. I agree with LJ: Just keeping telling yourself "thyroid, thyroid, thyroid," and know that your impressions about the cause-and-effect between your thyroid problem and your symptoms is right. All physicians who think in simplistic ways are wrong.
I am truly blessed in having an endo who does take me seriously. Tsimmu, I hope you have the option of continuing to look for a decent-quality doc. They are not easy to find. So much in their training encourages them to be arrogant and think that they know it all and their patients know nothing. There ARE endos out there, however, who do not question the accuracy of a patient's reports of what he or she is experiencing. I know, because I have that sort of endo, and I have a rheumatologist who is the same way. Both of them have said that: A) There is a LOT that the world of medicine does not understand, B) They as individuals do not, and cannot, know everything within their specialties that it is possible to know, and C) I am a highly accurate reporter, for which they are grateful. I made a one-page form of symptoms that I can fill out every day, once at the end of the day and once after I wake up, because I have to keep track of my symptoms in some way that is more reliable than my memory.
Since I keep a daily symptoms "log," I know I am not just imagining that my hypothyroidism is in some way involved in my problems with sleeping. The summer I had my 45th birthday, I began to have big problems with waking up in the middle of the night for no reason. Tsimmu, if you are not knowledgable about the perimenopausal phase of life, it would be a good area in which to do some reading. At the age of 45, when I was still slightly more than 6 years away from menopause, I had never heard the word "perimenopause." I wish I had known then what I eventually learned.
When I finally worked my way around an ignorant physician who did not want to give me any hormone medication until I had reached menopause, my sleep problems were "cured" wonderfully well by taking estrogen. Then four years ago, the same old problem crept back in, slowly but steadily. It was a mystery as to why it was happening, and it stayed a mystery until a few months ago. Now it has become obvious that problems with sleeping are a paradoxical (or contradictory) symptom of hypothyroidism for me.
If only the medication for hypothyroidism, which has made me feel much, much better in many ways, would be a complete cure for my sleeping problems. The medication has helped, but it is not a cure. I would lose my mind, I think, if I did not have my endocrinologist, who is highly supportive and a true health care ally. Rather than simplistically saying, "Well, if levothyroxine has not stopped the symptom, then the symptom cannot be coming from your thyroid gland," he says, "We physicians do not begin to know everything."
Before I sign off, I want to thank Dac and Teresa for providing a good laugh for the day. My muscle twitching is a symptom that does seem to have been cured, at least almost completely anyway, by levothyroxine. I have had times in the past, though, when I had a twitch so bad that I could see the twitching muscle jerking (one time it was in my forearm, near my wrist), and I thought I would scream if the twitching did not stop after going on, nonstop, for hour after hour after hour. Now I know that I should have been grateful. I was not have a twitch that make another person wonder what sort of message I was sending. We thyroid sufferers do learn to be grateful for even the smallest things!
Thank you, Leanne, for the happy Labour Day thought, although it probably is not a holiday wherever on the globe you are living...am I right? If I am, then I wish you a happy day, category unspecified.
My best to one and all,
Jenny
I am truly blessed in having an endo who does take me seriously. Tsimmu, I hope you have the option of continuing to look for a decent-quality doc. They are not easy to find. So much in their training encourages them to be arrogant and think that they know it all and their patients know nothing. There ARE endos out there, however, who do not question the accuracy of a patient's reports of what he or she is experiencing. I know, because I have that sort of endo, and I have a rheumatologist who is the same way. Both of them have said that: A) There is a LOT that the world of medicine does not understand, B) They as individuals do not, and cannot, know everything within their specialties that it is possible to know, and C) I am a highly accurate reporter, for which they are grateful. I made a one-page form of symptoms that I can fill out every day, once at the end of the day and once after I wake up, because I have to keep track of my symptoms in some way that is more reliable than my memory.
Since I keep a daily symptoms "log," I know I am not just imagining that my hypothyroidism is in some way involved in my problems with sleeping. The summer I had my 45th birthday, I began to have big problems with waking up in the middle of the night for no reason. Tsimmu, if you are not knowledgable about the perimenopausal phase of life, it would be a good area in which to do some reading. At the age of 45, when I was still slightly more than 6 years away from menopause, I had never heard the word "perimenopause." I wish I had known then what I eventually learned.
