Aa
Somatoform disorder
2001 November - inflammation in the thyroid gland
TSH (Thyroid-stimulating hormone) 0,00↓ mU/l [0,1-4]
T4 (Thyroxine) 135 nmol/l [60-140]
T3 (Triiodothyronine) 3,30↑ nmol/l [1,10-2,50]
No treatment because the thyroid picture showed normal activity
2004 March - inflammation in the thyroid gland
TSH (Thyroid-stimulating hormone) 0,007↓ mU/l [0,1-4]
T4 (Thyroxine) 120 nmol/l [60-140]
T3 (Triiodothyronine) 2,61↑ nmol/l [1,10-2,50]
T3-test 1,32↑ working unit/l [0,75-1,25]
No treatment because the thyroid picture showed normal activity.
2004 October – Tumour in the right side of the pituitary gland 6x6x5 millimetre
MRI-scans shows following:
30/10 2004 Pituitary gland tumour size 6x6x5 millimetre
06/12 2005 nothing abnorm
16/06 2006 Pituitary gland tumour size 6x6x5 millimetre
17/12 2008 nothing abnorm
I don’t know if the tumour is there or not?
2005 November - inflammation in the thyroid gland
TSH (Thyroid-stimulating hormone) 0,244↓ mU/l [0,4-4]
T4 (Thyroxine) 123 nmol/l [60-140]
T3 (Triiodothyronine) 2,2 nmol/l [1,0-2,6]
T3-test 1,31↑ working unit/l [0,80-1,25]
No treatment because the thyroid picture showed normal activity.
Current:
I have milk secretion from my breats and sometimes too high prolactin. I wake up in the morning and my mind can’t relax and my body is completely weakened.
I have to take some medicin to relax my mind. Nervemedicine does not work on me, so I have to take a half sleeping pill everytime. I wake up in the middle of the night and is completely clear in my head but I can’t open my eyes or move my body. My mind is going so fast that I have difficulties speaking some words. I lay in bed 23 hours a day and nobody has been able to help me in 7,5 year.
Do any of you know a similar story or can refer me to somebody who can help me? I don’t know that to do and it is no life living in bed all day.
They have now diagnosed me with somatoform disorder?
Kind Regards
TSH (Thyroid-stimulating hormone) 0,00↓ mU/l [0,1-4]
T4 (Thyroxine) 135 nmol/l [60-140]
T3 (Triiodothyronine) 3,30↑ nmol/l [1,10-2,50]
No treatment because the thyroid picture showed normal activity
2004 March - inflammation in the thyroid gland
TSH (Thyroid-stimulating hormone) 0,007↓ mU/l [0,1-4]
T4 (Thyroxine) 120 nmol/l [60-140]
T3 (Triiodothyronine) 2,61↑ nmol/l [1,10-2,50]
T3-test 1,32↑ working unit/l [0,75-1,25]
No treatment because the thyroid picture showed normal activity.
2004 October – Tumour in the right side of the pituitary gland 6x6x5 millimetre
MRI-scans shows following:
30/10 2004 Pituitary gland tumour size 6x6x5 millimetre
06/12 2005 nothing abnorm
16/06 2006 Pituitary gland tumour size 6x6x5 millimetre
17/12 2008 nothing abnorm
I don’t know if the tumour is there or not?
2005 November - inflammation in the thyroid gland
TSH (Thyroid-stimulating hormone) 0,244↓ mU/l [0,4-4]
T4 (Thyroxine) 123 nmol/l [60-140]
T3 (Triiodothyronine) 2,2 nmol/l [1,0-2,6]
T3-test 1,31↑ working unit/l [0,80-1,25]
No treatment because the thyroid picture showed normal activity.
Current:
I have milk secretion from my breats and sometimes too high prolactin. I wake up in the morning and my mind can’t relax and my body is completely weakened.
I have to take some medicin to relax my mind. Nervemedicine does not work on me, so I have to take a half sleeping pill everytime. I wake up in the middle of the night and is completely clear in my head but I can’t open my eyes or move my body. My mind is going so fast that I have difficulties speaking some words. I lay in bed 23 hours a day and nobody has been able to help me in 7,5 year.
Do any of you know a similar story or can refer me to somebody who can help me? I don’t know that to do and it is no life living in bed all day.
They have now diagnosed me with somatoform disorder?
Kind Regards
I have wrote the MRI-center at Skejby Hospital. It may be possible to get it done there but it will probably take some time.
