Who are you with THYROID???

[stella5349]

As a refresher for members and an invitation to ALL -

How did you come to the thyroid board here at Med Help?  Let us know what conditions you have and what you went through so far.

Do you have a parathyroid disorder? Do you - or did you - have cancer and have had your thyroid removed? Are you autoimmune and struggling?

So many - visit here and a thread like this is so important to know what's up.

We as Leaders and members would like to know what has brought you to this board so we and others can direct you to the best resources available.

Thanks and Happy Health!

NikkiP/Stella

[MartinHarris407]

I'm glad to hear success stories. Just remember, that if your endocrinologist is not listening to you, you always have the option for a second page.  I would recommend that you lookup who is your local thyroidologist, they are endocrinologist's who deal strictly with thyroid disorders.  Currently it's a small group of them, but they are very knowledge.

I currently sell Ultrasound supplies online, however, I also distribute ultrasound systems.  I can tell you that I've met alot of endocrinologist's, but if I ever had a thyroid disorder, I would go running to a thyroidologist.

Their website is http://www.thyroidologists.com/....  I hope this helps all of you.

[wmac]

Im really confussed here. I thought when you have hyperthyroid your tsh is high, but im reading about people with low tsh and having hyperthyroid. can someone please explain all this to me.. I just had all the blood work today tsh t3 t4 and other hormones as well. I had a hida scan done on june 3 in which they put radioactive dye in me to look at my gallbladder and every since I have not been well. Every night my face feels feverish, my eyes have the surprised look, i have lost 2 lbs and im already skinny i have a lump in my neck where thyroid is and it hurts it hurts to swollow sneeze yawn cough look up im totally feeling crazy my resting heart rate wont go below 90 in which my normal was 58-65 im totally strssing over thise, my tsh test will be done tomorrow, they have to send out the t3 and t4 we are a small hospital. but yet i also get cold and then hot. help..

[mmc2k6xxx]

Hey Im 21 and was diagnosed with Hashimotos and graves disease... got a total thyroidectomy on the 1st of april and to be honest... I feel worse!! Ive now been left with hypocalcemia and bad anxiety and I hate it... Ive also had a lot of problems with my drs... I feel there useless arses!!! So yeah this site has defo been a blessing =) Its good to talk to other folk who have had similar experiences x

[jada110]

had thyroid cancer and therefore had my thyroid removed. I gained 40 lbs. in six weeks---yes 40, and have continiued to gain even though I am up to 200mg's daily. I have moaned and groaned to my 3 doctors, esp. my endocrinologist. I have also been plagued by memory loss and lack of concentration, I was tired all the too---a severe lack of energy, I hadn't slept properly at night in just as long. I'd wake up and jump straight out of bed in the middle of the night from cramping--legs, back, hands, feet, everywhere. I was irritable, severely depressed, and had panic attacks. I was in a fog constantly. I thought I all of a sudden developed allergies---to everything---all year round.   WELL, I ran out of levothyroxine and did not have the money to buy it, so I of course could not take it. It has been almost a month, and let me tell you, my "allergies" have completely gone away---I can breathe again!   I have more energy than I have had since I had my thyroid removed, The past two weeks I haven't even considered a nap. I feel and think sharply and clearly--like I used to. I have been feeling emotionally better as well-----ALOT better. I am not putting on weight, in fact the opposite, and am going to get a scale to prove it. I fell truly as though I have literally come out of a fog!  At this point I do not have health insurance so I will not be going to my doctors. But when I am able to, it will not be the same ones that I have been complaining to for the past 5 years. I really think I am allergic to this stuff, and my quality of life was not up to par while taking it. I will say that I did take Synthroid when I had insurance and it seemed to work better, so maybe that would be an alternative (if you have health ins cause it is really expensive). I don't know, but I do know I will not be taking Levothyroxine ever again.

[jada110]

had thyroid cancer and therefore had my thyroid removed. I gained 40 lbs. in six weeks---yes 40, and have continiued to gain even though I am up to 200mg's daily. I have moaned and groaned to my 3 doctors, esp. my endocrinologist. I have also been plagued by memory loss and lack of concentration, I was tired all the too---a severe lack of energy, I hadn't slept properly at night in just as long. I'd wake up and jump straight out of bed in the middle of the night from cramping--legs, back, hands, feet, everywhere. I was irritable, severely depressed, and had panic attacks. I was in a fog constantly. I thought I all of a sudden developed allergies---to everything---all year round.   WELL, I ran out of levothyroxine and did not have the money to buy it, so I of course could not take it. It has been almost a month, and let me tell you, my "allergies" have completely gone away---I can breathe again!   I have more energy than I have had since I had my thyroid removed, The past two weeks I haven't even considered a nap. I feel and think sharply and clearly--like I used to. I have been feeling emotionally better as well-----ALOT better. I am not putting on weight, in fact the opposite, and am going to get a scale to prove it. I fell truly as though I have literally come out of a fog!  At this point I do not have health insurance so I will not be going to my doctors. But when I am able to, it will not be the same ones that I have been complaining to for the past 5 years. I really think I am allergic to this stuff, and my quality of life was not up to par while taking it. I will say that I did take Synthroid when I had insurance and it seemed to work better, so maybe that would be an alternative (if you have health ins cause it is really expensive). I don't know, but I do know I will not be taking Levothyroxine ever again.

[clare99]

Hi there, greetings from Norwich, England, this is my first post.  

1.  I found this site while browsing for info on levothyroxine side effects.

2.  I was diagnosed with hypothyroidism 12 years ago when I was 48 and undergoing investigation of very heavy menstruation.  I also have mild asthma and vitiligo (an autoimmune skin condition causing loss of pigment).  My mother also had the same three conditions (she lived to 92 btw!).  There's also a history of autoimmune disorders on my father's side (type 1 diabetes).  This is a shot in the dark, but both my parents had Rh negative blood groups (as do I and my sister, she has type 1).  Is there any known connection between Rh factor (or lack of it) and autoimmune disorders?

I take 100mcg levothyroxine and have annual blood tests.  For several years I've been experiencing heat intolerance, palpitations and feelings of anxiety/panic, plus difficulty sleeping (any more than 5 hours is a bonus).  I put this down to the menopause and have been taking a natural remedy which helps a bit, but at age nearly 60 I wonder if I'm having levothyroxine side effects?  

3.  As I'm new to the site I can't comment on how helpful it is, but it's good to make contact with other people worldwide who share similar issues.

4.  Successes . . . watch this space!