When I finally worked my way around an ignorant physician who did not want to give me any hormone medication until I had reached menopause, my sleep problems were "cured" wonderfully well by taking estrogen. Then four years ago, the same old problem crept back in, slowly but steadily. It was a mystery as to why it was happening, and it stayed a mystery until a few months ago. Now it has become obvious that problems with sleeping are a paradoxical (or contradictory) symptom of hypothyroidism for me.
If only the medication for hypothyroidism, which has made me feel much, much better in many ways, would be a complete cure for my sleeping problems. The medication has helped, but it is not a cure. I would lose my mind, I think, if I did not have my endocrinologist, who is highly supportive and a true health care ally. Rather than simplistically saying, "Well, if levothyroxine has not stopped the symptom, then the symptom cannot be coming from your thyroid gland," he says, "We physicians do not begin to know everything."
Before I sign off, I want to thank Dac and Teresa for providing a good laugh for the day. My muscle twitching is a symptom that does seem to have been cured, at least almost completely anyway, by levothyroxine. I have had times in the past, though, when I had a twitch so bad that I could see the twitching muscle jerking (one time it was in my forearm, near my wrist), and I thought I would scream if the twitching did not stop after going on, nonstop, for hour after hour after hour. Now I know that I should have been grateful. I was not have a twitch that make another person wonder what sort of message I was sending. We thyroid sufferers do learn to be grateful for even the smallest things!
Thank you, Leanne, for the happy Labour Day thought, although it probably is not a holiday wherever on the globe you are living...am I right? If I am, then I wish you a happy day, category unspecified.
My best to one and all,
Jenny
I've been hyper since I had my daughter (2 1/2 years ago). I developed mild proptosis in my left eye a few months ago and that's when we discovered it was Graves. I've been euthyroid since July 23, 2007. That's roughly when I stopped taking methimazole. Twitching, numbness, nighttime jerking all started around August 6th (about two weeks after I stopped my ATD). My last blood work was done on August 13th and all thyroid levels were in the normal range. I've been told it takes 4-6 weeks to show any changes in bloodwork, so I am getting new tests done by the end of next week.
I have tons of other symptoms that come and go (headaches, rash). Whether or not they are real or a product of my 24/7 anxiety remains to be determined. Has anyone out there experienced a rash from there tyhroid troubles? A few weeks ago, I had one so bad that I needed to go the ER. Now I just have a strange rough patch on my cheek.
I just wish I could find a doctor who would take me seriously. They all shrug off my symptoms. I'd love to know how they would sleep at night if their muscle were twitching involuntarily and their fingers and feet were jerking all night long.
I have tons of other symptoms that come and go (headaches, rash). Whether or not they are real or a product of my 24/7 anxiety remains to be determined. Has anyone out there experienced a rash from there tyhroid troubles? A few weeks ago, I had one so bad that I needed to go the ER. Now I just have a strange rough patch on my cheek.
I just wish I could find a doctor who would take me seriously. They all shrug off my symptoms. I'd love to know how they would sleep at night if their muscle were twitching involuntarily and their fingers and feet were jerking all night long.
It's so weird, I've been having twitching too in my right eye for two weeks now and am surprised to find so many of you have the same thing. Who would've thought?
Gina
Gina
I really feel for you. I have the same thing and My original endo that I went to said all symptoms were part of thyroid problem,and then when levels went back into normal range and I still had symptoms she said my symptoms could not be due due thyroid I have had mri eeg vep, every blood test and all normal. I know what we are suffering from is thyroid related. Did you read all of the testimonials on Msfergy's neuropathy poll? I have the burning ,not as bad as it was ,but stilll have it I have the twitching,numbness,blah blah blah... and I have had the jerking when falling asleep. You are not crazy!!!. Keep telling yourself thyroid ,thyroid, thyroid. It has to be. How long have you had these symptoms and what are your levels now ? were you hypo or hyper when this all started?
Let me know LJ39
Let me know LJ39
1 Comments
How are you feeling. I know it's been over 10 years, I am having the same issues.
I too had the eye twitching!!! The one guy at work used to think I was winking at him!!! Thank god he is same sex oriented or I would have had a huge problem!!!
I also had twitches in my neck where for no reson my head would just turn slightly. That was weird especially when speaking with my boss- I think i was giving her a complex because she would finish her sentence and let me back to work!!!
teresa
I also had twitches in my neck where for no reson my head would just turn slightly. That was weird especially when speaking with my boss- I think i was giving her a complex because she would finish her sentence and let me back to work!!!
teresa
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