Are there mental symptoms if you have Prolactaemia?
Are there mental symptoms if you have Prolactaemia?
Yes, I think surgery is the only way to go at this stage. It is a fairly simple procedure. They go up through the nasal cavity into the pituitary gland and remove the tumour. Amazing how modern surgery can do that!
I would still insist on going to the Skejby Hospital.
The Bisperidin will only help short term.
Good luck!
I would still insist on going to the Skejby Hospital.
The Bisperidin will only help short term.
Good luck!
It makes sense. Skejby Hospital is the newest and the biggest hospital in Denmark. Frederiksberg Hospital and Herlev Hospital are very old.
I'am beginning to have problems with Bisperiden because it is causing further anxiety. I need dopaminagonist, and they all have serious side ef. Maybe surgery is the only way to get well?
I'am beginning to have problems with Bisperiden because it is causing further anxiety. I need dopaminagonist, and they all have serious side ef. Maybe surgery is the only way to get well?
I think you will find the tumour IS there. Different hospitals don't use the same equipment and you might find the MRI used in Frederiksberg Hospital may be older. The newer ones are far superior in picking up any abnormalities.
The fact the tests were done at different times by two different MRI machines with the same outcome each time, shows me that there is something definitely there.
Is it possible to be referred back to Skejby Hospital? I understand you are on public health and that makes it difficult, but perhaps if you talk to the hospital directly and ask the question of being able to see one of their treating doctors.
As smilerdbeb said anxiety may be relieved after you get your thyroid levels right. I think though that having the pituitary tumour this might be giving you anxiety as well.
Are you able to go to a new doctor? I really think you need to bite the bullet and demand to have a new MRI done. I know it is difficult but even here in Australia we have difficulty with public health system. You really have to force the issue, or have someone go with you, a male friend who can be your spokesperson.
The fact the tests were done at different times by two different MRI machines with the same outcome each time, shows me that there is something definitely there.
Is it possible to be referred back to Skejby Hospital? I understand you are on public health and that makes it difficult, but perhaps if you talk to the hospital directly and ask the question of being able to see one of their treating doctors.
As smilerdbeb said anxiety may be relieved after you get your thyroid levels right. I think though that having the pituitary tumour this might be giving you anxiety as well.
Are you able to go to a new doctor? I really think you need to bite the bullet and demand to have a new MRI done. I know it is difficult but even here in Australia we have difficulty with public health system. You really have to force the issue, or have someone go with you, a male friend who can be your spokesperson.
I did write my endo and she said because the tumor was not there in 2007 the MRI this year would not be necessary.
It is possible for me to be MRI-scan at a private hospital but i will cost me 7000 danish kr (1400 USD).
30/10 2004 Pituitary gland tumour size 6x6x5 millimetre SKEJBY HOSPITAL
06/12 2005 nothing abnorm HERLEV HOSPITAL
16/06 2006 Pituitary gland tumour size 6x6x5 millimetre SKEJBY HOSPITAL
17/12 2008 nothing abnorm FREDERIKSBERG HOSPITAL
As you can see the tumor is there when I got MRI scan in the west of Denmark and when I got scan in the east of Denmark it is not there?
Do you think I should order the MRI at the private hospital?
Bisperiden has really help, but I don't understand why a can't do anything physical?
It is possible for me to be MRI-scan at a private hospital but i will cost me 7000 danish kr (1400 USD).
30/10 2004 Pituitary gland tumour size 6x6x5 millimetre SKEJBY HOSPITAL
06/12 2005 nothing abnorm HERLEV HOSPITAL
16/06 2006 Pituitary gland tumour size 6x6x5 millimetre SKEJBY HOSPITAL
17/12 2008 nothing abnorm FREDERIKSBERG HOSPITAL
As you can see the tumor is there when I got MRI scan in the west of Denmark and when I got scan in the east of Denmark it is not there?
Do you think I should order the MRI at the private hospital?
Bisperiden has really help, but I don't understand why a can't do anything physical?
All medications are addictive...simple as that.
The secret is not staying on them too long and SLOWLY weaning off them.
I found my anxiety settled once the thyroid was treated and I think yours will settle too once you get the tumour under control and the thyroid too.
I was on Xanax for a long time but slowly over time...weaned off them with directions from my Doc, changing the dose every 2 weeks.
I think that you need to get your other health orders fixed first for the anxiety to start to subside.
The secret is not staying on them too long and SLOWLY weaning off them.
