Aa
Please help...I'm confused and I think my doctor is too
Heres a quick history.
I had the right side of my thyroid remove in 2010. Upon biopsy, they descovered I had cancer. It was small enough that they got it all and I didnt need treatment.
I have chronic sinus infections and a history of ovarian cysts.
Here's my problem.... My urine calcium is 3Xs the max limit, my blood calcium is 9.6 and the have found that I have a small amount of IgG in my Urine.
My doctor has told me it could be caused from one of three things... She said, parathyroid dease, cancer....after she said cancer I didn't here what the third thing was.
Has anyone have any idea what this could all be caused from?
Physically, I am always tired and unsteady.
Anything really...Please help me understand this.
I had the right side of my thyroid remove in 2010. Upon biopsy, they descovered I had cancer. It was small enough that they got it all and I didnt need treatment.
I have chronic sinus infections and a history of ovarian cysts.
Here's my problem.... My urine calcium is 3Xs the max limit, my blood calcium is 9.6 and the have found that I have a small amount of IgG in my Urine.
My doctor has told me it could be caused from one of three things... She said, parathyroid dease, cancer....after she said cancer I didn't here what the third thing was.
Has anyone have any idea what this could all be caused from?
Physically, I am always tired and unsteady.
Anything really...Please help me understand this.
Hi Cammie, try to relax, it's natural to stress out, when your health is not optimal. Yes, stress can cause high bp.
I've alway's had natural low pulse, down to 55, on average around 65, with normal bp,. Cardiologist told me, that's because my heart is in great shape, very atheletic.
Address concerns with physician, call clinic soon as possible, tell them your not feeling well, or as I and many have done, seek an opinion of another physician and take all your labs with you. Surely hope you find the answers you seek soon. Wishing you well.
I've alway's had natural low pulse, down to 55, on average around 65, with normal bp,. Cardiologist told me, that's because my heart is in great shape, very atheletic.
Address concerns with physician, call clinic soon as possible, tell them your not feeling well, or as I and many have done, seek an opinion of another physician and take all your labs with you. Surely hope you find the answers you seek soon. Wishing you well.
Thank you AJW. I am trying to keep it under control. I went for more blood work today. I'll know more on the 15th after I see see my Endro. The only problem with going to another Dr, is theres only one in my area....lol...Olean NY is not that big. I have thought about going to someone in Buffalo but its an 1.5 hour drive....
OK here are my latest results.
TSH is 1.44...Ref Range .35-5.50
FT4 1.08...Ref range 0.7-1.48
FT3 2.8 Ref range 2.3-4.2
AntiThyroglobin 14
I am so tired ALL the time. I think it's do to my FT3
TSH is 1.44...Ref Range .35-5.50
FT4 1.08...Ref range 0.7-1.48
FT3 2.8 Ref range 2.3-4.2
AntiThyroglobin 14
I am so tired ALL the time. I think it's do to my FT3
G'day I am going to tell you something that will make you go, WTF? Just because your Parathyroid levels are good does NOT mean you don't have hyperparathyroidism. Good huh?
Here is the link to a fantastic site...you will have to copy and paste into your browser to look at it. http://parathyroid.com/diagnosis.htm
You can have skewiff levels for quite sometime of thyroid if you have only one side. It can take many months for the other side to pick up the slack or go into spaz mode and go too much (hyper) as it adjusts, or it never recovers and you need meds.
Just as an aside, do you know what type of cancer it was? Papillary, follicular, etc? I am curious as you say they got it all. Many people need radiation therapy after to make sure ALL cells are gone.
To let you understand why I know these things, I have parathyroid damage from my thyroid surgery. I had one side taken out then went hypo, then months later had the other side out due to a form of pre-cancer Hurthle cell adenoma. No radiation is needed in that case.
The sinus issues are often totally unrelated to thyroid issues. It's difficult for most to realise that not everything is thyroid related however, a lot it is!
You may have a tendency to them and need a stronger antibiotic to clear it up.
Your FT3 is a tad low and no doubt you will feel cruddy on that level. However I would still give the remaining side a chance to kick in per-se and see how you go.
I have extremely low FT3 and have for nearly 5 years since my remaining side was taken out. So maybe give it a few months (or what you feel is a reasonable time frame) and see how you feel and get retested.
Oh! BTW if your calcium levels are off this can affect thyroid levels so maybe by getting the parathyroid checked correctly and treated you may well find the levels start to rise of their own accord, which does happen.
Cheers!
