FVPTC concern

[jchewche]

i was diagnosed with fvptc 2 months ago. I am 58 years old and my tumor was 9x8x5 cm. on one lobe and 5.2x3.5x2. on the other my pathologist says my entire thyroid showed cancer i also had vascular invasion and i am concerned that i should have had radiation by now and a scan but i am on levothroid i see the endo doc this week and im wondering what type of trearment i should have

[utahmomma]

Hello and welcome,

With the size of your tumors, the variant on your PC, and the vascular invasion I would have thought that they would have given you a consult to an oncologist!  Yes, you need the radio-iodine (RAI or I-131) treatment - ASAP.  You need your labs checked first for a good baseline - especially your thyroglobulin level (that is your cancer marker).  If your endocrinologist doesn't suggest an oncology consult or schedules you for RAI ASAP, insist on it!  Discuss using lithium in conjunction with the RAI for a better outcome.

I'd also recommend "Essentials of Thyroid Cancer Management by Amdur and Mazzaferri, Eds" (I bought my copy on Amazon.com).  It's a great resource for thyroid cancer patients.

Please, keep us posted.

My best to you

Utahmomma
papillary carcinoma '03, second surgery '04, recurrence and RAI '06
three sisters with papillary carcinoma (one with three recurrences/RAI including distant METs to liver, breasts, and GI tract)

[ChitChatNine]

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C~