I found my anxiety settled once the thyroid was treated and I think yours will settle too once you get the tumour under control and the thyroid too.
I was on Xanax for a long time but slowly over time...weaned off them with directions from my Doc, changing the dose every 2 weeks.
I think that you need to get your other health orders fixed first for the anxiety to start to subside.
Do you know any anxiety drugs without having sideef as nausea?
I only know SSRI and buspiron and a cant tolerate them. I need to find one so that I dont have to take addictive medicine.
I only know SSRI and buspiron and a cant tolerate them. I need to find one so that I dont have to take addictive medicine.
To to make diagnosis of autoimmune thyroiditis , a blood test is done.
You dont need a biopsy!
Your Doc is talking utter Bull cr@p and psych meds are not going to fix the problem of the tumour which will continue to stay there all the while you have this Doc.
Get another one if you can.
Readheads posting is absolutely correct.
Pity to hear you can order those kits in Denmark without a Doctors prescription. It was just a thought on my side as I have heard of them but knew very little about them .
You dont need a biopsy!
Your Doc is talking utter Bull cr@p and psych meds are not going to fix the problem of the tumour which will continue to stay there all the while you have this Doc.
Get another one if you can.
Readheads posting is absolutely correct.
Pity to hear you can order those kits in Denmark without a Doctors prescription. It was just a thought on my side as I have heard of them but knew very little about them .
I can ask my endo to do the test in august.
I know that some of these drugs are psychiatric drugs. Nothing has happened to me. Good childhood and so. But i think iam suffering with anxiety. I got that when a had hyperthyroidism and normally you treat this with SSRI-med or buspiron but they all have sideef as nausea so i cant eat. i did try one of them i 6 weeks to see if it got away but it didnt and i lost 6 kg. If you take 3,75 mg zopiclon it is reducing anxiety
I know that some of these drugs are psychiatric drugs. Nothing has happened to me. Good childhood and so. But i think iam suffering with anxiety. I got that when a had hyperthyroidism and normally you treat this with SSRI-med or buspiron but they all have sideef as nausea so i cant eat. i did try one of them i 6 weeks to see if it got away but it didnt and i lost 6 kg. If you take 3,75 mg zopiclon it is reducing anxiety
As the man told me:
biopsy is used to make diagnosis of autoimmune thyroiditis
When you are taken a muscle-biopsy you open up and take some pieces of muscel out to analyse. But are you saying the biopsi can be done with blood?
biopsy is used to make diagnosis of autoimmune thyroiditis
When you are taken a muscle-biopsy you open up and take some pieces of muscel out to analyse. But are you saying the biopsi can be done with blood?
Those kits you mention Deb are not able to be ordered without a doctor's authorisation. Same as here in Australia. USA is different.
Smilerdeb has quoted you some information from the internet.
I think you are not as hyperthyroid as you were informed. I think you have a Prolactaemia tumour. You can ask for a Pituitary hormone blood test. It is very easy to fix.
Go to a new endocrinologist. The drugs you have been taking are mostly psychiatric drugs. I wonder if you had any trauma in your childhood?
Smilerdeb has quoted you some information from the internet.
I think you are not as hyperthyroid as you were informed. I think you have a Prolactaemia tumour. You can ask for a Pituitary hormone blood test. It is very easy to fix.
Go to a new endocrinologist. The drugs you have been taking are mostly psychiatric drugs. I wonder if you had any trauma in your childhood?
You seem to know your stuff when it comes to the medical side of things and its sad that the medical profession there in Denmark is the way it is.
The tests you mentioned are the right tests to get and these can all be done in one blood test.
Getting a Docotr to write out that lab report for bloods to be drawn are another thing...so it seems.
Are there any kits online like they have in the USA?
I am sure someone else can answer that one for you from the USA.
I do know that blood tests can be done and ordered online but not sure of where or how.
All I know is that the kits are ordered, the tests sent out to you and you return them back to the Laboratory.
Thats about all I can tell you.
Hopefully someone else here can come up with more information on it.
I just wish I could help you more.
The tests you mentioned are the right tests to get and these can all be done in one blood test.
Getting a Docotr to write out that lab report for bloods to be drawn are another thing...so it seems.
Are there any kits online like they have in the USA?
I am sure someone else can answer that one for you from the USA.
I do know that blood tests can be done and ordered online but not sure of where or how.
All I know is that the kits are ordered, the tests sent out to you and you return them back to the Laboratory.
Thats about all I can tell you.
