Tirosint, what are you doing to me?

[librarygirl2]

I have been on Tirosint since November but I could not last longer than 10 days in a row on it.  Why? Because it gave me the following side effects:

- Intense sleepiness after taking it
- Hair falling out everywhere I go like it's supposed to be a sweater
- Anxiousness
- Heart beating rapidly
- Sweats and increased body odor
- Buzzing inside body like being really wired
- Teeth pain and dry mouth
- Anger issues
- Muscle pain
- No period

I was taking 50 mcg after being switched over from Synthroid 50 mcg. Not sure why my body reacts so weird to it but I couldn't even take it long enough  (6 weeks) to get a TSH, FT3, and FT4 test.   The sleeps and the hair loss was too much to deal with.

Anyone else have reviews with Tirosint?  I really was hoping that it would work for me but it was not the miracle treatment at all.

Thanks!

Can anybody else

[Sue8_69]

I too had my thyroid removed. Regretably, I listened to my Endo.  After 6 years on Synthroid only(125mg most recent)...I just couldnt do it anymore.  I napped at work 3 times a day, recently gained a bunch of weight and didnt change my eating. I actually felt like i was going to pop.  The brain fog was horrific.  At my request my doctor put me on Armour...but he overdosed me on 120 (equal to 200 synthroid).  Then later ended up in ER with 35 heart bpm.  Im still adjusting Armour dose but think i need a T4 combo w/ the armour. My heart hasnt beat right all month.  I dont understand why they didnt give me a little T3 after surgery.  The doctors do seem clueless its exhausting.  Sue

[Sue8_69]

I too had my thyroid removed. Regretably, I listened to my Endo.  After 6 years on Synthroid only(125mg most recent)...I just couldnt do it anymore.  I napped at work 3 times a day, recently gained a bunch of weight and didnt change my eating. I actually felt like i was going to pop.  The brain fog was horrific.  At my request my doctor put me on Armour...but he overdosed me on 120 (equal to 200 synthroid).  Then later ended up in ER with 35 heart bpm.  Im still adjusting Armour dose but think i need a T4 combo w/ the armour. My heart hasnt beat right all month.  I dont understand why they didnt give me a little T3 after surgery.  The doctors do seem clueless its exhausting.  Sue

[Barb135]

What are your Free T3 and Free T4 levels?  I hope your doctor isn't just dosing you, based on TSH... Please post FT3 and FT4 results, with reference ranges...

[firefrog]

I have a tsh of 31. Dr has put me on tirosint from synthroid 150. Have been changed for 4 weeks. Nausea, headache, sweats dizzy, sleeplessness and tsh is now 28.6. Should it be lower by now? I don't know how much longer I can take this. Oh and sever abdominal pain that has just started in the last 2days. Help please. I have graves disease. Total thyroid removed in 94.

[gimel]

There are a lot of knowledgeable and experienced members on this Forum who are more than happy to help.  Please start by posting your last few series of thyroid related test results and reference ranges shown on the lab report.  How much Cytomel are you taking with the 150 mcg of Tirosint?  If tested for Vitamin D, B12 or ferritin, please post those results also.  

[jankie98]

Just wondering if anybody is still here.  I had my thyroid destroyed with radiation in 1985. (I was 11) I've been on Synthroid or Levothyroxine since then. I've really started having horrible symptoms the last several years, and have had doctors tell me there wasn't any other medicine I could take, tell me that I'm just not taking my medicine like I should, tell me that my counts are off but not enough to change my dosage or cause symptoms. I've been through 5 doctors in the last 3 years trying to get someone to help me.  I finally found one in September that prescribed Tirosint (150mc) and Cytomel.  The first couple of days on it, I felt horrible! I feel better now. I'm losing less hair than I have in a couple of years.  My skin seems to be getting better. I am still tired. I've been tired for almost 30 years. I'm tired of being tired. That seems to only be getting worse.  I don't see my doctor again until after Christmas, so I don't know how the new meds are affecting my blood work.  I was on 175 mc of Levothyroxine.  I'm thinking maybe I need a higher dose of Tirosint, or a lower dose that I can take twice a day? I am also faxing in an exception request to see if I can get this medicine covered under my insurance, because I can't afford to pay for it. ($150/mo) My doctor gave me enough samples to last 2 months, so that's what I've been taking.  I have also been terribly confused the last couple of weeks.  I can't concentrate on anything. at all.