Aa
Failed RAI?
I was doing good and feeling fine for a couple months after the RAI, but as soon as the doctor put me on Levoxyl I felt like the hyperthyroidism started to return. The goiter even seems to be coming back. And, like it did in the old days, it throbs and squirms and hurts--and my heart skips beats when it does this. Has any one ever experienced a recurrence of hyperthyroidism after RAI? I feel worse now than I ever did. I don't know what to do. I swear I'm going to die--and I keep running up hospital and other medical bills.
I'm sorry, I keep forgetting to FINISH what I have to say. I have bad chest pains most of the time also. I feel sick and nauseated most of the time, can't even do my job at work. AND, the goiter seems to be growing again. It had shrunk but now it's back, along with that throbbing and squirming.
Has any one else experienced what I'm talking about when I mention the throbbing, squirming, sickening feeling in the thyroid? I've been getting this more and more again, when I was so happy that it finally left for months. I think whatever it is is going to kill me. I swear I feel like I'm really dying.
Yes, I'm on Levoxyl and I have symptoms of an overdose. My chest hurts and my heart is pounding and my blood pressure is up.
Something else--that throbbing, squirming, painful thing in my thyroid is back, which had completely gone away until I got on this levoxyl. It's coming back more and more. My heart skips beats when it does this.
Something else--that throbbing, squirming, painful thing in my thyroid is back, which had completely gone away until I got on this levoxyl. It's coming back more and more. My heart skips beats when it does this.
I agree with Smilerdeb.
These could be symptoms of hypo, or symptoms from the hormone slide that are hanging on.
How many months has it been since RAI? Two or three months? It can take that long for the thyroid to die, or longer.
I'm not trivializing your heart symptoms. I have plenty myself and it's not trivial. I'm thinking you need to have a little patience, think positive, get some REST, and ask for an ultrasound in a month or so.
Your heart has been tested and tested and nothing major turned up, so it is your hormone levels mucking things up. You need to slow down until you can heal, or you may end up damaging your heart.
These could be symptoms of hypo, or symptoms from the hormone slide that are hanging on.
How many months has it been since RAI? Two or three months? It can take that long for the thyroid to die, or longer.
I'm not trivializing your heart symptoms. I have plenty myself and it's not trivial. I'm thinking you need to have a little patience, think positive, get some REST, and ask for an ultrasound in a month or so.
Your heart has been tested and tested and nothing major turned up, so it is your hormone levels mucking things up. You need to slow down until you can heal, or you may end up damaging your heart.
You may be experiencing HYPO sysmptoms and after being Hyper before RAI, you mistakenly think you are Hyper when you are not.
The reason being is....I have done the same thing a few times.
I too had RAI in June 2008 and went through stages that when I felt anxious , fast heartrate, totally irratic that I thought I was going Hyper again but quite the opposite...I was Hypo.
But in saying that, yes I have gone Hyper on thyroxin but not as bad as before RAI.
Are you on T4 replacement yet? (thyroxin).
Either way you look at it, your TSH is 'out' a fraction and these can be Hypo symptoms.
Has your Doctor suggested a dose change at all if you are on Thyroxin or Synthroid?
The easiest way for me to know if I am hyper or hypo is:
With hypo...my bowels are sluggish and with hyper, they arent.
I also get cramps in the legs if hyper but a burning sensation underneath my foot if I am hypo.
Everyones symptoms are different but you can get severe anxiety at both ends of the scale..both hyper and hypo.
The reason being is....I have done the same thing a few times.
I too had RAI in June 2008 and went through stages that when I felt anxious , fast heartrate, totally irratic that I thought I was going Hyper again but quite the opposite...I was Hypo.
But in saying that, yes I have gone Hyper on thyroxin but not as bad as before RAI.
Are you on T4 replacement yet? (thyroxin).
Either way you look at it, your TSH is 'out' a fraction and these can be Hypo symptoms.
Has your Doctor suggested a dose change at all if you are on Thyroxin or Synthroid?
The easiest way for me to know if I am hyper or hypo is:
With hypo...my bowels are sluggish and with hyper, they arent.
I also get cramps in the legs if hyper but a burning sensation underneath my foot if I am hypo.
Everyones symptoms are different but you can get severe anxiety at both ends of the scale..both hyper and hypo.
I ALSO forgot to add that my TSH was 6.9 in one blood test at the lab and 3.0 just a few days later at the hospital. I don't know if somebody screwed up or if I'm just that screwed up, but how do I know which one to trust?
I forgot to add that, along with the palpitations and arrythmias and even worse symptoms, my thyroid is throbbing and squirming again, painfully, and my heart skips beats when it does this. It's just like it was in the beginning, when I first started having hyperthyroid symptoms, only worse. I think the beta blockers are all that are preventing tachacardia.
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