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RAI treatment affects on other inflammatory diseases?
I have RAI treatment on Tuesday. I don't know what to expect as far as how it will affect my body. I have Eosinophilic Esophagitis on top of this which is an autoimmune disorder that causes my esophagus to become inflamed with eosinophils. Now, my question is this: for people who have diseases that are similar or kindof similar (any inflammatory diseases) and have had RAI treatment, did the radiation make you hurt where you were inflamed? I'm very afraid of spending alot of time in pain because no one knows how the RAI will treat my other disease. Any thoughts?
Just my personal experience: it made my fibromyalgia go insane and kicked off arthritis in me. My doctor prescribed muscle relaxants, anti-inflammatories, and pain meds. You might want to let whomever your doctor is treating your inflammatory condition know about your RAI so you can get some preventative meds just in case you need them.
RAI can spread to other parts within your body. Not just concentrate on the area that is being distroyed.
If you have the weekend free you may want to check out RAI and the effects on the body. There are so many helpful searches I do not know which to indicate your exact situation. A google search under RAI would help. You then can narrow down your search by your questions.
After your search and if you have more questions, come back. Hopefully you will have a clear picture on what will be happening to you. On a positive note though - RAI can and IS beneficial to some patients. Please do not get the idea that you are a ginny pig in an experiment. Be open and look for the best solution to help you get better.
Good luck
If you have the weekend free you may want to check out RAI and the effects on the body. There are so many helpful searches I do not know which to indicate your exact situation. A google search under RAI would help. You then can narrow down your search by your questions.
After your search and if you have more questions, come back. Hopefully you will have a clear picture on what will be happening to you. On a positive note though - RAI can and IS beneficial to some patients. Please do not get the idea that you are a ginny pig in an experiment. Be open and look for the best solution to help you get better.
Good luck
I am clueless .. you can post on Dr. Lupo's board and if you can get your post thru he will have an answer for you .. here is the link: http://www.medhelp.org/forums/show/120
As far as my personal opinion, I don't know abut the actual rawness/pain factor but I have a very sneaky suspicion that the physical/emotional *stress* factor tends to exacberate autoimmune issues from going through all that you are going thru let alone the chemical reactions, etc., etc. But I'm just a thyroid person like yourself and base it on my own experience of passing a kidney stone 12 days post op thyroid surgery even though they had an IV in me the WHOLE TIME so cannot blame dehydration, and then 12hrs post op my secondary incision 6 weeks later to remove an infected cyst but there was so much stress because they didn't know if it was a Lipoma (cancer) at the time and was 1/4" above the thyroid incision .. 12hrs home and passed another kidney stone!!!
My daughter who had GB surgery 3 weeks ago is to be followed up with her GI on Feb 11 bcz upon admittance her CT Scan showed ilieum wall thickening that obliterated the appendix ?? They need to followup on it to r/o Crohn's, IBD, EE Gastroenteritis, etc., etc. but so far the blood work doesn't indicate it but they don't know. They are *hoping* it is just one of those things that appeared bcz she was so ill with the GB and it took 5 days to diagnose it was her GB and not the intestines causing her to be admitted bcz at the time she orig. had pain on the inflammed spot. Bottom line after surgery is that she is 95% symtpom free, no more reflux but left with constipation that they *think* is surgery related but need comprehensive GI workup to r/o the big stuff .. ?? scopes ?? she is only 17 and the GB was only functioning 5% and had anomolies since birth as well as chronic inflammation according to the biopsy report. They admitted her thinking it was Appendix at first. she has history of reactive arthritis and other inflammatory responses to her joints since age 10 but fully resolved.
She is severely allergic to latex, plums, nuts. Let's hope no EEO's are involved.
How did you get diagnosed?
Cheryl
As far as my personal opinion, I don't know abut the actual rawness/pain factor but I have a very sneaky suspicion that the physical/emotional *stress* factor tends to exacberate autoimmune issues from going through all that you are going thru let alone the chemical reactions, etc., etc. But I'm just a thyroid person like yourself and base it on my own experience of passing a kidney stone 12 days post op thyroid surgery even though they had an IV in me the WHOLE TIME so cannot blame dehydration, and then 12hrs post op my secondary incision 6 weeks later to remove an infected cyst but there was so much stress because they didn't know if it was a Lipoma (cancer) at the time and was 1/4" above the thyroid incision .. 12hrs home and passed another kidney stone!!!
My daughter who had GB surgery 3 weeks ago is to be followed up with her GI on Feb 11 bcz upon admittance her CT Scan showed ilieum wall thickening that obliterated the appendix ?? They need to followup on it to r/o Crohn's, IBD, EE Gastroenteritis, etc., etc. but so far the blood work doesn't indicate it but they don't know. They are *hoping* it is just one of those things that appeared bcz she was so ill with the GB and it took 5 days to diagnose it was her GB and not the intestines causing her to be admitted bcz at the time she orig. had pain on the inflammed spot. Bottom line after surgery is that she is 95% symtpom free, no more reflux but left with constipation that they *think* is surgery related but need comprehensive GI workup to r/o the big stuff .. ?? scopes ?? she is only 17 and the GB was only functioning 5% and had anomolies since birth as well as chronic inflammation according to the biopsy report. They admitted her thinking it was Appendix at first. she has history of reactive arthritis and other inflammatory responses to her joints since age 10 but fully resolved.
She is severely allergic to latex, plums, nuts. Let's hope no EEO's are involved.
How did you get diagnosed?
Cheryl
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