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More Hypothyroid Hashimoto's general questions PART 2
Ok gang I just got back from the Doctor to discuss my latest problems and got into a big debate about a couple of things with him. He is my Internist, pretty bright guy but I was getting frustrated. He does know some endocronology and I am seeing a better ENDO on April 20. I also had a MRI of my brain today. Here is what id like your input on.
1. He says that in all his years he has never heard of ear ringing in hypothyroid patients, yet people on the internet typically are the ones that have more extreme problems. He "thinks" the ringing in the ears is not related. Tired and beat down he believes. Ringing in the ears he does not.
2. It is impossible that one minute I feel fairly decent, and then the next minute im overtaken with shaking, tiredness, wanting to crawl up in a ball and die feeling from the thyroid because the thyroid does not just come and go, it pumps out juice constantly. Do you have bouts where your pulse goes up, you get tired and foggy, or do you steadily feel like crap 100% of the time?
3. There is no way this is all being caused by hypothyroidism. It is first anxiety, secondly thyroid?
4. Take the .025 for 6 weeks before increasing (i believe this).
1. He says that in all his years he has never heard of ear ringing in hypothyroid patients, yet people on the internet typically are the ones that have more extreme problems. He "thinks" the ringing in the ears is not related. Tired and beat down he believes. Ringing in the ears he does not.
2. It is impossible that one minute I feel fairly decent, and then the next minute im overtaken with shaking, tiredness, wanting to crawl up in a ball and die feeling from the thyroid because the thyroid does not just come and go, it pumps out juice constantly. Do you have bouts where your pulse goes up, you get tired and foggy, or do you steadily feel like crap 100% of the time?
3. There is no way this is all being caused by hypothyroidism. It is first anxiety, secondly thyroid?
4. Take the .025 for 6 weeks before increasing (i believe this).
Thanks for the tips. Today was weird. I felt like crap until about 2 pm. Tired, Dizzy, shaky, irritable. Then about 2:30 I felt great. Feel fine, never felt better in my life. Could this be a shift in TSH levels? what causes this? Also had my gallbladder out so im curious to know if its from that.
Still have ringing in my ears.
Still have ringing in my ears.
Greetings to all
Bruce - like you I also become very shaky - now much better since I found a wonderful DR online in the USA and I live in Hong Kong. The advice he gave me has been of great value: Have your T4 as you get out of bed (for me about 6:00am) within 10 to 20 minutes after waking up in the morning - eat a protein - like a boiled egg or a small piece of meat. together with a carbohydrate. At times I just have half a rice cake with half of the boiled egg Only then take half of your T3 meds if you are on T3. This helps to stabilise your sugar levels and you will not be as shaky any longer. I then have another small meal around 7am - perhaps the other half of the egg and some gluten free pancakes or bread - note not something that contains soya, buckwheat, millet - not good to be used when Hashi/hypo and I react to chickpea flower. At around 11am I have another snack nuts and perhaps half and Avocado and then take the rest of my T3. I feel better snacking the whole day rather than having one or two big meals, I also add a tablespoon of Coconut oil to all my snacks and meals as the oil help the body to transport the carbohydrates without having the sugar peaks that leave us shaky. I also make use of Chia seeds that I soak in water overnight and add that to my meals as well. Chia seeds stabalises sugar levels as well. I do not use Iodine but have liquid based Iodine in the house. I use little jars that I fill about half way with the Iodine and place them all over the house in areas where they can not be seen - the Iodine absorbs moldy smells and ensures that you house is a healthy environment. At times I do seem to get a slight rash in my neck just at the hairline - when this happens I paint a small amount of the liquid Iodine onto the sport and it clears within about a day or two.
something I learnt from the Philippines. Was told that we have a lymphatic gland that drains into that area and at times it manifests as a rash as the body is trying to healt itself from any toxins contained in the lymphatic system. The Iodine then gets absorbed and deals with the issue. Other than that I do not use Iodine at all.
