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Tirosint, what are you doing to me?

I have been on Tirosint since November but I could not last longer than 10 days in a row on it.  Why? Because it gave me the following side effects:

- Intense sleepiness after taking it
- Hair falling out everywhere I go like it's supposed to be a sweater
- Anxiousness
- Heart beating rapidly
- Sweats and increased body odor
- Buzzing inside body like being really wired
- Teeth pain and dry mouth
- Anger issues
- Muscle pain
- No period

I was taking 50 mcg after being switched over from Synthroid 50 mcg. Not sure why my body reacts so weird to it but I couldn't even take it long enough  (6 weeks) to get a TSH, FT3, and FT4 test.   The sleeps and the hair loss was too much to deal with.

Anyone else have reviews with Tirosint?  I really was hoping that it would work for me but it was not the miracle treatment at all.

Thanks!

Can anybody else
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Avatar universal
Hi Barb. I saw a new Endo last week and she did order the T3 Free in my labs. I'm almost at the 4 week mark of Tirosint. My hair is worse than ever. Here are my labs:
TSH .70 range (.40-4.50)
T4 FREE 1.2 range (0.8-1.8)
T3 FREE 3.1 range (2.3-4.2)

Let me know what your thoughts are. Thanks for all your help. It's much appreciated.
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
Your dose of Armour was basically nothing, so I can see why you didn't feel well on it... we can let that go by the wayside, because you aren't taking that anymore.  

You're doing the Tirosint now, and while the labs weren't anything I'd call "good", you hadn't been on it nearly long enough for it to reach full potential in your blood since it, like all T4 meds, it takes 4-6 weeks to really "do" what they do.  You're probably still not on a therapeutic dose and once you get there, it still takes time for your body to get well (you do realize that hypothyroidism is an illness that you have to recover from?) and it will resolve the most important things first, so your hair issue might be the last  symptom to go away, because it's not as important as things like heart rate, metabolism, body temperature and other essential functions.

Once you've been on the Tirosint for at least 5 weeks, you need to retest, but part of your problem is that your doctor isn't ordering the right tests... Make sure he orders FREE T3, along with the Free T4 and TSH, then you'll have a much better idea of where you're blood levels are and you can go from there.  

It's not the Tirosint and it's not the labs (they're just numbers); you're not in a hair loss cycle... you're most likely hypo and you need a higher dose of thyroid med, but you need the right tests to get you there...
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Avatar universal
And yes, I have a history of anemia. For most of my adult life.
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Avatar universal
While on synthroid it made me lethargic, I constantly felt off, and I did not feel well.

The dose of Armour was his decision. Armour is when things really went downhill.

The Tirosent labs were after me starting it. I do feel better on Tirosent. More like myself and less issues.  Just my hair.

One of my Endos told me I was pre-diabetic. My sugar levels were higher at one point and I did have gestational diabetes.

I have been on Iron for a year and half and can't seem to get my numbers up. I was tested this week for an iron deficiency. Another Endo is looking into why my body can't absorb iron properly.  I've never been told I have a B-12 deficiency.

My hair is still falling out at an alarming rate. Could this be the Tirosent? Or and issue with my medication dose? Or my labs? Am I in a hair loss cycle? My last major hair loss cycle was Oct-Jan.

I'm desperate for my hair to stop falling out.
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
Sorry, I missed the post with your labs...

First off your doctor is testing for Total T3, which is obsolete and not very useful.  He should be testing Free T3, which is the hormone that's actually used by the individual cells in the body.  

Even at that, it appears that you've never really been on a therapeutic dose of hormones, but then you haven't really stayed on anything, except the Synthroid, long enough, either and 4 months isn't all that long when you're hypo.

What didn't you like about the Synthroid?  

Why did your doctor only give you 15 mg Armour? That's like having nothing.

25 mcg Tirosint is a good starting dose, but 2.5 weeks on it isn't long enough for it to do much of anything.  Were the last labs that are labeled "Tirosint" done prior to starting the Tirosint or after you started?  Since you've only been on it for 2.5 weeks (well, 3 now), it hasn't been long enough to have labs that actually reflect the Tirosint, at its full potential in your blood.

On what basis were you diagnosed with pre-diabetes?  Both your insulin level and A1c are well within normal levels.

Your ferritin is dismal... are you supplementing iron to bring that level up? Do you just have a history of iron deficiency anemia or do you have B-12 deficiency as well?

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Avatar universal
Hi Barb...wondering what your thoughts are regarding my labs.
Helpful - 0
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