Hopefully someone else here can come up with more information on it.
I just wish I could help you more.
My prolactin was to high in november last year and I had white milk secretion from both breats. Now After doing Bisperiden since february there is almost non left on the left side og a little bit see-through on the right side.
He did say that they can not use 4 year old data but I cant do anything.
As they where neg he wrote:
about 10 % of patients with either of condition have normal antibodies, so biopsy is used to make diagnosis of autoimmune thyroiditis
I dont think I can get a biopsy.
MY TSH was 3 [0,4-4] for a month ago so I stoped taken Thiamazol. In 6 month it is probably between 0,4-1 again. So I was thinking doing Thiamazol for 6 month and then off the medicine og on again.
As they where neg he wrote:
about 10 % of patients with either of condition have normal antibodies, so biopsy is used to make diagnosis of autoimmune thyroiditis
I dont think I can get a biopsy.
MY TSH was 3 [0,4-4] for a month ago so I stoped taken Thiamazol. In 6 month it is probably between 0,4-1 again. So I was thinking doing Thiamazol for 6 month and then off the medicine og on again.
get tests for:
TSH
Free T3
Free T4
Calcitonin
TPO
Tg
TRA (TSI)
If TPO is high it is Chronic autoimmune thyroiditis
if TSI is high it is Grave's disease
If both are high you have co-existing Chronic autoimmune thyroiditis AND Grave's disease
every year. I did write this to my endocrinologist and she said it would not be necessary and the test was too expensive.
TSH
Free T3
Free T4
Calcitonin
TPO
Tg
TRA (TSI)
If TPO is high it is Chronic autoimmune thyroiditis
if TSI is high it is Grave's disease
If both are high you have co-existing Chronic autoimmune thyroiditis AND Grave's disease
every year. I did write this to my endocrinologist and she said it would not be necessary and the test was too expensive.
As I said earlier we have a public system. Noone can get by before the time they are giving unless they are dying.
They do not take me serious because they are taught in school that it donst matter.
I only know one person in Denmark with a microprolactinomas size 2 mm and I know they sendt her to psychiatric treatment and I have also been there. They where giving me anti-psy medicine and by body turned into a stiff robot and my mind could not relax at all. Bisperiden is the best medicine a have found by now. But i do not know how many to take. But I need to have a talk with the endocrinologist in august.
The public health system in Denmark is pure bureaucracy. They do not have enough doctors, nurses and so. When you have your can.med from university you get udgraded even though you are not qualifed for the job. When I was in psychiatric treatment they had a 26 year old girl to do treatment for section. That is crazy.
My thyroid anti-bodies are neg. But I have been talking to a boy inhere and he said I should be tested for:
They do not take me serious because they are taught in school that it donst matter.
I only know one person in Denmark with a microprolactinomas size 2 mm and I know they sendt her to psychiatric treatment and I have also been there. They where giving me anti-psy medicine and by body turned into a stiff robot and my mind could not relax at all. Bisperiden is the best medicine a have found by now. But i do not know how many to take. But I need to have a talk with the endocrinologist in august.
The public health system in Denmark is pure bureaucracy. They do not have enough doctors, nurses and so. When you have your can.med from university you get udgraded even though you are not qualifed for the job. When I was in psychiatric treatment they had a 26 year old girl to do treatment for section. That is crazy.
My thyroid anti-bodies are neg. But I have been talking to a boy inhere and he said I should be tested for:
The pituitary tumour can cause all sorts of upsets with the levels but as you are hyper..have you been tested for Graves?
This would explain the very low tsh.
I have read your posting many times, going over and over it in my head with 'the numbers'.
You have a pituitary tumour and symptoms from that will not decrease until it starts to shrink.
I also think you may have Graves Disease and you definately need testing for the Graves antibodies.
I am no Doctor but think you should demand answers now.
I remember when I was going through Graves and Hyperthyroidism and I felt sad that I got more answers from this forum than from my Endo!
That just shows just how uneducated the Endo's in the world today are.
I feel your pain as I know hyperthyroidism/hypothyroidism is so debilitating.
Sorry but if it was me...I would be demanding answers NOW and anyone who got in my way (medical profession) I would tell them to go to he\\.
It is your body and we are the best advocates and know our bodies better than anyone when we are sick.
iambellaluna has given you a classic example that you can be fixed via meds for the tumour. If you cant tolerate Dostinex then ask your Doctor if you are able to have a go at Bromocriptine.