Good luck and hope you feel better soon
To all the others - this forum is wonderful and we learn sooooo much from one another.
Bruce - like you I also become very shaky - now much better since I found a wonderful DR online in the USA and I live in Hong Kong. The advice he gave me has been of great value: Have your T4 as you get out of bed (for me about 6:00am) within 10 to 20 minutes after waking up in the morning - eat a protein - like a boiled egg or a small piece of meat. together with a carbohydrate. At times I just have half a rice cake with half of the boiled egg Only then take half of your T3 meds if you are on T3. This helps to stabilise your sugar levels and you will not be as shaky any longer. I then have another small meal around 7am - perhaps the other half of the egg and some gluten free pancakes or bread - note not something that contains soya, buckwheat, millet - not good to be used when Hashi/hypo and I react to chickpea flower. At around 11am I have another snack nuts and perhaps half and Avocado and then take the rest of my T3. I feel better snacking the whole day rather than having one or two big meals, I also add a tablespoon of Coconut oil to all my snacks and meals as the oil help the body to transport the carbohydrates without having the sugar peaks that leave us shaky. I also make use of Chia seeds that I soak in water overnight and add that to my meals as well. Chia seeds stabalises sugar levels as well. I do not use Iodine but have liquid based Iodine in the house. I use little jars that I fill about half way with the Iodine and place them all over the house in areas where they can not be seen - the Iodine absorbs moldy smells and ensures that you house is a healthy environment. At times I do seem to get a slight rash in my neck just at the hairline - when this happens I paint a small amount of the liquid Iodine onto the sport and it clears within about a day or two.
something I learnt from the Philippines. Was told that we have a lymphatic gland that drains into that area and at times it manifests as a rash as the body is trying to healt itself from any toxins contained in the lymphatic system. The Iodine then gets absorbed and deals with the issue. Other than that I do not use Iodine at all.
Good luck and hope you feel better soon
To all the others - this forum is wonderful and we learn sooooo much from one another.
Wow!!! Reading these posts is amazing!!! I was diagnosed with 2 thyroid nodules 1 wk. ago but the Drs. said my thyroid is functioning fine because my TSH is only 4.57, so my symptoms must be in my head or early menopause!!! I AM NOT CRAZY!!! (well, maybe I am but my symptoms are NOT just a manifestation of my twisted mind) HOORAY!!!!
I have been diagnosed with Hashi's since february of this year, however now i look back the symptoms started at least a couple of years ago. I'm 24yrs old and have a strong family history of hashimotos and thyroid disease. I have a mulit-nodular goitre (and my endo told me that it may just go away and we can monitor it for a few years!!), however after reading alot of info from here and other sources i pushed to be commenced on thyroxine. I also seen a surgeon, who recommended a TT due to the hashi's, and that eventually my thyroid will die anyway, so why not get it over and done with!!? I'm booked in for surgery in August this year, and I can't wait!
Like you Bruce - I am sick of the mood swings, the lethargy, not feeling like me, aches and pains, no energy, weight gain and most of all some people just not understanding what I'm going through. Recently I have started to feel a choking sensation all the time, and had nightmares about choking/drowning and waking up gasping for breath. I just can't wait for these symptoms to leave!
Anyway this community and the other thyroid posting boards have been fantastic, at least I know I am not alone!
Catherine
Like you Bruce - I am sick of the mood swings, the lethargy, not feeling like me, aches and pains, no energy, weight gain and most of all some people just not understanding what I'm going through. Recently I have started to feel a choking sensation all the time, and had nightmares about choking/drowning and waking up gasping for breath. I just can't wait for these symptoms to leave!
Anyway this community and the other thyroid posting boards have been fantastic, at least I know I am not alone!
