My doctor diagnosed me "95%" Hashimoto's - with low/normal TSH and several nodules, only one looking suspicious on the left side. He put me on 25mg of Synthroid for two weeks, and only experienced flushing, lethargy and some palpatation issues. At two weeks, I was to bump up to 50mg - and within three days, my lymph nodes swelled, my goiter became very painful, daily headaches and low grade fever began. I've been on 50mg for six weeks now, and my fevers have spiked up to 101, but are normally staying steady around 99.8. At times, my neck hurts so bad that I can't hold it up, and the pain radiates into the cartilage of my ears (pinched nerve??).
I saw my doctor at 4 weeks of synthroid and complained of the issues, and he took more labs to check my TSH (0.65) - which, is not much lower than my intial TSH level of 1. My frustration is building because my doctor isn't following up with this --- I had to call his nurse to get my latest levels, and even then - I don't know their lab ranges. I called Monday because I'm becoming increasingly ... sick, just plain sick. I'm not able to function, I'm extremely tired, my appetite isn't much of one - and I'm only craving carbohydrates.
When I spoke to his nurse on monday about my concerns with the fever & Synthroid, she told me that she has never heard of such a thing and I most likely have tonsilitis. That made me feel like I just hit a brick wall and I need to find an alternative route to get this under control. I do not have any other symptoms - my tonsils are not red or painful, my sinuses are clear, I have no cuts or scrapes - nor have I really been out of the house to be exposed to anything. My gut is telling me this is something else - and he is just basing his diagnosis on a goiter. Even if this is just a bad reaction to the Synthroid, I need answers - because this is getting progressively worse, and I'm at a loss.
Should I start looking for a new endocrinologist? If so, should I try to find one who is also a reproductive specialist in case this is related to my PCOS? And, anybody know of a good doctor in San Antonio? ...
Symptoms : goiter, fever, PCOS, headaches, diarrhea, joint/muscle pain, abnormal hair growth, lactation, dry skin, brittle nails, puffy eyes/face, dizzy spells, memory loss, lethargy/exhaustion, insomnia, panic attacks, palpatations, constipation, frequent/heavy menstruation, hand twitching (not often).
Meds : Zoloft 50mg, Xanax 1mg, Loestrin, Synthroid 50mg.
god bless.
-emily