MIX & MATCH DX's :-/

[meomystory]

MANY thyroid test throughout the years & only ONE came back abonormal as hypothyroidism- Then? Hyperthyroid & taken off meds. I DESPISED the word "FIBROMYALGIA" & "just KNEW" it was MS. I had "begged" for a spinal tap to rule this out because I was having ALL the symptoms- NOTHING (LOL!!) was showing up to DX MS.. FINALLY, my neuro / pain management doc decided to do the tap to check for MS. I was told in 2003 that it was "possible MS, ALS, or some other 'vascular disorder'. I've been havong "symptoms" since the early 1980's also. Also, it was obvious that I had "relapsing remitting" MS that is NOW" secondary progressive". THEN?...

I was having trouble breathing when I layed on my back- was sent to a pulmonologist to look at my lung function, etc... A CT was done, lungs are fine BUT I have a 1/2 inch nodule on the left side of my thyroid. NOW I am wondering what's up with this..? What REALLY upsets me is that 2 or 3 docs said I probably needed a "thyroid scan"- YET? Not ONE doctor had ordered it.. so? MS PLUS a thyroid "nodule"? Oh yeah... severe DDD & osteoporosis- ALL this at age 48... It really hurts when a doctor blows you off.. the "delayed DX" COULD have been prevented.
Does anyone know what the probability is of what the nodule 'might' be? I'm not scared if it is bad...just curious... Thanks to anyone who might know a lil sumpin!


This discussion is related to Not sure about results.

[Barb135]

Do you know if you have Hashimoto's Thyroiditis?  It's quite common for someone with Hashi to alternate hypo/hyper.  It's also very common for those with Hashi to have thyroid nodules.  Most are nothing to worry about, unless they have odd characteristics, or grow fast; there's usually no reason to have them removed.  You need to have thyroid antibodies tested, if you haven't already.

Do you have any current thyroid test results that you could post?  You should, at least, be getting TSH, Free T3 and Free T4 to monitor thyroid function. Whenever you post results, please be sure to include reference ranges, since these vary lab to lab and must come from your own report.

[Dina723]

Oh my, it sounds like you have a lot going on! I always perk up at the MS posts because I was tested for it at Mayo in February. Thankfully I did not have it. It is something else. I do have thyroid disease though. An ultra sound last August detected a multi- modular mass on my left thyroid. It had been there for years I figured with as long ad I'd been having symptoms. Any way, after an inconclusive biopsy, I had mine removed bcs it was growing larger. None of mine were cancerous. They did the pathology while I was still under. My doctors said that many people have thyroid nodules and don't even need to have them removed. It will just depend on your situation.

You should discuss all of this with your doctors. and since it sounds like yours arent working on your behalf, could you see someone else? I absolutely know how frustrating it is. I saw 14 doctors before I was diagnosed with my current illness and it was a miserable uphill battle the whole way. Please don't give up until you have answers!!