Catherine
I believe that it's different for everyone...I had a TT in Dec and my levels are still in hypo mode and i have energy in the morning through the afternoon and then the rest is history...literally. Lots of times my body forces me to retire for the evening but i do fight the exhaustion at times, just to go and get a workout in the gym but the next morning i'm drained. I have soooo many issues that i don't even question because i know that it from the thyroid issue. It is very hard for me to concentrate on one particular thing for a long period of time. I suffereed from Anxiety long ago and recovered years ago...however, since i've had the surgery...Anxiety is back but thank god i am not on any meds. No one can tell me that this thyroid issue did not bring it on because it did.....
Anyway, I pray that you feel better soon because i know first hand what you are going through.
Anyway, I pray that you feel better soon because i know first hand what you are going through.
.025
Also this is weird. I take my med at 6 am, wake up at 730, have breakfast at 830. Typically feel like death until about 1, then from 1-9 feel much better,,,,,, then it starts all over.
Also this is weird. I take my med at 6 am, wake up at 730, have breakfast at 830. Typically feel like death until about 1, then from 1-9 feel much better,,,,,, then it starts all over.
"When I was extremely hypo waiting for RAI (TSH 186) my ears were ringing so badly that I couldn't sleep. THE DAY after taking synthroid, my ringing stopped, as well as the tendonitis in my elbows I had had for at least 4 years. You can't tell me that they weren't related to my thyroid. "
How much med did they put you on?
How much med did they put you on?
can anyone explain how they feel with hashi/ hypo?
I feel nauseas, exhausted, beat down, shaky, hard to focus, lethargic.
You?
I feel nauseas, exhausted, beat down, shaky, hard to focus, lethargic.
You?
My results came back from my brain MRI today. There is nothing wrong with your brian, the blood flow to the brain, or the brains oxygen level. My ENT (who is a great ENT) told me that when he does blood tests for tinnitus (ringing in the ears) he ALWAYS includes the thyroid level in there. FInally someone admitted that HYPO could cause tinnitus!
I am on .025 levo. The Dr. told me not to increase yet, but I wish there was a way that I could as I think that is what is causing all this. Not enough levo!
I am on .025 levo. The Dr. told me not to increase yet, but I wish there was a way that I could as I think that is what is causing all this. Not enough levo!
When I was extremely hypo waiting for RAI (TSH 186) my ears were ringing so badly that I couldn't sleep. THE DAY after taking synthroid, my ringing stopped, as well as the tendonitis in my elbows I had had for at least 4 years. You can't tell me that they weren't related to my thyroid.
I agree with Dawn...I have had "on and off" problems with ears ringing, runny sensation for quite a few years.
Sometimes good...but was shocking with vertigo at xmas time (TSH was over 7).
I can only comment generally about past experiences after RAI and TT as I was originally Graves Disease and Hyper prior to that.
Dont take what the Doc/Endo says as 'gospel' always.
Some just dont have a clue.
Sometimes good...but was shocking with vertigo at xmas time (TSH was over 7).
I can only comment generally about past experiences after RAI and TT as I was originally Graves Disease and Hyper prior to that.
Dont take what the Doc/Endo says as 'gospel' always.
Some just dont have a clue.
I agree with Dawn...I have had "on and off" problems with ears ringing, runny sensation for quite a few years.
Sometimes good...but was shocking with vertigo at xmas time (TSH was over 7).
I can only comment generally about past experiences after RAI and TT as I was originally Graves Disease and Hyper prior to that.
Dont take what the Doc/Endo says as 'gospel' always.
Some just dont have a clue.
Sometimes good...but was shocking with vertigo at xmas time (TSH was over 7).
I can only comment generally about past experiences after RAI and TT as I was originally Graves Disease and Hyper prior to that.
Dont take what the Doc/Endo says as 'gospel' always.
Some just dont have a clue.
I have ringing in the ears constantly and was told it is a part of Hypo..Tinnitus goes along with it, Ive been on meds for 10 months and still have problems with my ears (tho not as bad now), so i do believe it is a Hypo symptom myself.
There are many possible causes of thyroid disease.
* iodine deficiency
* autoimmune disease
* an imbalance in T4 production
* nodules which have formed on the gland
* benign and malignant (cancer) tumours of the thyroid
It can just be hereditary, Thyroid disease tends to run in the family a lot..