Here is the link to a fantastic site...you will have to copy and paste into your browser to look at it. http://parathyroid.com/diagnosis.htm
You can have skewiff levels for quite sometime of thyroid if you have only one side. It can take many months for the other side to pick up the slack or go into spaz mode and go too much (hyper) as it adjusts, or it never recovers and you need meds.
Just as an aside, do you know what type of cancer it was? Papillary, follicular, etc? I am curious as you say they got it all. Many people need radiation therapy after to make sure ALL cells are gone.
To let you understand why I know these things, I have parathyroid damage from my thyroid surgery. I had one side taken out then went hypo, then months later had the other side out due to a form of pre-cancer Hurthle cell adenoma. No radiation is needed in that case.
The sinus issues are often totally unrelated to thyroid issues. It's difficult for most to realise that not everything is thyroid related however, a lot it is!
You may have a tendency to them and need a stronger antibiotic to clear it up.
Your FT3 is a tad low and no doubt you will feel cruddy on that level. However I would still give the remaining side a chance to kick in per-se and see how you go.
I have extremely low FT3 and have for nearly 5 years since my remaining side was taken out. So maybe give it a few months (or what you feel is a reasonable time frame) and see how you feel and get retested.
Oh! BTW if your calcium levels are off this can affect thyroid levels so maybe by getting the parathyroid checked correctly and treated you may well find the levels start to rise of their own accord, which does happen.
Cheers!
Here are my new labs
TSH 1.44
FT4 1.08 ref. range 0.7-1.48
FT3 2.8 ref. range 2.3-4.2
I see my Endro tomorrow. I KNOW things are off. I'm freezing almost always. Headache, fatigue, short of breath, weak.... I seem to have it all.
I just hope my doctor listens to my symptoms and doesn't only go by the "within range" attitude.
My question is what is the best medication. I seem to have reactions to a lot of things. I have never been on thyroid meds and don't know anything about them.
TSH 1.44
FT4 1.08 ref. range 0.7-1.48
FT3 2.8 ref. range 2.3-4.2
I see my Endro tomorrow. I KNOW things are off. I'm freezing almost always. Headache, fatigue, short of breath, weak.... I seem to have it all.
I just hope my doctor listens to my symptoms and doesn't only go by the "within range" attitude.
My question is what is the best medication. I seem to have reactions to a lot of things. I have never been on thyroid meds and don't know anything about them.
For help with your Endo appt. tomorrow, I think you can be better prepared to get what you need if you read through this info written by a good thyroid doctor.
http://www.hormonerestoration.com/Thyroid.html
Most doctors only want to prescribe T4 meds. I have to agree that T4 meds are easier to administer. They are much slower acting than meds containing T3. However, Free T3 is the biologically active thyroid hormone that largely regulates metabolism and many other body functions. The T4 med has to be converted to T34, to perform the necessary biological activity. Hypo patients taking T4 meds frequently find that their body does not adequately convert the T4 to T3, resulting in a need to drive Free T4 ever higher in its range, in an attempt to relieve symptoms through conversion of the excess T4 to T3.
Based on my own experience with this, and knowing what I have learned, If I were in your shoes, I would ask to be put on a NDT type med, such as Armour Thyroid or Nature-Thyroid. Yes, I know that not everyone will agree with this. It is just my own preference, based on long years of taking 200 mcg of T4 med and still having hypo symptoms until I switched to NDT med.
This recommendation may well be academic anyway. The number of Endos that will prescribe NDT type thyroid meds seems to be few and far between. He will tell you there is no benefit from T3 meds. That is true only when there is no problem converting the T4 to T3.
Good luck to you tomorrow.
http://www.hormonerestoration.com/Thyroid.html
Most doctors only want to prescribe T4 meds. I have to agree that T4 meds are easier to administer. They are much slower acting than meds containing T3. However, Free T3 is the biologically active thyroid hormone that largely regulates metabolism and many other body functions. The T4 med has to be converted to T34, to perform the necessary biological activity. Hypo patients taking T4 meds frequently find that their body does not adequately convert the T4 to T3, resulting in a need to drive Free T4 ever higher in its range, in an attempt to relieve symptoms through conversion of the excess T4 to T3.
Based on my own experience with this, and knowing what I have learned, If I were in your shoes, I would ask to be put on a NDT type med, such as Armour Thyroid or Nature-Thyroid. Yes, I know that not everyone will agree with this. It is just my own preference, based on long years of taking 200 mcg of T4 med and still having hypo symptoms until I switched to NDT med.
This recommendation may well be academic anyway. The number of Endos that will prescribe NDT type thyroid meds seems to be few and far between. He will tell you there is no benefit from T3 meds. That is true only when there is no problem converting the T4 to T3.
Good luck to you tomorrow.
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