Extreme anxiety

[Ruth143]

Our daughter has a TSH of over 120; she had a thyroidecotmy several years ago.  She is suffering from extreme anxiety and is beside herself.  She's been to the ER several times, without getting any help.  Where can we turn to get help for her?

[sick and tired 47]

I agree with othe post. I am not a medical expert but she should not have a TSH of I20 post thyroidectomy.
  I understand her anxiety and feeling like you want to not go on.
Open the phone book and start calling other drs. ( endos)..set up as many appts as you can- you can cancel them later unless you can get to a big name place fast.
Tell her do NOT give up,I have been there and it does get better!!!!!  I will pray for the right dr and healing for her.

[rumpled]

She has not met the right physician. They have not run enough tests. Has she had a pituitary MRI?
Please get her to a university that has a pituitary center.

[Ruth143]

Yes, she is titrating upward to get her levothyroxine to the dosage she was originally on.  She claims none of her medicines "work anymore":  pain killer for her TMJ, xanax for anxiety, etc.  We are so worried we don't know where to turn.  She cried all the time and is starting to say she can't "go on like this".  Physicians just haven't done anything for her.....

[rumpled]

She needs to see a pituitary specialist. TSH is actually a pituitary test - thyroid stimulating hormone - and measures what the pituitary is telling the thyroid. If the thyroid is no longer there, and the TSH is so high... it may signal that she has a pituitary tumor. The tumor can cause anxiety as well as other symptoms.

Is she taking thyroid replacements?