There are many possible causes of thyroid disease.
* iodine deficiency
* autoimmune disease
* an imbalance in T4 production
* nodules which have formed on the gland
* benign and malignant (cancer) tumours of the thyroid
It can just be hereditary, Thyroid disease tends to run in the family a lot..
what does this mean:
"At least now I am nearing the end of the destruction phase and I am now having more goods days than bad....finally!"
how do you know this?
Also I wanted to ask 2 more questions in addition to above:
1. He says that in all his years he has never heard of ear ringing in hypothyroid patients, yet people on the internet typically are the ones that have more extreme problems. He "thinks" the ringing in the ears is not related. Tired and beat down he believes. Ringing in the ears he does not.
2. It is impossible that one minute I feel fairly decent, and then the next minute im overtaken with shaking, tiredness, wanting to crawl up in a ball and die feeling from the thyroid because the thyroid does not just come and go, it pumps out juice constantly. Do you have bouts where your pulse goes up, you get tired and foggy, or do you steadily feel like crap 100% of the time?
3. There is no way this is all being caused by hypothyroidism. It is first anxiety, secondly thyroid?
4. Take the .025 for 6 weeks before increasing (i believe this).
5. Am I one of the only guys here? Why me then?
6. How did I get this awful disease when im so healthy?
"At least now I am nearing the end of the destruction phase and I am now having more goods days than bad....finally!"
how do you know this?
Also I wanted to ask 2 more questions in addition to above:
1. He says that in all his years he has never heard of ear ringing in hypothyroid patients, yet people on the internet typically are the ones that have more extreme problems. He "thinks" the ringing in the ears is not related. Tired and beat down he believes. Ringing in the ears he does not.
2. It is impossible that one minute I feel fairly decent, and then the next minute im overtaken with shaking, tiredness, wanting to crawl up in a ball and die feeling from the thyroid because the thyroid does not just come and go, it pumps out juice constantly. Do you have bouts where your pulse goes up, you get tired and foggy, or do you steadily feel like crap 100% of the time?
3. There is no way this is all being caused by hypothyroidism. It is first anxiety, secondly thyroid?
4. Take the .025 for 6 weeks before increasing (i believe this).
5. Am I one of the only guys here? Why me then?
6. How did I get this awful disease when im so healthy?
Answer # 2) When your levels are off, you can change hourly and feel it too. Hot falshes / flushes / shaking / tiredness - no one has all of that all the time, but on / off per the hour he// yes!
Answer # 3) Anxiety can be by itself or brought on by hypothyroid, both are facts.
Look at it this way, your doctor is not hypothyroid and he most likely does not see that many thyroid patients (way more on this board), so how can he really know all the symptoms to begin with, other than the more obvious ones?
Don't let a Dr tell you it is first anxiety and second thyroid. Any GOOD thyroid Dr knows that anxiety can be caused by thyroid disease....also can cause depression.
Your number 2 point of feeling all those things? Very common among a lot of us. I myself have Hashimoto's which causes MANY aweful roller coaster symptoms. Over a long period of time of feeling good....feeling bad.....feeling good.....feeling bad.
At least now I am nearing the end of the destruction phase and I am now having more goods days than bad....finally!
My best advise to you is to find a good thyroid Dr who understands thyroid disease. I also agree with taking your increases slowly and carefully. Retest every 6 weeks and then increase from there.
Hang in there and know you are not alone and not crazy. :)
Your number 2 point of feeling all those things? Very common among a lot of us. I myself have Hashimoto's which causes MANY aweful roller coaster symptoms. Over a long period of time of feeling good....feeling bad.....feeling good.....feeling bad.
At least now I am nearing the end of the destruction phase and I am now having more goods days than bad....finally!
My best advise to you is to find a good thyroid Dr who understands thyroid disease. I also agree with taking your increases slowly and carefully. Retest every 6 weeks and then increase from there.
Hang in there and know you are not alone and not crazy. :)
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