Hello Eric,
WELCOME TO THE THYROID COMMUNITY! This is a great place to give, get, gain and share information and advice and maybe in the process you may make a friend or two along the way! This community here is patient to patient ... not medical professional but we have lots of experience to share!
I, too, had follicular adenomas along with 2 papillary microcarinomas.
I am so glad you had the testing done and will follow thru with the possible lung involvement. I wish I had an answer for you. If not many answer maybe repost (and tell them at my suggestion you are reposting) and ask in short paragraph if the lung can have metastatic involvement as you described in your post. You may get an answer with one ? and then can refer them back to this post maybe by cutting the link and pasting it.
I wanted to stop by and [ wave ] hello and again, WELCOME to our COMMUNITY!
Cheryl - co-community leader thyroid
Sounds like you're having quite a time there. I'm thinking you might consider also posting this to Ask the Doctor (Dr. Lupo's) forum too. He's given me and others great answers.
In the meantime, as a practical suggestion, I wonder if your endo has a backup person, or if you could see or call the surgeon or your regular doc to get the CT Scan ordered and possibly answer some of your questions while you're waiting. That way, the endo will have the results when she gets back in town.
Since most of your questions are medically oriented, I'll just tell you my experience.
Had total Thyroidectomy 8/30/07 to deal with 3 nodules. Two were pap carcinoma about 1 cm, the other just a cyst of some sort.Started with 100 mcg of Synthroid, got moved up to 112, and then to 125 which seems to be the right level. This was over the course of 7.5 months. While I was able to function during the adjustment period, I was definitely affected by it. Didn't realize how lousy I was doing until the level was right.
In my case, there was some extrathyroidal growth, but the lymph nodes didn't seem to be invovled. I had 100 millicures of radioactive iodine in October and a scan 14 days later I think that appeared clear. Now one of my lymph nodes has some abnormalities, so I am going for more evaluation. I don't know what my thyroglobulin level is becasuse the doctor didn't have it when he initially told me about the US results, and then when I called him back a few days later, he was out of town for a week! Today, supposedly the office person is going to call me with the Thyroglobulin level.
Please keep us up to date.