Who are you with THYROID???

[stella5349]

As a refresher for members and an invitation to ALL -

How did you come to the thyroid board here at Med Help?  Let us know what conditions you have and what you went through so far.

Do you have a parathyroid disorder? Do you - or did you - have cancer and have had your thyroid removed? Are you autoimmune and struggling?

So many - visit here and a thread like this is so important to know what's up.

We as Leaders and members would like to know what has brought you to this board so we and others can direct you to the best resources available.

Thanks and Happy Health!

NikkiP/Stella

[nanca]

After being told by my diet doctor I was hyperthyroid and needed to follow up with my primary doctor,Came to Medhelp to see what it could possible be.  Found out I was graves with two nodules 1 solid and 1 too small to tell.
2 fna's inconclusive results. I had right side of thyroid removed 22 years ago due to 3 benign nodules. Now Im left with the option to get a core biopsy or thyroidectomy of my left thyroid. And after being denied by my medical insurance of a second  opinion for a core biopsy . I am being referred to an Endocrinologist at the UCLA Medical Center  which I am so happy about! Im hoping if I have to have surgery again it will be the Minimally invasive thyroidectomy. I also think that they dont wait  until your hypo to give you replacement thyroid medication . So thankful to this forum, Its been so helpful for me.....

So Thank you all.............

[Barb135]

I was dx'd with hypothyroidism in June 08 and found MH while searching for info that might help me feel better because my pcp was just NOT getting it.  He even refused to do some of the necessary testing because he insisted it wasn't needed and that synthroid was going to make everything "all better".  Also battling weight issues and again, no help from pcp.

Long story short - Using info found here, I managed to get a referral to an ENT who suspected Hashi's, in Oct 08 did further testing to confirm; with US uncovering multinodular goiter.  ENT ultimately referred me to endo, who changed my med.  I'm now taking generic levothyroxine and he added 10 mcg cytomel daily.  

I also have pernicious anemia so as long as I get my B12 shot every 2 weeks and take my thyroid meds, I'm feeling better than I have for years, in spite of still struggling with the weight issues.

Thanks to everyone here who did and still does provide such a lot of information for me to be able to get the treatment I needed/deserved.  

[stella5349]

I found med help on a search too. I was already RAI's for Graves disease back in 2004 and I struggled trying to find out answers why I felt so ill after it. I was googling "burning tongue" and thyroid and found Med Help. I lurked for many months before posting for help. Two members step up and gave me my first clue that this was all realated to thyroid. That started my endless search for answers.

At this time I am grateful that 100% of my hypo symptoms are gone. Even though I became OCD on Thyroid research for myself I learned so much about all the hormones connected together and my health has never been better.

I too thank everyone for being a support for me. And I hope I can return all help back for many years to come.

This is what is about for me now, not letting others suffer as long as I did - not being alone and not knowing why I was so ill.

Maybe even save some patients a bit of cash too and not go through all the expense I did - when simple testing was what I needed to steer me correctly for better health.

[Super_sally888]

I was diagnosed with PCOS and hypothyroid in 2000 & parathyroid issues.  No known cause, but possibly autoimmune (though antibodies were low I do have other autoimmune stuff going on).  Possible pituitary involvement (pituitary adenoma). After a few years on rocaltrol (bioactive vit D) the parathroid stuff settled down on it's own.

Just had a baby 2 months ago.  She is very healthy - thank goodness after a difficult pregnancy, which included a laparatomy for what turned out to be appendicits at 3 months followed by (but probably caused by) amoebiasis.  I also had gestational diabetes.  Been hanging around medhelp for a couple of years now.  Like the support and I like to give advice when i can.

When i got treated for thyroid it's like the lights came on again. When I added dessicated (armor) it was like the world had color again.  it took me 2 years of feeling terrible and gaining weight before I got diagnosed.  After about 3 years my doctor left and I had to find a new doctor.  She said she didn't think I had hypothyroid and cut my meds.  WHen my TSH skyrocketed she had to admit she was wrong.  Anyway, I didn't hang around and found my current doctor of about 5 years who is competent and caring and knows my history.... though there are ups and downs... but he handled my pregnancy superbly and I have my beautiful baby girl as a result.

Anyway, I hate to think of others suffering from what is normally a very treatable condition.... and hope my experiences can help someone....

[selmaS]

Hi...I was researching info on another condition I was dx with and joined bcuz I could also get info on Hashimoto's which was dx shortly after my other one.

There are so many forums out there, but everyone here is so helpful and friendly.

And like I said there are so many forums within this site that I can look up info on my father's condition, or my mom's ect.

With my hashi's I was dx'd but not put on meds and it was the member's here that got me on the right track for testing and I was able to get my PCP to redo labs and finally after a yr and a few months was placed on meds.

Thanks!!  : )
"selma"

[hope4thegoodstuff]

I found this site thru the help of my daughter.  She's an x-ray tech/massage therapist.  I have just had my thryoidectomy a week ago.  My thyroid was in disgusting shape apparently, per the surgeon, due to Hashimoto's thyroidits.  I had a nodule that was cancerous though not as bad as the Dr expected.  He did, however, remove a lot of lymph nodes.  That made me nervous, but they all came back as reactive to the Hashi's and not cancerous.  At this point they do not believe that the cancer has gone very far.  He took my thymus as well.  That was ok, I guess, as I didn't even know that I had one of those.  : )  So I am 10 days in to having no thyroid and I am not on any meds.  I go to see the surgeon again on Thursday for a follow up and then go the endocrinologist to discuss radio active iodine therapy.  I am more uptight and worried about that than I was the surgery.  Gosh I just want to get thru this and get it over with.  Though to be honest, I have yet to really hit Hypo hell.  I thought I'd be well on my way and I really don't feel much other than getting tired easily.  I had that with the Hashi's.  Anyway, being able to come in and read other peoples stories helped get me thru the surgery.  It went well.  Incision is healing and I don't have a lot of other issues at this point. Thanks to all of you.  The support on this site is amazing.