Until the tumour shrinks, you will continue to have problems with the thyroid.
I am of the opinion that if one medication cant be taken or cant fix something then you look for another , and another, and another until you find that 'happy medium'.
I am no hero when it comes to sickness but I refuse to let it get the better of me too.
And I certainly dont believe you suffer from....Somatoform disorder.
This would explain the very low tsh.
I have read your posting many times, going over and over it in my head with 'the numbers'.
You have a pituitary tumour and symptoms from that will not decrease until it starts to shrink.
I also think you may have Graves Disease and you definately need testing for the Graves antibodies.
I am no Doctor but think you should demand answers now.
I remember when I was going through Graves and Hyperthyroidism and I felt sad that I got more answers from this forum than from my Endo!
That just shows just how uneducated the Endo's in the world today are.
I feel your pain as I know hyperthyroidism/hypothyroidism is so debilitating.
Sorry but if it was me...I would be demanding answers NOW and anyone who got in my way (medical profession) I would tell them to go to he\\.
It is your body and we are the best advocates and know our bodies better than anyone when we are sick.
iambellaluna has given you a classic example that you can be fixed via meds for the tumour. If you cant tolerate Dostinex then ask your Doctor if you are able to have a go at Bromocriptine.
Until the tumour shrinks, you will continue to have problems with the thyroid.
I am of the opinion that if one medication cant be taken or cant fix something then you look for another , and another, and another until you find that 'happy medium'.
I am no hero when it comes to sickness but I refuse to let it get the better of me too.
And I certainly dont believe you suffer from....Somatoform disorder.
Yes her knowledge is very good.
I live in Denmark and there are about 5 mio people living here so it is very rare to have a pituitary tumor. I think there are about 50 diagnosed people every year and 30% is a prolacting one, 25% is non-functioning. So about 10-13 people with the same type.
I live in Denmark and there are about 5 mio people living here so it is very rare to have a pituitary tumor. I think there are about 50 diagnosed people every year and 30% is a prolacting one, 25% is non-functioning. So about 10-13 people with the same type.
This is totally random & I'm only commenting on this thread because I know someone who had one of the same symptoms (I don't know much about pituitary's except two family friends with pituitary tumors).
Anyways, the fact your were saying that you're lactating is the same thing that happened to my best friend's mom. She was in her early 40's at the time and lactating. Upon going to the doctor and many tests later, it ended up being a pituitary gland tumor.
I know she didn't have surgery for the tumor, so maybe they prescribed the route Smilerdeb was talking about. I do know she doesn't suffer from that specific symptom anymore (among others). JMHO, but I'd say investigate the pituitary more.
Hope everything works out for you!
Anyways, the fact your were saying that you're lactating is the same thing that happened to my best friend's mom. She was in her early 40's at the time and lactating. Upon going to the doctor and many tests later, it ended up being a pituitary gland tumor.
I know she didn't have surgery for the tumor, so maybe they prescribed the route Smilerdeb was talking about. I do know she doesn't suffer from that specific symptom anymore (among others). JMHO, but I'd say investigate the pituitary more.
Hope everything works out for you!
2001 November - inflammation in the thyroid gland
TSH (Thyroid-stimulating hormone) 0,00↓ mU/l [0,1-4]
2004 March - inflammation in the thyroid gland
TSH (Thyroid-stimulating hormone) 0,007↓ mU/l [0,1-4]
2005 November - inflammation in the thyroid gland
TSH (Thyroid-stimulating hormone) 0,244↓ mU/l [0,4-4]
The TSH has been too low 3 times as you can see so my metabolisme has been to high 3 times and they call it hyperthyroidism. I dont know what is causing it but iam getting Thiamazol to decrease it for a period and then off medication and the "hyperthyroidism" is back again?
TSH (Thyroid-stimulating hormone) 0,00↓ mU/l [0,1-4]
2004 March - inflammation in the thyroid gland
TSH (Thyroid-stimulating hormone) 0,007↓ mU/l [0,1-4]
2005 November - inflammation in the thyroid gland
TSH (Thyroid-stimulating hormone) 0,244↓ mU/l [0,4-4]
The TSH has been too low 3 times as you can see so my metabolisme has been to high 3 times and they call it hyperthyroidism. I dont know what is causing it but iam getting Thiamazol to decrease it for a period and then off medication and the "hyperthyroidism" is back again?
Sorry, but I dont' understand what you mean about your metabolisme in your blood samples. Can you clarify this?
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