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Hashimoto's Toxicosis and going hypo and hyper

This is kind of a survey/question to those of you diagnosed hypothyroid Hashimotos but who feel or actually are cycling into a hyper (not hypo) state. Do you seem to have symptoms of hyper like red in the face, hi b.p., shakiness, depression, hot all the time not hot flashes, hot tempered, double vision or poor vision etc etc but yet you feel run down, tired, fuzzy mentally, slow gastro processes so you go to the doctor and he/she says you are right in target range for tsh below 3.0 or thereabouts and great free t4 free t3 levels and all else looks good so maybe they raise your thyroid med dose thinking you're still a little hypo (not hyper) or have you lower dose in case you are actually hyper and for a short while you feel better or feel worse right away so now you don't know if you're up or down ? Yes, that is a run on sentence but hopefully I'm clear - here is my theory - maybe you have gone so hyper your body is shutting down or slowing down to protect itself or it's just breaking  down altogether - Has anyone had this experience and if so what do you do about it or what does your doctor do or say to help you? And if our thyroid gland worked normally would pituitary and other supporting systems output consistently same amounts ? I know this is a good question for Dr. Lupo as he actually believes there is a phenomena as Hashitoxicosis unlike my past 3 endos. I'm curious what you folks think about this and what your experiences have been.
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Avatar universal
my doctor again told me there is nothing she can do for me.  She just wants to watch it.  I keep cycling and i know it.  I go from one extreme to the next.  I can't take it.  I work full time and i also go to school. So the past three days i have had heart fluttering and sweats and ectremely hot.  i couldnt sleeplast night at all.  I am going to see an endo next week.  hopefully they will be able to do something for me since my doctor wont medicate or anything.  
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Avatar universal
Yes!! You are describing me to a T!

I want to use natural dessicated thyroid or the synthetic liatrix,
to see if that is better than Synthroid.

No gluten and no nightshade veggies, less broccoli cabbage, and less soy.

Diet seems to be key. I'm keeping my remaining bit of thyroid glad!
hugs
Joni
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Avatar universal
She can't medicate? The tiredness is just "normal"?  I would see another doctor for sure.
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Avatar universal
So i have been hypothryioid for about 20 years, 3 years ago i had parathyroid surgery, they removed 2...during the surgery he did a biopsy and found out i had hasimotos...now i go between hypo and hyper....so a question...yesterday i ate some rye bread (gluten) i don't really do a gluten free diet but try to stay away from it as much as possible,  but today i am extremely hyper could it be due to the rye?
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Avatar universal
okay this is to everyone.  I have been feeling like complete crap for a while now.  So a month or two ago i noticed a lump on my neck.  I went to the doctor and had blood work and a needle biopsy which was not fun.  She called and told me that i have thyroiditis and its autoimmune.  And that it was not safe to put me on any medication because she wants to see if it will just 'level out' and if not she will just give me hypothyroid medication.  But she also told me  ' this will eventually turn into being hypothyroid.'  I think i am switching back and forth from hyper to hypo.  When she called me she said at the time my tsh levels were low and the rest was normal.  I am confused and waiting for her to call me back again because i just dont have enough information from her.  My weight keeps changing rapidly and i can barely function some days and i keep going from constipated to diarrhea (sorry tmi) and i go to hot to cold and actually being able to think and being completely cloudy headed..   She said that the tiredness was just normal but she can't medicate.  Shoudl i see another doctor?  i am so lost
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Avatar universal
Hold in there ksue, I'm 51 and its frustrating when they blame things on menopause.  I tell the doctors off. Luckily, i have artillery backup ( literally), I'm in the navy attached to a heavy weapons unit and go everywere with them, hot flashes and all, so I quite them down with the menopause bs. I can no longer do my military job because of  all this tyroid nonsense.  I will be going to ask for  rai treatment  and get this up and down  silly thyroid business over and done with, and be just like our former president George Sr and his wife Barbara Bush and worry only about treating the hypo.  I figure, if you are going to have both symptoms lingering around anyways, why not simplify  and just worry about one. if I don't have it done here, i will go oversees and do it.
hope every body finds what finally will work for you. Stay strong!!
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