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POLL/Neuropathy & Thyroid-Please Join
Ok I have decided to place a Poll on here myself.
How many of you out there have Neuropathy problems along with Thyroid? If you do give a breif description of the problems and what type of thyroid problem you have. If enough of us out there suffer from this then maybe the Endo's would relate to it, as we can print this out and take it to the Doctor with us. Thanks for participating.
How many of you out there have Neuropathy problems along with Thyroid? If you do give a breif description of the problems and what type of thyroid problem you have. If enough of us out there suffer from this then maybe the Endo's would relate to it, as we can print this out and take it to the Doctor with us. Thanks for participating.
I'm taking other medications too. Norvasc and Lisinopril for my High Blood Pressure and these can make me lightheaded and fatigue (Hypo symptoms). My GP won't take me out of these medication, due to family history, but willing to lower the dose as long as I monitor my Blood Pressure. It is hard to figure out if the medications or being under dose for Hypo thyroid is causing the symptoms. One good news is that I just finished seeing a Cardiologist that told me that my Heart is in good condition after EKG, Stress Test, Nuclear medicine, and Echcardiogram done because I had a chest pain last May before I was told my TSH was high. I'm taking another blood test this week for TSH, Free-T3 and Free-T4 to see if my medication dose is at an optimum level. I never had a Free-T3 test before and found a place that will do it, just need to travel 8 miles.
Take care,
Rick
Take care,
Rick
Well it has been 9 months for me now girls! I already had thyroid problems for 2 yrs and i beleive i was underdiagnosed the whole time, just given 25mcg levothyroxine, went back a yr later complaing of my throat swelling, not feeling good, lazy and all hypo symptoms was sent to a ENT and my thyroid was totally ignored! December of this year is when it all hit me and i beleive it is what knocked out my adrenal gland, also was told it was thyroiditis, Grrrrrr yes we know our bodys!! My neuropathies are all over some of the time, one day it can be bad and another day not as bad, I am dealing with swollen ankles and feet now and I do not know why! Do you guys get this also? When I am on my feet awhile the hurt so bad and the doctor says uh huh grrrrrrr dont know if it is my meds or the thyroid, taking hydrocortisone for the adrenal also, or maybe its a moxture of both.
Tina
Tina
After TT in July '06, I experienced tingling, numbness in hands at night while sleeping (it woke me up). This lasted for about 6 months, but has now ceased.
Hi, LJ--
I realized something since earlier this afternoon, when I posted my comments. The term "neuropathy" generally means nerve damage...or at least I think it does. If that is true, then I was misusing it. A few years ago, when my hypothyroidism was still flying too low under the medical radar screen to be detected, I was thoroughly assessed to be sure that I did not have a demyelinating disorder such as multiple sclerosis. I passed all the tests with flying colors. Definitely, I do not have nerve damage.
As for how I feel now: Most of my weird neurological symptoms are gone. I am not yet at a point at which I can claim victory over my thyroid problem. My wonderful endocrinologist and I are still working at getting the problem under control. When I have a bad day, though, it tends to consist of a mixture of the most typical symptoms of hypothyroidism and one or two of my "neurological" symptoms. My body's favorite symptoms in the neurological category seem to be muscle twitching and a completely inaccurate sense of how firmly I am gripping something; not until the something drops out of my hand do I realize that I was barely hanging onto it.
Although I still have bad days, I am feeling SO much better than I was a few months ago. I wish I could tell you how long you are going to have to live with your miserable symptoms, because I know the frustrated feeling of "How much longer?!" I truly identify with what you are going through. My case of hypothyroidism has never been more than mild, according to lab results (the highest TSH level I have had was 4.11), but I have been impressively unwell, and that was true for a very long stretch of time.
When you say "thank God for this site," I could not agree with you more. It is difficult enough to have a poorly understood condition (which thyroid problems really are) and to be very unwell as a result, and then it is made more difficult when doctors do not take us seriously. Mine does, actually; he has been an immense blessing, but he has not recognized some of my more unusual symptoms. It has been an enormous help to be part of this forum. As another member put it so well, it is comforting to know that your body is not uniquely weird.
Wishing you the start of bouncing back, and SOON,
Jenny
I realized something since earlier this afternoon, when I posted my comments. The term "neuropathy" generally means nerve damage...or at least I think it does. If that is true, then I was misusing it. A few years ago, when my hypothyroidism was still flying too low under the medical radar screen to be detected, I was thoroughly assessed to be sure that I did not have a demyelinating disorder such as multiple sclerosis. I passed all the tests with flying colors. Definitely, I do not have nerve damage.
As for how I feel now: Most of my weird neurological symptoms are gone. I am not yet at a point at which I can claim victory over my thyroid problem. My wonderful endocrinologist and I are still working at getting the problem under control. When I have a bad day, though, it tends to consist of a mixture of the most typical symptoms of hypothyroidism and one or two of my "neurological" symptoms. My body's favorite symptoms in the neurological category seem to be muscle twitching and a completely inaccurate sense of how firmly I am gripping something; not until the something drops out of my hand do I realize that I was barely hanging onto it.
Although I still have bad days, I am feeling SO much better than I was a few months ago. I wish I could tell you how long you are going to have to live with your miserable symptoms, because I know the frustrated feeling of "How much longer?!" I truly identify with what you are going through. My case of hypothyroidism has never been more than mild, according to lab results (the highest TSH level I have had was 4.11), but I have been impressively unwell, and that was true for a very long stretch of time.
When you say "thank God for this site," I could not agree with you more. It is difficult enough to have a poorly understood condition (which thyroid problems really are) and to be very unwell as a result, and then it is made more difficult when doctors do not take us seriously. Mine does, actually; he has been an immense blessing, but he has not recognized some of my more unusual symptoms. It has been an enormous help to be part of this forum. As another member put it so well, it is comforting to know that your body is not uniquely weird.
Wishing you the start of bouncing back, and SOON,
Jenny
You said it Sista!. Neuropathies may not be the most common symptom of thyroid disease,but there are enough people suffering from it that, do not have neurological diseases ,ms ,Lupus etc.... Doctor's have to take this into consideration when dealing with patients. WE need to be taken seriously. I have never felt so ill from these peripheral neuropathies. I hope we will all get better soon.
Empatheticjenny How do do feel now? are your neuropathies gone or do you still suffer from them? I would really like to know how long I am going to have to live like this!! thank God for this site.
LJ39
Empatheticjenny How do do feel now? are your neuropathies gone or do you still suffer from them? I would really like to know how long I am going to have to live like this!! thank God for this site.
LJ39
In the comment I just posted, the sentence at the end of the last paragraph is confusing. Please pardon my brain fog....
Here is what I meant to say. I think there are symptoms that are not the most common symptoms of thyroid problems, but if you ask a group of people who are struggling with a thyroid problem if they have had the uncommon symptom or symptoms, at least some people reply "YES!" The more time I spend at this forum, the more I see an amazing disconnect between what our physicians tell us is (and is not) related to our thyroid problem and what we sufferers are actually experiencing.
Here is what I meant to say. I think there are symptoms that are not the most common symptoms of thyroid problems, but if you ask a group of people who are struggling with a thyroid problem if they have had the uncommon symptom or symptoms, at least some people reply "YES!" The more time I spend at this forum, the more I see an amazing disconnect between what our physicians tell us is (and is not) related to our thyroid problem and what we sufferers are actually experiencing.
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